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  • Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder pain.

    Because the pain meds cause severe constipation,the dr.prescribed Liness,doesn't seem to work all the time.Also,Amitiza,worked some,but not consistent,so the Dr.said to add,milk of mag,went for12 hours straight.Some over the counter lax,cause intestinal pain thru-out the night,keeping me up,also increasing bladder pain. Has anyone found a regiment of OTC lax,that work consistently?

    I am my wife's caretaker,Terry,her name is Billie, 1/12/39. She doesn't do computers well,so I am her spokesperson.She wants to stay away from prescription lax,if possible.She is very sensitive to many drugs that might work for some.
    Thank you,
    Terry Rivers.husband of IC patient

  • #2
    Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

    Adequate water intake is very important in helping me avoid constipation. Milk of magnesia is usually a safe alternative for occasional use. My doctor recommended Miralax for me. It used to be a prescription, but isn't any more.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

      My father suffered a full rectal prolapse that was brought on by the pain meds he took for years. They caused constant straining on the toilet because he was so constipated. After his surgery, he was told to use natural bran on his cereal and use metamucil frequently. There are now some fibre supplements that have no taste or texture that can be added to just about any food. Best of all, they are not full of chemicals and are a more natural approach. He was also told to drink lots of water.
      Elmiron 2 x 100mg daily for IC
      Relpax 40mg as needed for migraine
      Vitamin D - 1 tablet per day
      Vitamin B - 1 tablet per day
      Iron/Vitamin C Tab - As needed, usually during my period.

      Previous Medications:
      Topamax - 2 x 50mg daily (migraine)

      Comment


      • #4
        Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

        Originally posted by luvspugs View Post
        My father suffered a full rectal prolapse that was brought on by the pain meds he took for years. They caused constant straining on the toilet because he was so constipated. After his surgery, he was told to use natural bran on his cereal and use metamucil frequently. There are now some fibre supplements that have no taste or texture that can be added to just about any food. Best of all, they are not full of chemicals and are a more natural approach. He was also told to drink lots of water.
        Thank you for sharing that ,much appreciated..Terry in East Texas

        Comment


        • #5
          Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

          Originally posted by ICNDonna View Post
          Adequate water intake is very important in helping me avoid constipation. Milk of magnesia is usually a safe alternative for occasional use. My doctor recommended Miralax for me. It used to be a prescription, but isn't any more.

          Donna
          Thank you Donna.We want to get off prescription meds. Very helpful. Terry in East Texas

          Comment


          • #6
            Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

            Originally posted by rterryntx View Post
            Thank you Donna.We want to get off prescription meds. Very helpful. Terry in East Texas
            Why do you want to stop prescription meds? Because they have undergone clinical trials with strict regulations and potential side effects are known, I prefer to take them --- I actually feel safer if I know about any possible adverse effects.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

              I switched to a high fiber cereal, Kashi Go Lean, I also put 3mg of fiber in my daily yogurt and take 5mg of chewable fiber. I have used Miralax with no problems at all. I have IBS as well as IC so I know how much one can affect the other. Constipation is my biggest trigger for IC frequency and urethral spasms. The bowel sits right on top of the bladder so there is not much you can do about that. I hope She finds an easy solution. You are a wonderful husband for taking such good care of her.

              Comment


              • #8
                Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

                For me and this is just my expirence not saying it is right or wrong.

                I have tried Metamucil in various forms, increased fiber etc theses tend to make my IC much worse. I think for two reasons there is something in it that irritates my bladder, and I causes gas, the gas can be painful going through especially when near the bladder.

                I take Miralax daily. I used to take it twice a day, now I only need to she it once a day.

                I can use no name brands with no problems.

                I have found I need to she it daily fir best results.

                I wish both of you luck.

                No matter what you use as a lax you need to drink lots of water.
                My are with you all. May you all find a way to peace and joy in your lives.

                Comment


                • #9
                  Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

                  Relistor is a godsend. It is a prescription though.

                  Comment


                  • #10
                    Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

                    Originally posted by rterryntx View Post
                    Thank you Donna.We want to get off prescription meds. Very helpful. Terry in East Texas
                    Hi Terry
                    I am one of those people who is very wary of prescription medication. I used to hear my brothers talk about their patients that had really bad side effects from medication and it scared me. My attitude to prescription medication meant that I went untreated for very severe migraine for over 5 years. One day I had a migraine that was so bad, I knew if I went a few more months, I just wouldn't survive them. That sounds dramatic, but my brother recommended a neurologist that day and I was prescribed Topamax. This drug has some pretty drastic side effects, but it also saved my life. I went on to study in Early Childhood and now work as a Nanny to 3 families. I did eventually have to stop the Topamax as some symptoms set in after 5 years that meant I had to stop cold turkey. I had developed a tremor and constant twitching that went away within a couple of weeks of stopping. I now take Relpax as needed. I am also on Elmiron and this also has caused me to develop IBS, but IBS just means I have a lot more bowel movements. Elmiron keeps my IC completely under control.

                    I check and double check every drug that is recommended to me and mostly don't take them. Recently I was prescribed Ovestin cream (estrogen) and I have decided not to use it due to the cancer risk. My outlook is to eat really well and drink water. My diet is probably 60% fruit which is not for everyone, but it keeps me hydrated and I seem to do well on it.

                    Donna suggested Milk of Magnesium. This really does work for constipation, but prior to developing IBS, it worked a little too well for me and caused severe diarrhea. Magnesium powder or tablets seems to work too.
                    Elmiron 2 x 100mg daily for IC
                    Relpax 40mg as needed for migraine
                    Vitamin D - 1 tablet per day
                    Vitamin B - 1 tablet per day
                    Iron/Vitamin C Tab - As needed, usually during my period.

                    Previous Medications:
                    Topamax - 2 x 50mg daily (migraine)

                    Comment


                    • #11
                      Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

                      At the risk of sounding biased on the subject of prescription versus untested medications, I have to say that I feel much safer taking a medication that has undergone clinical trials and actually lists potential side effects --- even if only 1% of people taking it experience side effects --- if there haven't been clinical trials, there's no way of knowing what the side effects might be or how many suffer them.

                      When I get a new prescription, the first thing I do is to check for the potential for side effects and for interactions with other medications I take. To me it makes a lot of sense to have that information --- and I have had some side effects and had to stop meds due to them. The good thing was that by having side effect information, I was able to quickly identify the problem and get in touch with my doctor for advice. It has saved me a lot of grief in the past.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment


                      • #12
                        Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

                        Originally posted by ICNDonna View Post
                        At the risk of sounding biased on the subject of prescription versus untested medications, I have to say that I feel much safer taking a medication that has undergone clinical trials and actually lists potential side effects --- even if only 1% of people taking it experience side effects --- if there haven't been clinical trials, there's no way of knowing what the side effects might be or how many suffer them.

                        When I get a new prescription, the first thing I do is to check for the potential for side effects and for interactions with other medications I take. To me it makes a lot of sense to have that information --- and I have had some side effects and had to stop meds due to them. The good thing was that by having side effect information, I was able to quickly identify the problem and get in touch with my doctor for advice. It has saved me a lot of grief in the past.

                        Donna
                        Hi,I appreciate your imput. I mostly was refering to the prescription laxative drugs.The liness seemed to work the first few days,but wasn't effective after that.The she prescribed Amitiza,which didn't work after a few days and she said to take the milk of mag,.That's when I went for 12 hours.We called and she said that it may take a few weeks for it to start being effective.Also caused a bad feeling,dizziness and other bad effects.So wondering,what does this drug do to you,as it takes a couple of weeks to even start working? So I figured that an over the counter might be more effective for me. ( Excuse me for using,me,I and we,as pronounds,really mean wy wife Billie.I also have Proctalgia fugax(Levator Ani Syndrone),which complicates matters,having severe pain in my rectum,sit and sleep on blue ice packs all the time. We are just trying to fing something consistent that will work on a regular interval to control the chronic constipation,not going back and forth.
                        I,m not much for keeping up with all the communication,as taking care of her is a full time job,plus!.Sorry for not responding sooner
                        Terry

                        Comment


                        • #13
                          Re: Diverticulosis,Opiate induced constapation,severe tummy pain,increasing bladder p

                          Sometimes when there's a chronic constipation problem, there can be times when the stool is so hard that it's nearly impossible to clear it --- so it can take whatever steps it requires to clear it out --- then more time to develop ways to avoid it in the future. (Does that make sense?) I know that on one occasion when I was only days out from an abdominal surgery I had to make a trip to ER and had an impaction manually cleared --- not fun! But once it was cleared I was able to keep it from recurring by taking a stool softener. Thankfully, that experience hasn't repeated itself and I'm able to keep "going" by drinking enough water and including fiber in my diet.

                          I hope this will help.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment

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