so much pain

[Grinch]

My fibro is terrible tonight. I can barely type this. I cant raise arms up to my shoulders. I feel like quitting today. I feel like giving into this disease and to stop trying to get better. Everything causes pain or fatigue. I am tired of being tired. When will things get better? Just needed to vent and voice my thoughts. Don't want to cry so I am going to stop.

[earthlady]

I'm so sorry you're having a terrible night. Can you get a call in to your doctor? I used to cry all night sometimes when my bladder was burning and didn't know what to do about it. I hope you see some improvement soon. Sending you internet hugs.

[momw/ic]

Me too! I'm so sorry you are going through this too. My issue is that I had been on one pain med for my bladder for 4 years and I never had fibro pain but I had to change to a different medication for my IC and it is NOT keeping my fibro at bay. It's horrible. I'm so lucky that I'm not used to this pain but at the same time it is really hard to just suddenly have it full force. My fingers have hurt so bad today and I have never had that.

My heart goes out to you! Gentle hugs...

[Grinch]

Thank you all for the kind words. on some level I know I will get through this but right now it is just too much. i am worried about the future. I am 29 years old. I have been dealing with this officially since I was 16. God willing i still have a long life ahead of me. when do you say enough is enough? when do you say a 'traditional/regular' way of life (working even a part time job, relationships, family etc..) is too much? When do you start considering disability? Between the IC, the fibro, the IBS, the CFS, and the anxiety and depression I am overwhelmed mentally, physically, and spiritually. I have an appointment and intend to talk to my doctor about all of this.

[ICNDonna]

Donna

[arkitekton]

Ginch--any news?

Did you hear anything useful at your appointment?

I'm very, very sympathetic to your fears and concerns. I was lucky in some sense, that the worst of IC, and what is probably fibromyalgia, until I was around age 50. You mentioned disability. I did go on it at the point where work--which I loved, I was an architect and builder--only made things worse. I'd certainly consider it, if I were you. You can always go off it. I suppose one reason not to go on disability is if there's something about it that might cause you problems in the future. I don't know what those would be, just thought I'd mention it. Going on it DID take some of the pressure off me, and I know that helped.

In that sense I did finally say the "too much" you mentioned. Some good things have come out of that. I now teach guitar, but since my body won't let me promise when I'll be able to teach I don't charge anything, but I also get to pick my students. Don't know if that's the kind of thing you're interested in, or can even afford to do, but I've found that despite many doors closing, of the ones that have opened some are very engaging, interesting, meaningful, and worthwhile.

My very best wishes to you. I truly hope things work out the way you want them to.

Hugs,
ark

Thank you all for the kind words. on some level I know I will get through this but right now it is just too much. i am worried about the future. I am 29 years old. I have been dealing with this officially since I was 16. God willing i still have a long life ahead of me. when do you say enough is enough? when do you say a 'traditional/regular' way of life (working even a part time job, relationships, family etc..) is too much? When do you start considering disability? Between the IC, the fibro, the IBS, the CFS, and the anxiety and depression I am overwhelmed mentally, physically, and spiritually. I have an appointment and intend to talk to my doctor about all of this.

[Grinch]

update

Thanks for all the support. I spoke with my doctor. she encouraged me to continue to work part-time for my mental well being. i started some water therapy but I loss my job and insurance. I am waiting on the state to decide if i can receive aid. I have been turned down before, so i am not optomistic. i am working part-time, only 11 hours a week. Somedays it feels like it's killing me. plus is not enuff to cover my expenses. draing my savings and running up my credit card bill. in some ways i am happier because i am working less and feel a little better. things are still up in the air. the future is still uncertain. dont know what i am going to do? dont even know where to start. wish i could have more positive news.

[dmking1964]

I have had both for ten hellish years I've been going to a pain clinic, been on every narcotic known to man, my system gets so used ti it.BUT THERE IS SOMETHING NEW its called savella NO SIDE affects i am i pm I started at 50mg but I'm up to 100mg each time .Another thing I've been doing for 2 months now is trigger point injections-u don't even feel them, fibro is a knot the needle releases thst knot they inject lidocaine I get abot 20 or so shots every 2 weeks I can turn my neck around now, check it out all u have to loose is the pain!! and if u or anybody else have questions on proc, or meds I'll be happy to try to help with what I can, ps: dr's don't know everything I've even taught some dr's a thing or to! oh, and deep tissue massage helps alot to. I'll ttyl Sincerely, Michele oh dmking1964

[dmking1964]

amen to those steroids I told my dr I didn't care what I had to ender sideeffects I mean, he said he has no problem putting people on prednsone, so when I had an illness 10mg made me feel on top of the world I thought this is the answer! but I had to go back down to 5mg and what happened I got so used to it, like everything else I've taken, it quite working and I went from235 to 268 ENOUGH! I weined myselk off of them-as yall know having both ic and fibro its hard to exersize, I bought a yoga dvd on this website wish me luck

[dmking1964]

Grinch, I can't tell u how many times I've cried, begged, to the Lord, u know it says he won't test you past what u can handle?Enough I've said so I've just completely given it to him--- I've missed so many get together's my neice's graduation and party I haven't dated in 10yrs.I feel your pain sometimes I;ve even thought being dead would be no more hurt, but what stopped me there was my girl crying and saying that I'm the one she talks to and how sad she would be without me and started crying, she's an adult so I didn't put any burden on kids.We just have to stick together and BELIEVE and have the FAITH that we will overcome this!! LUV YA!