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  • Please PLEASE help if you know about dry eye

    I have severe dry eye that keeps me in the dark a lot. I am not working because of them and IC. IC in a dark room is hard. Anyway, my question is do you think serum tears would be ok to use? My dr's tell me I have a fair amount of mast cells in my eyes compared to others. Both the eyes and bladder are mucus membranes. I stopped making tears. I can't take oral anti histimines because I am allergic to the anti cholonergic effects. I can and have taken more natural anti histimines like cystoprotek. I have 0 schirmer. I have been tested for sjogrens 5 times all negative. Do you think serum tears would be bad like poison since it is putting a part of my body into my eyes. Confused.
    Frequency/Urgency, Mild Pain, Spasms, Pressure

    I have tried:
    Bladder Spasm medications and antidepressants - all cause mydriasis
    Antihistimine - Mydriasis
    Cyclosporine - side effects
    Elmiron - side effects
    Interstim
    Botox - can't pee but need to all the time
    Mild Hyrdo
    My 11 year old german shepherd taken away because I am no longer able to care for him. Feeling yet another failure.

    I am trying:
    Omega 3
    IC and anti oxalate diet but staying on Cystoprotek
    Acacia Fiber (helping some)
    Hugs and Kisses from my German Shepherd

  • #2
    I have dry eyes and am helped by artificial tears. I can use them several times daily.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Donna thanks for the reply but my eyes are past eye drops. I even have contacts filled with water against my eyes to keep them lubricated (scleral lenses from Dr. G). Good to see you on here.
      Frequency/Urgency, Mild Pain, Spasms, Pressure

      I have tried:
      Bladder Spasm medications and antidepressants - all cause mydriasis
      Antihistimine - Mydriasis
      Cyclosporine - side effects
      Elmiron - side effects
      Interstim
      Botox - can't pee but need to all the time
      Mild Hyrdo
      My 11 year old german shepherd taken away because I am no longer able to care for him. Feeling yet another failure.

      I am trying:
      Omega 3
      IC and anti oxalate diet but staying on Cystoprotek
      Acacia Fiber (helping some)
      Hugs and Kisses from my German Shepherd

      Comment


      • #4
        I am not familiar with serum drops. What I have used with some success is Restasis. It took three months for me to see some improvement. The biggest improvement for me is not to have my eyelid stuck to my eyeball in the morning. Geez, that really hurts. The over the counter eye lubricants did not work for me. I even tried the extra strength ones (they feel like I have vaseline in my eyes) with no success.

        Comment


        • #5
          I think it's worth a try, with your doctor's recommendation. I have managed to control my dry eye by staying away from the sunlight and Zaditor drops. But I think they might have an antihistamine ingredient.

          Best wishes
          Diagnosed with IC in 2005, since then have been diagnosed with an unspecified autoimmune disease, with inflammation in my bladder, colon, left knee, left ear, left eye, lungs and pericardium. Argh!

          Medical research addict.

          Likes: hot baths and naps with cats

          Comment


          • #6
            Have you tried restasis? I think that's the name of the new med that helps produce tears. My ophthalmologist suggested that as an option for me if the tears don't work. So far, frequent tears are doing well for me.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Natty, saw on your profile that you had side effects with cyclosporine. I believe restasis has cyclosporine in it.

              Comment


              • #8
                Applegal1, nice catch. I just checked my Restasis and it does have cyclosporine in it. I

                Comment


                • #9
                  I have been on restasis for a year. The molecule is too big cyclosporine doesn't get into your blood stream when in the eye. My eye docs teach a harvard. Thank you for the concern and it is a good catch that would have been worth looking into but already did I just can't stand this dry eye. I think I could do a part time job maybe even with the ic if my eyes weren't so dry. They burn and are red. I can do allergy drops in the eye but not in a pill. The mast cell stablizers (allergy drops) don't cause the blown pupils. Don't know why other than maybe it doesn't get enough in the blood stream either. Thanks for the thoughts. I am going a little mad curled up in bed needing to pee with my eyes burning.
                  Frequency/Urgency, Mild Pain, Spasms, Pressure

                  I have tried:
                  Bladder Spasm medications and antidepressants - all cause mydriasis
                  Antihistimine - Mydriasis
                  Cyclosporine - side effects
                  Elmiron - side effects
                  Interstim
                  Botox - can't pee but need to all the time
                  Mild Hyrdo
                  My 11 year old german shepherd taken away because I am no longer able to care for him. Feeling yet another failure.

                  I am trying:
                  Omega 3
                  IC and anti oxalate diet but staying on Cystoprotek
                  Acacia Fiber (helping some)
                  Hugs and Kisses from my German Shepherd

                  Comment


                  • #10
                    Before I tried the Restasis the doctor tried putting plugs in the tear ducts. Unfortunately, it didn't help me but it is just another thought.

                    Plugs are a minor procedure that was done in the office.

                    Comment


                    • #11
                      I used to have terribly dry eyes and starting taking fish oil that someone recommended to me. It has helped tremendously to take one 1000 mg pill 2x a day. I don't think it is just a coincidence or in my head, because if I run out and go without for a week, my eyes start drying up again. I also use the preservative free Refresh Plus drops.

                      Comment


                      • #12
                        Hello! I'm sorry to hear about what you are going through. I'm not sure I can offer anything valuable, yet wanted to share that I use preservative free Systane Ultra drops as needed. A few years ago I had a reaction with my eyes and it took some time to figure out that I was having a reaction to a lot of the preservatives and inactive ingredients in eye drops (both over the counter and prescription). My eye doctor tried lots of things, including drops that are much more lubricating than the Systane Ultra, but I reacted to all of them. Upon learning that the Systane Ultra was working without reaction, I decided to try a big bottle of them and then had a big reaction all over again. That's how we were able to narrow it down to the preservatives in drops. I now use the preservative free Systane Ultra (individual vials) - they are more expensive but definitely worth it. I also take fish oil and krill oil supplements that I think help too.

                        Hope you are feeling better!
                        Jennifer
                        I speak of my personal experience only to provide support to others who have IC. I am not offering professional advice in any way. All patients are different and may respond differently to various remedies and medical treatments. These posts are based on my personal experience and are not meant to be viewed as medical advice nor do they replace the proper evaluation and treatment by a medical professional or healthcare provider. Please seek out treatment and medical advice from your doctor and medical team.

                        Comment


                        • #13
                          Re: Please PLEASE help if you know about dry eye

                          Hello I know this is a very old thread but I use a eye drop called HiLo in the gel form. I have had dry eye since Jan 2017 and a bad eye infection that I was given steroid drops for. Then 2 months later the bladder issues started?? I will always wonder if they caused the bladder issues?? My dry eye continued and i tried systane drops but they did not help my eyes were continually weeping. So this Jan I broke down and spent the big bucks on the hilo drops and no more weeping they are amazing. I recommend them for anyone with dry eyes! Hope this helps.
                          Jane

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