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  • Hormone Allergy

    Hi I am 23 and have had IC for 4 years. I have been having allergic reactions for a year and a half always around my period. My Throat and tongue swell, face flush, eyes puffy, and itching all over. I am going for testing next week to see if I am allergic to my own hormones -estrogen or progestrone. Terrified to say the least. Prayers would be appreciated because i have to come off all my medications. Does anyone else have IC and a hormone allergy? Very nervous of the outcome.
    Diagnosed with IC March 2012
    Hyophen 2 times a day
    Prelief (when I am bad and eat tomatoes!!!)
    AZO standard (when Pain gets too intense)
    Muralax

    I've never prayed a prayer God couldn't answer,
    and I've never shed a tear that God could not dry.



  • #2
    Re: Hormone Allergy

    Originally posted by Kaylyn View Post
    Hi I am 23 and have had IC for 4 years. I have been having allergic reactions for a year and a half always around my period. My Throat and tongue swell, face flush, eyes puffy, and itching all over. I am going for testing next week to see if I am allergic to my own hormones -estrogen or progestrone. Terrified to say the least. Prayers would be appreciated because i have to come off all my medications. Does anyone else have IC and a hormone allergy? Very nervous of the outcome.
    I just hope you get an answer quickly. Not knowing is always the worst of times.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: Hormone Allergy

      Wow! I am a very allergic person, so I know how awful it is to have that allergic feeling --itching, swelling, etc. Terrifying. I have never heard of being allergic to your own hormones, but I know it is possible to be allergic to almost anything. Has any type of antihistime helped you? If you are allergic to your hormones, would some kind of hormone therapy--like birth control pills help? Have they tested you for food allergies also?

      Prayers being sent. Jo Ann

      Comment


      • #4
        Re: Hormone Allergy

        i Have been on Prednisone and Antihistamines level 1 and 2 blockers for over a year and just still seems to go crazy every month with itching and throat swelling. They are saying normally a hysterectomy to remove hormones would be done but im 23 and want to have children so they don't know what to do. Getting pregnant would increase hormones and could potentially kill me if they couldn't calm things down. Very scary situation.
        Diagnosed with IC March 2012
        Hyophen 2 times a day
        Prelief (when I am bad and eat tomatoes!!!)
        AZO standard (when Pain gets too intense)
        Muralax

        I've never prayed a prayer God couldn't answer,
        and I've never shed a tear that God could not dry.


        Comment


        • #5
          Re: Hormone Allergy

          Originally posted by Kaylyn View Post
          i Have been on Prednisone and Antihistamines level 1 and 2 blockers for over a year and just still seems to go crazy every month with itching and throat swelling. They are saying normally a hysterectomy to remove hormones would be done but im 23 and want to have children so they don't know what to do. Getting pregnant would increase hormones and could potentially kill me if they couldn't calm things down. Very scary situation.
          I wish I had some helpful advice for you, but I honestly feel you should see a specialist about this particular concern. I'm not certain which kind of specialist to recommend, but you might find it helpful to talk with a specialist who deals with high risk pregnancies. I sincerely hope you will be able to resolve this issue; I know it's scary.

          Sending gentle hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Re: Hormone Allergy

            I am, ICDonna - I'm actually driving 3 hours from home to an immunologist right now. He may send me on to a specialist once he figures out which hormone I am allergic to. He says depending on which hormone will determine the treatment options. Thank you It is definitely scary. Very hard not to be depressed. My husband has always wanted children and has had a terrible time coping with IC as it is this will be very hard for him. IC already makes you feel like less of a woman so this to boot will be very hard. Only the Lord will be able to show me how to cope im sure.
            Last edited by ICNDonna; 02-28-2015, 07:59 AM. Reason: Added comma to clarify.
            Diagnosed with IC March 2012
            Hyophen 2 times a day
            Prelief (when I am bad and eat tomatoes!!!)
            AZO standard (when Pain gets too intense)
            Muralax

            I've never prayed a prayer God couldn't answer,
            and I've never shed a tear that God could not dry.


            Comment


            • #7
              Re: Hormone Allergy

              I hope you're able to work this out. Just remember --- you are no less a woman --- no less a person --- because you have interstitial cystitis. Actually I think many of us are heroes, which we demonstrate by our coping with an incurable disease. One day, I hope soon, a cause for IC will be discovered --- and a cure will follow close behind.


              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Re: Hormone Allergy

                As an update I tested positive for Estrogen allergy. They did just a scratch test to start with the tiniest amount and I went into a full body reaction within 5 minutes. Im am going to a gynecologist next week to find out how they will treat it. Thank you for prayers. Afraid but happy to know why I have been so sick.
                Diagnosed with IC March 2012
                Hyophen 2 times a day
                Prelief (when I am bad and eat tomatoes!!!)
                AZO standard (when Pain gets too intense)
                Muralax

                I've never prayed a prayer God couldn't answer,
                and I've never shed a tear that God could not dry.


                Comment


                • #9
                  Re: Hormone Allergy

                  Test come back I am extremely allergic to my own estrogen. Very nervous and I guess depressed. Happy to know what it is but scary too. Just thought I would share the results. I go to gyno next week to see what they are going to do. Didn't really give me much info just concluded after a full body reaction from skin test that I was dangerously allergic. Thanks for the prayers.
                  Diagnosed with IC March 2012
                  Hyophen 2 times a day
                  Prelief (when I am bad and eat tomatoes!!!)
                  AZO standard (when Pain gets too intense)
                  Muralax

                  I've never prayed a prayer God couldn't answer,
                  and I've never shed a tear that God could not dry.


                  Comment


                  • #10
                    Re: Hormone Allergy

                    Kaylyn- I just came across this thread and wanted to ask you how you are doing and feeling? I hope better and I hope you are getting answers xo
                    Diagnosed via cysto/hydro 2/6/2015
                    Symptoms: frequency, urgency. uretha discomfort, mild bladder pain (a raw sore type feeling.)
                    CURRENT TREATMENTS:
                    IC Diet (2/15) , Elmiron 100-300mg (3/15-5/16) insurance issues switched to PPS-DR (5/16-present) 2 150mg capsules daily (pentosan polysulfate sodium same formulation in Elmiron) DH Aloe 3-6 capsules daily (3/15), Schiff Digestive Advantage probiotics 1 pill daily (3/15), Amitriptyline 25mg- (5/15-8/16)attempting to wean down due to suspected weight gain side effect. Hydroxydine 25-50mg as needed at bedtime (5/15) Quercetin 2 pills daily to help immune system and body inflammation. Cystoprotek 4 capsules daily (8/15). Prelief as needed.
                    USE DURING FLARES: Heating pad, ice packs for PFD, Vaginal Valium 10-20mg, Uribel, Pelvic floor stretches.
                    PAST TREATMENTS: PFD physical therapy (6/15-10/15) & Counseling for stress mgt (9/15-12/15) both very helpful. GNC brand progesterone cream (not sure if this made a difference). Too many different diets and herbs to list.
                    TRIGGERS: STRESS STRESS STRESS. BCP. Hormonal fluctuance (ovulation/period). Coffee, artificial preservatives and dyes.

                    Comment


                    • #11
                      Re: Hormone Allergy

                      Thanks rshell84. I was put on Micronor which I'm having terrible leg pain and seem to be flaring with IC. Not sure if this is causing flare or not. If this doesn't work they are wanting to give me a shot that would put me into temporary menopause very scary.
                      Diagnosed with IC March 2012
                      Hyophen 2 times a day
                      Prelief (when I am bad and eat tomatoes!!!)
                      AZO standard (when Pain gets too intense)
                      Muralax

                      I've never prayed a prayer God couldn't answer,
                      and I've never shed a tear that God could not dry.


                      Comment


                      • #12
                        Re: Hormone Allergy

                        Try not to worry. If the results are temporary, it might at least provide some answers for you.

                        And don't forget --- it's YOUR body and you who must make decisions. If you're not feeling comfortable with what you are being told, I suggest a second opinion.

                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment

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