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    The all over body aching has gotten worse last few months to where the vicoden doesn't even help anymore. Only thing that does is a scalding bath and once that is over the pain is right back. I am wondering if it is arthritis instead? Both kind run in my family. Mornings are the worse and trying to turn the knob on my bedroom door to get out is sometimes almost impossible. I'm dropping things too. Would one of those bone density scan test tell which it is?

  • #2
    You really need to talk to your doctor about your pain.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I have and she keeps saying fibro. She hasn't done any tests to say it is fibro. That is why I was wondering if that bone scanning test would tell.

      Comment


      • #4
        A bone scan will not diagnose fibro. Fibro is diagnosed by evaluating discomfort when specific spots on the body are pressed. There isn't any real test that will confirm the diagnosis.

        Warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          I used to be told I have fibromyalgia, and I think they've pretty well confirmed that I do. But, I have an autoimmune complex which consists of 5 different disorders. I'm convinced they're all related. I have a blood clotting disorder, APS, and Reynauds. There was always a question as to what exactly was causing all the body pain and muscle aches. Sometimes it feels like someone's trying to literally shred the muscles right off my bones. I've been persisting by getting a complete workup by a rheumatology team that finally put a name to it. Turns out I'd had a scan (head to toe!) a few years back that the neurologists said was negative for reflex sympathetic dystrophy, which they suspected. They said a lot of areas lit up like a Christmas tree but it wasn't RSD. When the rheumatology team saw it and compared my records from neurology, hematology, urology, etc etc they said I have "Inflammatory arthritis, and connective tissue disease."
          So... now I have at least 5 INCURABLE DISEASES!!!! YIKES!!!! Scared? Yep.
          Trusting that the doctors can help and that God will get me through. Yep. Finally I'm on a treatment regimen and EVERYthing is being addressed. The new meds will take approx 6 weeks to start working, and the side effects are NOT fun, but will likely subside.
          I'm just SO tired of all the muscle pain. Please, please, follow that next lead. talk to the next doctor, whatever you have to do. Your story got my attentio because I've been having a hard time losing my grip and dropping things. Please let me know how things are going for you.
          (formerly DonnaRenee1)


          Diagnoses: IC, fibromyalgia, inflammatory arthritis, connective tissue disease, reynaud's, APS, (the lupus anticoagulant, also known as "sticky blood syndrome")
          Meds: low molecular weight heparins, synthroid, methadone for pain, tizanidine, cymbalta, pyridium plus, urelle, phenergan for nausea, ambien, lisinopril, norvasc, plaqenuil for arthritis, and over the counter Prelief
          Treatments: DMSO, occasional hydrodistentions, hot baths, strategically placed heating pads and ice packs, TENS unit, and everything from pity parties to prayer.
          I have lots of support from my family. My husband and my parents are amazing! I have a wonderful daughter who also has IC, and she has given me 2 precious granddaughters. They are my heart and soul! Thank you God for my family!

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