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  • Joint supplements for fibro

    It's been getting colder, which is flaring my IC and Fibro. Mostly Fibro though. I am on treatments, but I've still been feeling more stiffness and pain lately.

    Has anyone tried to take any over the counter joint supplements for Fibro? I know there a lot of different kinds, and I don't want to waste a ton of money trying them ALL!

    Help! Let me know which ones you have tried, how they worked, if you would recommend them.

  • #2
    Re: Joint supplements for fibro

    Hi there,

    I don't have Fibro but I do know of some things which are meant to be very helpful for it. There is a medically proven device called AlphaStim which has lots of evidence and testimonials to back it up. Here is a link -

    http://www.alpha-stim.com/abstracts/lichtbroun/

    Also, a supplement called Serrapeptase is meant to be very effective.

    Hope this helps!

    Jem x :-)

    P.s - I use AlphaStim for anxiety and depression and am finding it very good so far!

    Comment


    • #3
      Re: Joint supplements for fibro

      Originally posted by Jem View Post
      Hi there,

      I don't have Fibro but I do know of some things which are meant to be very helpful for it. There is a medically proven device called AlphaStim which has lots of evidence and testimonials to back it up. Here is a link -

      http://www.alpha-stim.com/abstracts/lichtbroun/

      Also, a supplement called Serrapeptase is meant to be very effective.

      Hope this helps!

      Jem x :-)

      P.s - I use AlphaStim for anxiety and depression and am finding it very good so far!
      Please be very cautious about any product or device that depends only on testimonials to back it up. There are actually people out there who write testimonials for pay --- about things they have never seen or used.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Re: Joint supplements for fibro

        This device does not rely soley on testimonials though. Their website is full of scientific research to back it up and many doctors recommend it too. It is even used by the united states army.
        If you look up the website or google it, you can see for yourself. I am always extremely careful when making decisions about purchases and am aware that not all testimonials are true. My own experience, and that of a friend who uses the device, is that it does work. Though as with everything, it doesn't work for EVERYONE. We all have different experiences.
        Not everything out there is a scam! There ARE genuine companies who want to help people. There is way more evidence to back the AlphaStim up than there is for the PainShield (which is advertised on this very website!)
        A friend of mine who works for Medtronic said that she didn't feel there was enough proper evidence for the PainShield, but even so, I decided to try it and it works really well for me.
        We are all here to share our experiences of what helps us afterall.....

        Jem x

        Comment


        • #5
          Re: Joint supplements for fibro

          Onemorebite,

          I have fibro, but I don't take OTC supplements for it. I have found that a professional therapeutic massage really helps. I also use a shiatsu massager at home when I wake up really tight and sore in my neck. It's also very important to get enough sleep if you can because you become even more sensitive to pain when you're not rested. A sleep aid helps me get several continuous hrs of sleep. That really makes a difference!

          Jem, I'm really glad that you are getting some pain relief! I appreciate you sharing your experience with Pain Shield and AlphaStim!
          Current diseases: IC, sjogren's syndrome, RA, hashimoto's thyroiditis, autoimmune diabetes, peripheral neuropathy (PN), TMJ, sciatica, sinusitis, endometriosis, adenomyosis, PFD, fibromyalgia

          Current medications/supplements/treatments for IC: Marshmallow root, Prelief, probiotics, Ativan, Vicodin, rest, ice, heating pad, IC diet, high dose vitamin D, alkaline water.

          Meds/supplements I tried and failed: Elmiron (caused immediate bladder pain), Cystoprotek (aslo caused bladder pain), Desert Harvest aloe vera capsule (aggravated another medical condition), Elavil (caused palpitations/dry mouth), alkaline mineral powder (caused bladder pain). Considered Interstim neurostimulation, but it only helps frequency/urgency.

          Try to stay positive and find joy in every day!

          Comment


          • #6
            Re: Joint supplements for fibro

            You're welcome Vicpic!
            Have you ever tried Serrapeptase or AlphaStim? Would you recommend trying them?

            Jem x

            Comment


            • #7
              Re: Joint supplements for fibro

              Jem, I would tell anyone who's looking for a different therapy to not rule out anything. I, personally, am in such a desperate situation that I would try anything to get some relief from my IC and RA pain. Both have been just relentless. I feel that the AlphaStim would be worth a try, but as always, one should consult their doctor for advice and do plenty of research before making a decision. I think the AlphaStim is a good option for me since I do have so many pain conditions. Serrapeptase has been shown to improve many joint conditions and other symptoms.
              Current diseases: IC, sjogren's syndrome, RA, hashimoto's thyroiditis, autoimmune diabetes, peripheral neuropathy (PN), TMJ, sciatica, sinusitis, endometriosis, adenomyosis, PFD, fibromyalgia

              Current medications/supplements/treatments for IC: Marshmallow root, Prelief, probiotics, Ativan, Vicodin, rest, ice, heating pad, IC diet, high dose vitamin D, alkaline water.

              Meds/supplements I tried and failed: Elmiron (caused immediate bladder pain), Cystoprotek (aslo caused bladder pain), Desert Harvest aloe vera capsule (aggravated another medical condition), Elavil (caused palpitations/dry mouth), alkaline mineral powder (caused bladder pain). Considered Interstim neurostimulation, but it only helps frequency/urgency.

              Try to stay positive and find joy in every day!

              Comment


              • #8
                Re: Joint supplements for fibro

                I completely agree with you Vicpic. I am sorry you are going through so much pain. We must all stick together in the I.C community. I really hope the AlphaStim works for you if you are able to try it. Good luck!

                Jem x

                Comment


                • #9
                  Re: Joint supplements for fibro

                  I take Ambien CR every other night for a sleep aid, it really helps a lot. Being so young, 25, my doctor doesn't want me on it every night though. I told my husband I need a massage for xmas so hopefully he delivers haha! I've seen the shiatsu massagers but I guess I hadn't really connected the dots to those and fibro!!! What an AMAZING suggestion!!

                  Jem, you are totally right!! I love this forum for the reason that it's NOT doctors. It's real people who have tried real treatments. And moral support!!! Sometimes you just can't waste money on ANOTHER dr visit to ask about something over the counter!! I wish I could though!! I've read that fish oil supplements can really help with pain so maybe I will try that too!

                  Comment


                  • #10
                    Re: Joint supplements for fibro

                    Yes....the trouble with most doctors is that they know the THEORY but have no personal experience of a) The health issues they are trying to treat or b) what it is like to be on the drugs they give out. Imo, it is the people who take the drugs and try the treatments (i.e - us!) who are the experts and have the most knowledge. We have an insiders perspective while the doctors just have the insert leaflet and the spiels from the drug companies. Also, we have often done a ton of research on our conditions, and read loads of studies and theories which the doctors don't have the time or inclination to do!! I often wish doctors were made to take the drugs themselves before judging us. But I guess that is a different issue for a different day.

                    Jem x

                    Comment


                    • #11
                      Re: Joint supplements for fibro

                      Originally posted by onemorebite View Post
                      I take Ambien CR every other night for a sleep aid, it really helps a lot. Being so young, 25, my doctor doesn't want me on it every night though. I told my husband I need a massage for xmas so hopefully he delivers haha! I've seen the shiatsu massagers but I guess I hadn't really connected the dots to those and fibro!!! What an AMAZING suggestion!!

                      Jem, you are totally right!! I love this forum for the reason that it's NOT doctors. It's real people who have tried real treatments. And moral support!!! Sometimes you just can't waste money on ANOTHER dr visit to ask about something over the counter!! I wish I could though!! I've read that fish oil supplements can really help with pain so maybe I will try that too!
                      Your doctor is wise in not wanting you to take ambien every night. I took it for many months and it ended up causing me to feel sort of "numb" (out of it). It took weeks to wean away from it --- I finally ended up breaking them into four pieces and taking only one of the pieces before I could stop entirely.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment

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