Announcement

Collapse
No announcement yet.

Ibs-d

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Ibs-d

    Hi,

    I have, in the last several days had an IBS with Diarrhea flare.

    I haven't had an IBS flare in years and thought I had that under control, but it's back with a vengeance.

    I have not called my doctors yet since the usual response from them has historically been, you have IBS, eat potatoes, rice, toast and applesauce and it will go away eventually.

    At one time I had a Clostridia Diff. infection, secondary to one dose of antibiotic, so in the past when I developed diarrhea, I asked my doctor to order tests for a recurrence of the C.Diff(it can recur in the absence of antibiotic use), but those tests have been negative, so docs don't want to order them anymore.

    I've been doing research on foods for IBS flares, but many of them are not appropriate for IC.

    I started probiotics but since I also have GERD, I have to open the capsules and put the powder into applesauce and I am not sure that they little creatures are as effective if taken in food.

    Bottom line, I'm not sure what to do with myself at this point. so if anyone has any input at all, it would be very much appreciated.

    Thank you.
    Laurie

  • #2
    Re: Ibs-d

    I would still call the doctor's office. And if you get the same advice, tell them whether it helped before an ask what else you might try.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: Ibs-d

      I would call the doctor if the flare is not calming down. Maybe insist they run a culture for C-diff just to make sure. I have a friend who is battling it right now and it is awful. They gave her Vancomycin and it is killing her bladder( Vanco is known to cause bladder issues).

      Have you ever gotten a comprehensive stool test done? Regular doctors usually wont order these( functional practitioners and intergrative doctors will). It may give you some insight on what is going on in your gut. IBS is usually a byproduct of something else that is going on in the gut ( infection, overgrowth of bacteria or fungi etc..). I was dx with IBS three years ago. Just this past July things got worse. My GI doc obviously just blamed IBS, but I ordered a comprehensive DNA PCR stool test and it showed I have inflammation and Candida overgrowth as well as that I have to much fat in my stool( meaning I am not digesting fats like I should). I am seeing a functional practitioner to try and help me with all this.

      Oh, also are you taking any probiotics? They can help, especially Florastor..

      I hope you start feeling better soon...

      Comment


      • #4
        Re: Ibs-d

        I've been struggling with IBS for many years. And I find that the low FODMAP diet really helps. Have you tried it before?
        http://www.aboutibs.org/site/treatment/low-fodmap-diet/
        Usually, I find that it just takes time. You'll feel better eventually.

        Hope you feel better soon.

        Comment


        • #5
          Re: Ibs-d

          Bubbe1, I also have IBS-D and have had it for almost 20 years. The thing that helps me the most is a prescription called Colestipol HCL. I was prescribed it after my gall bladder was removed and my diarrhea became unbearable. I don't know if it would be an option for you but you could talk to your doctor about it. I only take one tablet every morning, and the majority of the time I have very little IBS problems anymore. It is a binding agent that binds up the excess bile that can cause diarrhea. You can take several a day, but I started with one and found out that was enough. If you take too much you get the reverse problem of constipation. I only wish I could find something that helps as well for my bladder discomfort! Let me know if you have any questions.
          Take care,
          Kathy
          Diagnosed:
          IBS-D: 1997
          Premature Ovarian Failure: 2008
          Completely Menopausal: 2014 (age 39)
          IC: 2015

          Treatments:
          Colestipol HCL: amazing for IBS-D
          Minivelle: estrogen patch
          Prometrium: oral progesterone to start period
          Tramadol: 1/2-50 mg. as needed for pain
          Xanax: 2.5 mg. as needed for anxiety
          Pelvic Floor Physical Therapy & Massage: Yay!
          5% Lidocaine: for urethral & vaginal pain
          Ice packs: helps soooo much!
          Stopped letting doctors mess around with my bladder! No more invasive procedures for me...only made things worse!

          This is all definitely hormone related...bladder discomfort and pain is very minimal now!

          Comment


          • #6
            Re: Ibs-d

            Originally posted by jen74 View Post
            I would call the doctor if the flare is not calming down. Maybe insist they run a culture for C-diff just to make sure. I have a friend who is battling it right now and it is awful. They gave her Vancomycin and it is killing her bladder( Vanco is known to cause bladder issues).

            Have you ever gotten a comprehensive stool test done? Regular doctors usually wont order these( functional practitioners and intergrative doctors will). It may give you some insight on what is going on in your gut. IBS is usually a byproduct of something else that is going on in the gut ( infection, overgrowth of bacteria or fungi etc..). I was dx with IBS three years ago. Just this past July things got worse. My GI doc obviously just blamed IBS, but I ordered a comprehensive DNA PCR stool test and it showed I have inflammation and Candida overgrowth as well as that I have to much fat in my stool( meaning I am not digesting fats like I should). I am seeing a functional practitioner to try and help me with all this.

            Oh, also are you taking any probiotics? They can help, especially Florastor..

            I hope you start feeling better soon...


            Thanks so much for the suggestions.
            I'm not familiar with a comprehensive stool test. What does it test for, and what is a functional practitioner?
            Laurie

            Comment


            • #7
              Re: Ibs-d

              Coopt.oops, Thanks so much for your reply.

              I've not heard of the FODMAP diet, but am going to read the link now.

              Be well,

              Laurie

              Comment


              • #8
                Re: Ibs-d

                Thanks, Kapbow. I wish there was something that easy for your bladder, too.

                I'm going to add the Colestipol to my list of questions for my doctor.

                Be well,
                Laurie

                Comment


                • #9
                  Re: Ibs-d

                  A comprehensive stool test is an in depth test on the stool that checks for parasites, fungi, bacterial infections and inflammation that ordinary stool tests do not check for usually. A functional Practitioner is similar to an integrative doctor. They can treat both medically and holistically. They usually treat the body as a whole opposed to a regular doctor or specialist who only treats symptoms or single issues( i.e. a urologist only treats the bladder, a Gastro doctor only treats the digestive system etc..). An integrative doctor will try and look beyond and more In depth at your overall health and try and help you get better.










                  QUOTE=bubbe1;678794]Thanks so much for the suggestions.
                  I'm not familiar with a comprehensive stool test. What does it test for, and what is a functional practitioner?
                  Laurie[/QUOTE]

                  Comment


                  • #10
                    Re: Ibs-d

                    I'm having a flare up of my IBS-D at the moment too. I already take floraster and culterelle. I'm not sure what brought this on but I've added the organic acacia fiber and it seems to be dying down a little. I also have had my gallbladder removed so it's probably worth it to ask my GI dr. about the Colestipol. From what I've read candida overgrowth can be a big factor in IBS. I know I eat way too much sugar for my own good. Five years ago when I had a really bad bout of this after antibiotic use I had many many stool samples analyzed and they found absolutely nothing! It was so very frustrating to not have found anything at all so all the GI Dr. could tell me was that I must have seriously disrupted my gut flora from the antibiotics I was on.

                    Comment


                    • #11
                      Re: Ibs-d

                      Originally posted by earthlady View Post
                      I'm having a flare up of my IBS-D at the moment too. I already take floraster and culterelle. I'm not sure what brought this on but I've added the organic acacia fiber and it seems to be dying down a little. I also have had my gallbladder removed so it's probably worth it to ask my GI dr. about the Colestipol. From what I've read candida overgrowth can be a big factor in IBS. I know I eat way too much sugar for my own good. Five years ago when I had a really bad bout of this after antibiotic use I had many many stool samples analyzed and they found absolutely nothing! It was so very frustrating to not have found anything at all so all the GI Dr. could tell me was that I must have seriously disrupted my gut flora from the antibiotics I was on.

                      Hi Earthlady,
                      Thanks for your reply.
                      I take Culterelle, but haven't tried the Floaster or the Acacia(just ordered that). Will go to whole foods and get the Floraster.
                      I do know that people who have had their Gall Bladders removed often have tummy troubles.
                      Since my daughter's surgery, she really watches what she eats and she takes a probiotic, slippery elm and marshmallow root, which seem to help her.
                      Just fyi, the Colestipol tabs are large, so if you have GERD, as I do, you might have some difficulty taking it. I believe it also comes in a powder.
                      I hope you feel better soon.

                      Laurie

                      Comment


                      • #12
                        Re: Ibs-d

                        bubb1- Probiotics are best taken with food so putting the contents of the capsule in the applesauce is a good idea.

                        Comment


                        • #13
                          Re: Ibs-d

                          You know... this is so interesting. I developed IBSin my 20's... simultaneous to the onset of strict food sensitivities. Chocolate, for example, gives me bowel cramping so severe that I call them "Bend Over and Screamers." For me, the vast majority of my D outbreaks have been due to exposure to specific foods and, most recently, MSG. Twice this year I've had gravy with MSG in them that absolutely destroyed me later that night. But, I also experienced numerous episodes of constipation as well. Seriously, the best days were the days when I had a normal bowel movement in the morning. Then I knew it would be a good day and I'd be comfortable.

                          But then, something interesting happened. Every year I'd do a week or two of the caveman diet (no grains at all)... and always experienced loose bowels to the point that I eventually had to stop. My sis went gluten free and raved about how much better she was feeling.. so I've been giving that a try and it's been remarkable. I'm rarely constipated ... and have had the most consistently normal bathroom visits that I've had in 30 years. I also realized that the more regular carbs that I eat, the more constipated that I get. So.. I'm about 90% gluten free and it's really working well.

                          Granted, my gut clearly doesn't like preservatives and flavor enhancers, but I'm really liking NOT having all the bloating that I used to have. Oh, and if I do eat carbs, there goes the swelly belly for 24 hours. I LOVE Bisquick Gluten Free Biscuit and Pancake Mix. It uses rice flour and works like a charm! It's my new comfort food! '

                          Favorite pasta is Quinoa Pasta.
                          Favorite Cereal - Gluten free, organic rice crisps
                          Favorite Snack - Almond Coconut Kind Bar
                          Favorite Bread - Ezekiel or Rudi's gluten free
                          Favorite Breakfast - hash browns and scrambled eggs

                          Papa Murphy's' Take & Bake Pizza now has a Gluten Free Crust that isn't half bad.


                          Jill
                          Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

                          Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

                          Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






                          Comment


                          • #14
                            Re: Ibs-d

                            Jill, thanks so much for sharing your favorites.
                            I feel like I've had IBS all my life expect for a brief period during my childhood where I was symptom free. My mom suspects that I was born with it, as a newborn, I was already having a lot of gastrointestinal issues, went away when I got older but came back during puberty. I felt like I finally had some control over it this past year and that's when my IC symptoms started. What a bummer....

                            I also found that the gluten free diet helped but it was so hard to maintain I ended up straying from it. Maybe its time I give it another try.

                            Comment


                            • #15
                              Re: Ibs-d

                              Thanks, Earthlady.

                              Comment

                              Working...
                              X