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getting no relief!

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  • getting no relief!

    Since I married, 3 years ago, I have had hydrodistention of the bladder, been on and of paxil (which some of my many doctors believe may help control IC), countless bladder installations, 2 miscarriages, given birth to a beautiful, healthy boy, had an abcess removed from a skene's gland (which they found on my urinary tract), and still no relief. I have virtually no intimate relationship with my husband and have to decide what to do next. My choices seem to be neurontin, paxil, muscle relaxants or Elmiron - anyone out there with a similar history? Any suggestions?

  • #2
    I take Elmiron. It takes a while to get relief from it. But for me it's well worth the wait. I had stopped it for my first pregnancy and had such luck with it that I started back on it a few months after my son's birth. It truly takes a lot of hard work and time to find the right meds.

    I'm glad you found this site. You'll get great info from it. There are as many or more IC patients out there who do feel good most times.

    Take care,
    Tons of support,

    IC angel helping families in need for the holidays. [email protected]


    • #3
      Elmiron in combination with Vistaril, Detrol LA and Elavil has changed my life. It wasn't until we added the Elmiron to the mix that I began to feel almost normal again. Worth a try. [img]smile.gif[/img]

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


      • #4
        does diet really help? I tried for several months but didn't see a significant difference. But I never cut out certain things like yeast and dairy?


        • #5
          I think the only way to be sure whether or not diet helps you is to eliminate all of the potential problem foods from the diet for a few weeks to see if it helps. If you see improvement at that point, then it's usually possible to add back some favorites with no problem. If you add them back one at a time, you can tell fairly quickly which ones are a problem so you can stay away from those.

          Stay safe

          Elmiron Eye Disease Information Center -
          Elmiron Eye Disease Fact Sheet (Downloadable) -

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help:


          Diet list:

          AUA Guidelines:

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Anyone who says something is foolproof hasn't met a determined fool