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  • #1

    Aggressively treating IBS can help IC study shows.

    I went to my naturopath with my results from a SIBO (small intestinal bacteria overgrowth) test that I purchased myself (from life extension). I always felt I had mild IBS but that no doctor thought of ordering this test. I even had a colonoscopy after having a bout of bloody diarrhea for which I went to the ER and the GI doc said I looked good. I also had purchased another test that looked for parasites and markers for intestinal disease such as Crohn's and some of those markers were positive but since the GI doctor didn't see anything on colonoscopy he sort of brushed it off and said well go to the ND to treat leaky gut, as he didn't seem to want to deal with it. I have another inflammatory disease, sponylitis, and my ND seeing the SIBO positive test said that could be contributing to some of my general inflammation. I thought she was going to take the herbal approach (there are studies showing herbs are effective) but she had free samples, a total 2 week course of rifaxamin, an antibiotic specifically prescribed for IBS or SIBO that just acts in the intestinal tract and so she gave it to me saying it would act more quickly than herbs. For the heck of it when I got home I googled IC and rifaxamin and I was very surprised that this came up. How many doctors even know about this? I'm taking the antibiotic and I will see what happens. I just don't think it is the cause of my IC which started way before I was aware of any IBS, but who knows.
    https://www.ncbi.nlm.nih.gov/pubmed/17932763
    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.
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  • #2
    I really think IC is some type of weird infection. In the chronic infection section of this website there are some recent posts by a someone who is being treated for chronic uti. He told me about a facebook group called embedded UTI. They spoke about a doctor in the UK named Malone, and a doctor in the USA named William Bundrick who treat IC as an embedded infection. They give long-term anti-biotics at a high dose for 6 months or longer. Supposedly they don't have problems with getting C-diff because the doctors are familiar with anti-biotics and only certain types of anti-biotics give C-diff. They also recommend people take pro-biotics while taking the long term high-dose anti-biotics. I have been taking hi-prex for about 1 month now and it is helping alot. Hiprex is a urinary anti-septic.

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    • #3
      Some people have a problem with long term antibiotics --- but those nasty bacteria can build a resistance to antibiotics and they can move in and cause serious problems. I have a friend who tried the antibiotic "cure" some years ago and she still has a problem with antibiotics --- and she has to avoid sugar. I encourage a lot of research, plus second opinions, before moving in this direction.

      Sending well wishes,
      Donna
      Stay safe


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      • #4
        Hi everyone
        Have just started using zaxine antibiotic treatment for IBS. Getting some soreness in my bladder, hoping this will go away. I just purchased a few days of this medication as it is very expensive but at the same time I have been doing a lot to help my IBS and it also affects my bladder. A major pain, Dietary changes and I have tried the herbal route through the naturopath. I have a sensitivity to antibiotics and was wondering when I would get itchy-happened today. I was tested and this is a common reaction for me with antibiotics -I then have to take an antihistamine.
        I will see where I am at in a day or not and decide if I will continue or not. Happy for this forum and the support it provides.

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