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  • just need to tell someone


    my fibro pain is bad today. i feel like crying but can't. i have to go to work and face my 5th graders. it just hurts so much.
    IC-diagnosed August 1998 with cystoscopy and hydro
    IBS-diagnosed in 1998 probably had for majority of my life
    Fibro-Diagnosed in 2010
    Other conditions: Depression, High Cholesterol (irony)

    Primary symptoms: PAIN, bloating, frequency, urgency, fatigue

    Current Meds: Elavil 10mg at bedtime, Toviaz 4mg at bedtime, Lyrica 3x a day

    Failed meds: Vesicare, Detrol LA, Celexa, Vioxx, Celebrex, Ditropan XL, Elmiron
    "In the middle of difficulty lies opportunity."

  • #2
    I'm so sorry. I hope your tomorrow is better.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      So sorry, I know what that feels like. The pain, not the 5th graders. Are you taking anything to help the fibro? I resisted cymbalta for a long time because of the horror stories I had read on here. I was so wrong to do that. Cymbalta gave me my life back. I decided I won't ever let anyone else's experience keep me from trying something. I do pay attention to what other's say but everyone is different.

      If you aren't on a medication for the fibro my suggestion would be to talk to your Dr. In the meantime, I hope your pain lets up for you.
      Link to the patient information, everything from What is IC? to Disability
      http://www.ic-network.com/patientlinks.html

      American Urological Association Clinical Guideline
      Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
      http://www.auanet.org/content/guidel...ent_ic-bps.pdf

      Comment


      • #4
        I agree

        Originally posted by sailawaygrl View Post
        So sorry, I know what that feels like. The pain, not the 5th graders. Are you taking anything to help the fibro? I resisted cymbalta for a long time because of the horror stories I had read on here. I was so wrong to do that. Cymbalta gave me my life back. I decided I won't ever let anyone else's experience keep me from trying something. I do pay attention to what other's say but everyone is different.

        If you aren't on a medication for the fibro my suggestion would be to talk to your Dr. In the meantime, I hope your pain lets up for you.
        I totally agree with you! If you'll look at the list of side effects for any medication, you will see that some are experienced by only 1% of those taking it --- somebody has to be that 1%, but that absolutely doesn't mean you will be.

        Hugs,
        Donn
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          thank you

          Thank you for your thoughts. I left work early after a disasterous day and took a well needed nap. Now it's just me, my heating pads, and old episodes of law and order. Maybe tomorrow will be better.
          IC-diagnosed August 1998 with cystoscopy and hydro
          IBS-diagnosed in 1998 probably had for majority of my life
          Fibro-Diagnosed in 2010
          Other conditions: Depression, High Cholesterol (irony)

          Primary symptoms: PAIN, bloating, frequency, urgency, fatigue

          Current Meds: Elavil 10mg at bedtime, Toviaz 4mg at bedtime, Lyrica 3x a day

          Failed meds: Vesicare, Detrol LA, Celexa, Vioxx, Celebrex, Ditropan XL, Elmiron
          "In the middle of difficulty lies opportunity."

          Comment


          • #6
            Grinch, I know how you feel. My fibro really gets to me sometimes too. I hope tomorrow brings you some relief!

            Comment


            • #7
              Grinch I'm really sorry. I totally remember those days from when I was teaching Glad you got home early and hope tomorrow is better (((hugs))).

              Comment

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