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  • Hello

    Hello everyone. Just wanted to say hi and introduce myself. I'm a 33 y/o RN in Mississippi. I worked in home health for almost 10 years before the pain and urgency made me have to quit my job. I worked in many rural areas and there aren't too many places to stop to use the bathroom between seeing patients [except maybe the cow pastures :-) ]. After almost 2 years of being told "you don't have a UTI" I was finally diagnosed with IC last October. As a single mom, going without a job was not an option, so I'm currently working for the state. It's a desk job, with a bathroom around the corner. The pay isn't great and I really miss my patients, but I don't have to worry anymore about when the next bathroom break will come. I'm hoping that maybe sometime in the future I can get my symptoms half-way under control so that I can return to seeing patients. I discovered this board shortly after I was diagnosed. And it has been a lifesaver for me just knowing I'm not the only one out there with IC. Anyway, I just wanted to say hello.

  • #2
    WELCOME Pincushion

    This board is so supportive;do not know what I would do without the ICN-noone else really understands what we are going through. I hear what you are sating about being under-employed,it is true for many icers. I am a licensed mental health therapist in NJ.I had to quit my job because I could no longer remain in sessions with my patients for an hour because of frequent urination and pain. I was diagnosed 3/98. I have had symptoms for 20 yrs. No tx's have worked for me as yet. Uros tell me I am an "end" case. They have suggested interstim. I am not interested in this invasive procedure yet. I am trying to convince my uro to try SANS tx on me.In the meantime, I have not worked since 8/98. My husband was dismissed from his job(downsizing) 2/2000 and was unemployed for one year. He started a new job 2/19/2001 at considerablly less $. It would help alot if I could work.




    • #3
      welcome Pincushion...what a cute screen name! I am Julie B. You can read a bit about all of us if you click on the page that lets you see all posts...glad to have you...Hugs Julie B (an RD)
      Julie Beyer, MA, RDN
      IC Dietitian, Patient Advocate, Speaker, & Author

      Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

      Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

      You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

      ........ ........

      Other IC Diet Resources:

      IC Diet Webinar
      IC Diet Website
      For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
      Free IC Diet Booklet: What Can I Eat?
      Confident Choices IC Diet Blog
      IC Diet Newsletter

      *Let's Connect!*