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  • #16
    When my disc starts "acting up" the pain feels like it's burning. I also have tingling in my shoulder and neck and sometimes down into my hand. I'm not going to have surgery on it because right now it can be handled by steroid injections into the disc. It brings down the swelling and the pain is mostly gone. I'd get it checked out if I were you.
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

    Comment


    • #17
      Thanks and I am, they are going to work me in today.

      Comment


      • #18
        Sometimes I get this cooling sensation too, it's not just burning. I didn't have to go to the dr today, my pain is improving, but I call and tell them that they don't need to squeeze me in, and said I still needed a follow up appt from being in the ER, let's just say, I didn't get it. I'm really trying hard not to be mad here, but oh that's a tough one. They keep it up, I'm going to bipolar myself on them. I'm so disgusted with my medical care. I still can't believe the ER sent me home in that shape. They can just kiss my butt.
        Last edited by ICNDonna; 01-18-2011, 05:59 AM.

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        • #19
          Another nurse took care of this but I think I'd of rolled over and died before I would have called back. Sorry, I got so angry on here about it. I am very frustry right now, with hot flashes, must be my hormones out of wack. ))

          Comment


          • #20
            Hi Donna...what did you do about your herniated disc?

            Originally posted by ICNDonna View Post
            A herniated disc can cause tingling; mine caused mostly pain across my shoulders and down my arms --- it was a disc in my neck. You really need to see your doctor.

            Donna
            Hi Donna,

            I have IC and Fibro and was just diagnosed with a herniated disc in my cervical spine C5-6 and ruptured at C3-4 (diagnosed through an MRI). The dr. did a steroid injection and wants me to come back in 2 weeks to talk about whether it helped with the pain. She then wants me to go to the outpatient surgery center so she can do more injections into my neck and side of head for the horrible migraine headaches. I have pain in my neck, head, arms, right hand, legs, tailbone, knees, jaw sometimes, oh and I am sure I forgetting some. I am going in for a second opinion to my regular pain dr. on 2/11 as to how to handle the situation. How did you handle yours? Is it gone? Did you get injections? Did you have surgery? My mother in law right away said oh good, maybe you don't have fibro. I am not convinced whatsoever. I think this is just another ailment that is making me hurt so badly in addition to everything else.
            As I think, so I shall be....

            I have had IC for 4.5 years now. I also have fibro, sjogren's syndrome, and vulvadynia. I live in immense pain. I often daydream of life before this demon . When I feel good, I embrace it with all of my heart! I pray that someday I will feel 100% again, we all deserve it!

            Medications:

            Vicodin (as needed, so daily!)
            Percocet (morning & night)
            Klonopin (.5 mg at night)
            Zanaflex (2 mg each night)
            Thyroid med for low thyroid (hypo)
            leuko-stim
            Vitamin D (4000)

            Diagnosis:
            IC, CFS, Fibro (it is really bad it has taken so much from me and changed my life), Anxiety, Depression from it all, & Hypothyroid.

            Comment


            • #21
              I didn't get anywhere with this. I've been to a health clinic, ER, & follow up with my PCP over this. I can't even get the pain treated, and at times is so extreme, I can't take it. My PCP is worried about my GI issues and afraid I may react to a strong medication. He left me in worse shape not doing anything. Don't doctors have certain duties they have to fullfill? Hoping I don't sound too crazy here, but when they know you od on meds to stop the pain, and you've went to them asking them for help so you don't do that, shouldn't it be their responsibility to do what they can to help you?

              Comment


              • #22
                Did they say that your disc actually "ruptured"? Because if it is that is surgical. Herniated is one thing but ruptured needs emergent care. Have you seen an Ortho? Where do you live? In the US? Because the treatment you are getting and the advice they are giving you if you truly have a ruptured disc is wrong. For my herniated disc I go to an out patient surgical center 3-4 times a year. They put me under with anesthesia and inject a powerful steroid directly into the disc. Then, while I'm out (although I have this done while I'm awake too) they give me injections into the muscles surrounding the disc. It's not a cure, but it works for 3-4 months to get me out of excruciating pain. You need to go back and revisit your diagnosis of a "ruptured" disc. If it truly is ruptured then you should be at an ortho's office preparing for surgery. I don't really know of anything else I can tell you if you are determined to stay with a doctor who won't help you. That's your choice, but there are other doctors who will work with you to get you out of pain. I guess the choice is yours. I'm just not sure what advice I can give other than what you've already been given. Good luck to you and I'm wishing your pain to be better.
                Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                Lexapro-20 mg
                Aciphex
                Ambien-as needed
                Percocet-7.5 up to 3 per day as needed
                Valium-10 mg x2 per day
                Phenergan-1 at night
                Prelief w/everything
                Now recovering from acute pancreatitis

                Currents treatments that help somewhat:
                Heating pad
                Hot baths
                Ice
                Being VERY still while lying down with legs elevated

                Comment


                • #23
                  In January 2010 I had surgery to remove my herniated disc and fuse two bones in my neck. It wasn't an easy surgery, but I would do it again in a second.

                  Donna
                  Stay safe


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                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

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                  • #24
                    Originally posted by ICNDonna View Post
                    In January 2010 I had surgery to remove my herniated disc and fuse two bones in my neck. It wasn't an easy surgery, but I would do it again in a second.

                    Donna
                    Yes, Donna, when my daughter was a baby I had fusion done in my lower back due to herniation because I had such a GIANT baby. She blew out my back. I would do it again too. It WAS really a hard recovery with 2 babies under 2. But I had lots of help and I haven't (knock on wood) had that problem since then (except for my neck, which is manageable)).
                    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                    Lexapro-20 mg
                    Aciphex
                    Ambien-as needed
                    Percocet-7.5 up to 3 per day as needed
                    Valium-10 mg x2 per day
                    Phenergan-1 at night
                    Prelief w/everything
                    Now recovering from acute pancreatitis

                    Currents treatments that help somewhat:
                    Heating pad
                    Hot baths
                    Ice
                    Being VERY still while lying down with legs elevated

                    Comment


                    • #25
                      I have been with the same doctor 11 years, love this guy, he's the sweetest thing ever. I can't take one thing he's overlooking and judge his entire time doctoring me as bad. He thought it was in my best interest to not put me on meds because of my stomach problems but he's wrong. I don't plan to drop this, not by a long shot. They aren't going to leave me OD'n on medication to control my pain. Sad thing is where I have mixed connective tissue disease, I am so mentally exhausted from it, I don't even have the will to get up out of bed and try. I'm so tired of getting up just to feel bad. I'm not suicidal but my body has had all it can take with sickness. I'm so tired, I can't stand it. I have a past severe depressive disorder and I do not need to be OD'n in the shape my mind is already in. As lifeless as I feel, even though I feel like I'm ready for death, I'm not dumb enough to think it's okay and I don't want to be doing this. Why I was wondering if they have a legal obligation to treat or diagnosis this problem. Do I have the right to demand treatment and get it?

                      No I don't know if I have a herniated disc or if it's a muscle, or what is wrong. This has been going on about 2 yrs I guess. I've been through physical therapy, to a chriopracter, and I've had plain x-rays done, which obviously don't show back problems. I have a past history where I OD'd on meds to stop the pain because the headaches were so severe. Not once has he offered to do an MRI to find out what is wrong. I've been in the ER over this, they would not do a thing for me either. Actually the time before this last visit, same doctor smarted me off and said they didn't treat chronic pain, I hadn't been back since because of him.

                      There's a sore spot in my spine, it's where all the pain comes from. It stays tender there always, you can press on it, and it's sore, but it doesn't cause extreme pain or anything by pressing on it. It goes up into my neck, my jaws, my head, into my shoulder, tuesday, it was the exact pain of having whiplash, except I could move my neck. It burns, gets numb, tingles, I have cold sensations like if you used Icy Hot, horrible spasms/tightness. I figure if it was a muscle, the tenderness would be in the area of a muscle and not in my spine. Now my PT said I had something out of place, can't remember if it was a vertebrae or what, but he said he could continue to put it back in place, but I would have to learn to help myself, with exercising of course, which I am too physically exhausted to do. He determined this by feeling down my spine. But he said he thought my pain was muscular still yet, however the issue is no doubt in my spine.
                      Last edited by bladderpain451; 01-30-2011, 05:00 AM.

                      Comment


                      • #26
                        If you don't feel well enough or able to find another doctor to treat whatever is causing this pain by getting the appropriate testing and diagnosis, then this is the time that you need to find someone in your eyeball to eyeball life to help you. If you don't do anything different then nothing different is going to happen. No one here can diagnose you, even though speaking for myself, I would like to. You need to take care of yourself, but if you can't do it alone then you have to find someone to help you. You may think you have no one to help you, but you probably have neighbors, possibly relatives, I don't know if your married and churches have outreach programs (even if you're not a member) that could possibly help you. It all depends on whether you decide to reach out. I wish you only the best and hope that you can find a way to help yourself and that means doing whatever it takes, including getting someone else to help you find the appropriate care.
                        Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                        Lexapro-20 mg
                        Aciphex
                        Ambien-as needed
                        Percocet-7.5 up to 3 per day as needed
                        Valium-10 mg x2 per day
                        Phenergan-1 at night
                        Prelief w/everything
                        Now recovering from acute pancreatitis

                        Currents treatments that help somewhat:
                        Heating pad
                        Hot baths
                        Ice
                        Being VERY still while lying down with legs elevated

                        Comment


                        • #27
                          I don't have to do anything, I can lay in bed all day, my daughter and her dad will pick up the slack when I can't get things done around here, I've been in bed two weeks straight, stopped eating until recently, starting to pull myself back up. It's really rough when you have no energy whatsover to function. And the pain is easy next to dealing with that. The disease I have was mistaken for fibromyalgia, if I had started treatment early, I might not be in the shape I am in now. But who's to know. The fibromyalgia is now being questioned but I do have neuropathic pain. I'm seeing a rhematologist in April, hopefully that will help. And tuesday I have an appt with my gastroenterologist and I am going to go tell all. I'm going to have her call my PCP and figure out what to do. I can't go without medication and not have a diagnosis to fix this. I know she won't leave me this way. I'll get it taken care of one way or the other. But thank you. Kind words I never get around here. I'm told to shut up when I'm crying or go in the other room, or quit my faking, my daughter told me I was a lazy piece of crap with a worthless life. It really takes a toll on children grow up with a sick parent. They don't get how you can be sick 24 hours a day. Sometimes, they just pick, and I can laugh it off usually. But it's not always funny. The only moral support I have with this is through my doctor, he's never given me hell for complaining too much, he never made me feel like it was just all in my head, like some doctors have. I have to have a doctor I feel like I can rely on, and I know he's not helping me with this back problem, but I don't think it's meant out of bad reasons, I think he's concerned about the medications because I was vomitting blood.

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                          • #28
                            And there is no one that is going to help me, my family called and asked me to give them a ride somewhere tomorrow, knowing it could trigger my pain, and my nephew could do this, but I'm expected to, and I always do what they ask no matter how bad I am, because I want to be there for my family if they need me. Neighbors, no. Friends, there's not anyone I am close enough to that I'd even attempt asking to do that for me. I stay with my daughter's dad. When my gastroenterologist wanted me in the ER about a month ago, he said no way, he did not want to have to deal with coming back and picking me up. When I went the week before last, I called 911 and he wasn't at all happy about having to come and get me. They help me around here, but they give me hell for being sick, especially when I cave in and can't take it. I have no support. My brother would be the only one that would be there for me, but he lives out of state, and I am not moving.

                            Comment


                            • #29
                              My doctor told me if I had a herniated disc, I'd have pain running down my arms or legs. Is that true? I have tingling running into my arms and legs but no pain other than the usual muscle pain I get. I get numb in my back and neck, not in my arms/legs. The last hospital I went to did a cervical CT but I am reading online that won't show pinched nerves without dye. They should know this before doing the test, so why do they bother? I know the pain is in my back in two spots actually in my thoracic area, one is flaring up and I've had past pain there, but my neck has been constantly popping over the past few days. CT & x-ray showed some degeneration, nothing to worry about, they couldn't do an MRI. My neck pain is horrific sometimes. If I get an MRI, I can only have one area scanned. Since the tender spots are in my thoracic area, I probably should go with that shouldn't I? I saw my doctor again and he said he'd do an MRI and send me to a pain specialist if the chriopracter adjustments don't help calm it down. All he did was crack my spine and neck, it did not help at all, it made the pain worse.

                              Comment


                              • #30
                                What mixed connective tissue disease do you have? Is that what was misdiagnosed as fibromyalgia? I ask because I have fibro as well as a connective tissue disorder that is thought might be Ehlers-Danlos. Is that what you have? Just wondering.....Connective tissue disorders don't generally cause pain, but they can and do cause joint damage, so it is very important to keep the muscles surrounding the joints as strong as you can through exercise, which I understand can be really hard when you are in pain, but so important, as it is also for fibro. I see a pain management specialist, and she really helps me, which in turn helps me to function day to day (which includes exercise).
                                I sympathize with you-I have had 2 orthopedic surgeries in less than 1 year, and I am getting ready to have my 3rd (knee) next month. Everyone here is right, you need to advocate for yourself to get the health care you deserve.

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