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new to all of this
It's been a long strange dream....I just found out today that I have IC. I am still a little fuzzy on details. My doc told me that it's an autoimmune thing like lupus and thyroid, is this true? Am I gonna have this the rest of my life? I am almost 26 yrs old, I have 3 beautiful kids and a wonderful b/f who has been with me through my whole ordeal. I had to have a partial hysterectomy last year because pre-cancer was found. I have had my tubes tied (this seemed pointless since i have no cervix or uterus). And now this. Oh did I forget to tell you that I have been diagnosed with depression? Seems like everything is falling around me. banghead
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If you play with fire, you're bound to get burned!!!!! -
Welcome, firewriter! hi So glad you found us and I am sorry to hear you have IC. The good news is that now that you have a diagnosis you can get to work on feeling better. if you haven't read the Patient Handbook, it is a great place to start: http://www.ic-network/handbook/
It is so normal to feel sad, overwhelmed and angry when you find out you are dealing with IC. Please know and believe that most people with IC do eventually find treatments that help them and go on to lead fairly normal lives. There is hope, so don't completely give that up.
Has your uro suggested any treatments yet?Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
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“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy -
Welcome. I'm very glad you found the IC Network. You'll find a lot of support and information here.
I suggest you read the information in our Patient Handbook at http://www.ic-network.com./handbook/ I know you will want to learn all you can about IC and that's an excellent resource.
My IC was diagnosed 29 years ago and if there's any one thing I like most to share, it's that there is life with IC. It may take a while to find which foods and drinks are a problem and what foods and drinks to avoid, but most of us do.
Sending healing thoughts,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Thank you!!!! So this is a lifetime thing, then. OH well, lol, i wanted to lose weight anyway. My doctor suggested that I see a weight specialist, I am 100 pounds over weight. But like I said I have my kids and my b/f and you guys now too. ThanksIf you play with fire, you're bound to get burned!!!!!Comment
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I don't get on here often, but for some reason I thought I would see what was going on today. First of all I am 24 with a 2 year old son and I also have a wonderful husband who has really helped me when I was down. I have been diagnosed with IC for about 9 months. I want to stress to you that depression is a also part of this condition so I really am concerned about you if you already have it. It does run in my family but I have been fortunate enough that I can deal with it without medication or other problems. I will not be able to check this posting after a few hours so if you would like to talk about anything more please email me at [email protected]. I can keep up with that better.
Remember you are not alone. grouphugComment
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Hi and welcome to the boards. You are not alone in feeling overwhelmed at first being diagnosed with IC. I know I felt the same way and totally depressed about the whole situation. In time though that feeling will subside, when you are able to find the right regimen of different things to help you in the fight with IC. It all takes a while, but you have come to the right place for support, information, and caring fellow ICers here on the boards. Take heart, we are all here to give you as much support and help as you need. Take care and a welcoming hug Iris. hi grouphugToday and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.Comment
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Hi there,
You are not alone!!
I'm 21, don't have any kids, but am happily married. I have IC, Vulvodynia, Fibro/CFS, IBS, and depression (possibly bipolar). It's like you get sick, and then everything else hits you and you think, "Can't I just get a break??" But you learn to cope, and you learn how to handle everything and try to get to feeling normal, and it can happen. I see my Internist for my weight issues, she prescribed me a diet med that you take with food and it cuts the fat off, I've already lost 16 pounds. It just irritates IBS!!
So just know that you do have us. 24/7 we are here!!
Hugs and love,
Jess grouphug kissingMommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!Comment
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Hi and welcome to the boards. You are not alone. I suffer from depression as well as thryoid and uric acid high cholestrol and degenerative disc disease. I don't have any kids but am 43 years old and single. but I do have 5 nieces and 2 nephews. I will be praying for you and please keep us posted on how you are doing.Hang in there , There is hope.
There is hope. Prayer works.
Love, DebbieComment
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Wrong post- sorry! Welcome though and I hope you feel better and find a good treatment soon.
SaraComment
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Thank you guys. I was diagnosed with depression shortly after my son was born 6 yrs ago. Not taking meds for it, because for now I have it under control. If anyone wants to talk to me my Yahoo name if firewriter78. No one that i know has to deal with this. I have been told that I am too young to have gone through the things that i have gone through, but at least I haven't gone through this alone. I have my best friend, my b/f and you guys. Oh btw, my kids are 6 yrs, 2 yrs and 18 months. I feel like I hit a brick wall when I found out about this. I think I said in my last post that I have to see a weight specialist, because I am almost 100 pounds overweight. Any suggestions about this? hi
I am sorry if it seems like I am repeating my self. I do that alot because I never remember who I tell things too, lol. screamIf you play with fire, you're bound to get burned!!!!!Comment
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Hi hi ,
welcome to the icn family sorry you have ic but glad you found us.
i was dx with ic june 2001 i was 26 i'm now 29 i have three children ages 11,10,5 and i'm married to a understand man.
if you ever need to chat please feel free to pm me or email me my email address is at the bottom of this post.
Good Luck.
hope you find a treatment that works for you soon and please make your diary on what you can and can't eat this board has diet list where you can see some of the do's and don't.Medicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!
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WELCOME FireWriter. I am so thankful you found this site. I can attest to the love and support you will find here. I have been in pain, tears, and fed up and these ladies (and the few gentlemen) have always come to lift me up. First of all, I do recommend reading and re-reading everything you can get your hands on about IC. Also, it is a trial and error thing with most of us. There is not really a 'textbook' case of IC. We are all different. Second, your life is NOT over. Most of us can still work, AND deal with our children, tho sometimes it's easier to do the former. hehe. Please feel free to ask anything you want. We are all open and willing to share our experiences. Good and Bad. Hugs, Michelle.Comment
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