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Wanted to post and chime in. I originally thought I had TMJ and went in for an MRI, then was diagnosed with Trigeminal Neuralgia which can seem similar. It basically can fluctuate between a numb pain in the face, to a sharp pain to a fiery pain. I am waiting to see where the road ahead leads.
Are you on any medications to help with this? Sometimes it seems like we are magnets for pain --- I hope you have some relief soon.
Wanted to post and chime in. I originally thought I had TMJ and went in for an MRI, then was diagnosed with Trigeminal Neuralgia which can seem similar. It basically can fluctuate between a numb pain in the face, to a sharp pain to a fiery pain. I am waiting to see where the road ahead leads.
I had surgery to correct TMJ back in 2000 --- my IC was diagnosed in 1975. My jaw pain was caused by cartilage moving so I had a "bone on bone" friction every time I chewed anything. Once it was surgically corrected, I haven't had a jaw problem. ... and I don't know if it was related to my IC.
I went to see the NP yesterday. (By the way, I have hit the jackpot with this new NP...she's a fellow ICer.) I went because I have been having horrible jaw pain and displacement. No recent injuries. The NP listened to me, examined my mouth - poked around and said I had TMJ/TMD. She also told me that ICers are a group that tends to get/has TMJ/TMD. I don't recall seeing this information, or maybe simply overwhelmed by all the other information I was learning.
I did a search and didn't see existing forum topics. Please let me know if I am missing it. Also what has been your experience if you have TMJ/TMD?
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