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Is it Common?

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  • Is it Common?

    Is Fibromyalgia common in people with IC and IBS? I have both of those and wondering about fibro as my body aches and burns so badly in different spots all over the body. The soreness feels like I lifted weights and the burning is unbarable and mostly at night. I have a pain deep in my butt cheek but that is on one side only. Had every test and nothing shows. I think it could be this. Lots of pelvic pain too. I'm on Neurontin for other things but many times the pain is still there. What do you all take for it?

  • #2
    Six years ago I was a healthy 27 yo.

    Now I am a 33 yo dealing with (in their order of appearence):


    The lifting weights feeling you describe?? That is the aching I deal with, I don't get a burning sensation but I do deal with numbness and tingling.

    I don't know if that is helpful, but for me they all go together (unfortunetly!)


    • #3
      Some ICers do develop other problems. So far, after 36 years with IC, I don't have them.

      Stay safe

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      • #4
        I definitely understand the body aches and the burning sensations that you spoke of. I was diagnosed with IC in 2003, and then Pelvic Floor Disorder in 2005, and then in 2006 I was diagnosed with Fibromyalgia. I feel like I have been hit by a bus, or like I have been in a car accident. All my muscles hurt, and I am very tender to the touch. Sometimes just putting clothes on hurts.
        Started Vaginal Valium Suppositories April 2014
        Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
        Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
        Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
        Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
        Interstim repair December 2008,Removal of the Interstim August 2011,
        6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
        Diagnosed with Raynaud's Syndrome November 2013
        Ambien 5mg for sleep.
        Elivil 50 mg at bed
        Lisinopril 20mg in AM
        Effexor 225 mg
        Oxycodone 10 mgs 2 x a day for pain
        Baclofen 20mg 3x a day
        Phenazopyridine 200 mg as needed
        Omeprazole 20 mg at night
        Lyrica 450 mg daily
        Requip .50 mg at night
        Ketorolac 10 mg as needed for migraines


        • #5
          Originally posted by Kirs10 View Post
          Sometimes just putting clothes on hurts.

          And heaven help my poor DH on one of those days and he hugs me too hard!!!!