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  • #1

    Wish me luck!

    I have a head CT of my sinuses on Monday at 2:30 to see what the heck this lesion in my lower sinus/upper nostril is. Doc thinks it's related to Lupus, but, since I don't have my labs back yet I don't know if it's really Lupus. I'm really losing all patience with my doctor's office staff. They finally called to set up this CT, but no rheumy consult yet, and they didn't bother to call me back about keeping up the prednisone for a bit longer....so, I'm weaning off of it to be on the safe side.

    BTW, those prednisone users, I've got the sweats, even when I'm freezing. Is this some other side effect from it, or maybe from decreasing the dose? These sweats are MUCH worse then what I had before I began taking the pred. so I'm assuming it's related.

    Just think good thoughts... don't know what I want this thing in my nose to be, just not cancer, that's all I can think about.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.
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  • #2
    Sandy, I hope you find out soon what is going on. I'm so sorry you are going through all of these health problems. I feel bad about complaining about my situation and here you are with all of this stuff.

    Sandy, I hope you hear from the doctor soon, if not, give them a call. That is so aggravating to keep on waiting. Grrrrrrrr

    Sandy praying for you too.

    Comment

    • #3
      Sandy,

      You'll be in my thoughts and prayers!

      I haven't experienced it, but have read pred. side effects can include rather profuse sweating, especially night sweats.
      Annie

      IC
      Ulcerative Colitis and IBS
      Pelvic Floor Dysfunction
      _________________________________________________________
      Retirement is great! Work is highly overrated!!!
      ---My dear hubby
      ________________________________________________________
      Never go to a doctor whose office plants are dead.
      ---Unknown

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      • #4
        Sending lots of prayers and good thoughts.

        April

        Comment

        • #5
          Hi Sandy,

          Good luck with your CT today; I hope you get the results you need and that it is nothing serious!

          I too have had the sweats when on prednisone for asthma; I believe it even says that sweats are a side effect of the drug. You can look it up at my favorite drug info site: http://www.rxlist.com
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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          • #6
            Sending prayers your way. I'm certain it must be from the lupus, and not cancer, you are too young for cancer! Hoping for the best,

            Blessings,
            Lori

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            • #7
              wishing you luck, I hope everything goes well. keep us posted
              'The will of God will never take you where the Grace of God will not protect you.'

              Comment

              • #8
                Sandy, good luck this afternoon. Yeah, I hate it when the doc's office takes their sweet old time setting up oppointments and getting test results back. If it were them waiting they would have a fit.

                Comment

                • #9
                  I'll be thinking of you --- be sure to let us know what you find out.

                  Sending gentle hugs,
                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                   [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

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                  • #10
                    I went to this brand new medical building here and they were so efficient I was literally out before I was actually scheduled to have the CT done. The guy told me nothing, of course, and said it would be a few days before my doctor's office called me, but, he said, "sure does look like it hurts up there"...well...yeah, it really does hurt up there. No clue what that meant.

                    At least there was a bright side, it's a beautiful day, went to a really NICE place to get a procedure done, and they were quick about it. Amazing when you think about it!

                    Thanks for the prayers and concern. As soon as I know something I'll let you guys know.
                    *IC-- Summer 2004; PFD--October 2005
                    *Fibro--Fall 2000; CFS-- Fall 2000
                    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                    Total Abdominal Hysterectomy--adenomyosis--9\08

                    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                    Comment

                    • #11
                      Yay! Glad to hear it's over! And now, come on - what are you taking? A medical based facility - efficient? In and out BEFORE the schedule? What on Earth are you smoking girl?!? (and can I have some please? )

                      Ah just teasing ya, glad to hear that it was a great and positive experience, that rarely happens in the medical realm of things, so it's refreshing to hear!!!!

                      XOXO
                      Hugs,
                      Tracey
                      How do you eat an elephant? One bite at a time...

                      Harry arrived 2/23/09!



                      *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      IC Diet Cheat Sheet:
                      http://www.ic-network.com/diet/2009icdietlist.pdf


                      Dx's:
                      IC dx'd Nov 2004
                      Lymphocytic Colitis dx'd July 2005
                      Possible IBS
                      Current IC Meds
                      Vistaril 25mg in the evening
                      Previous IC Meds taken:
                      Cystoprotek - 2 caps 2x's a day
                      Elmiron, 100mg 3x's a day
                      Ditropan, 5 mg 3x's a day
                      Others:
                      Wellbutrin 150mg 2x's a day for Anxiety/IBS
                      Pepcid 40mg a day for GERD
                      Zytrec for Nasal Allergies
                      Align Probiotic daily for IBS

                      Comment

                      • #12
                        Sandy,
                        Glad your test went well and...uh...efficiently (is that really possible???) LOL. Seriously, I hope they get back to you ASAP so you can find out what's going on.

                        ~Claudia

                        "A heart is not judged by how much you love; but by how much you are loved by others."
                        ~ The Wizard of Oz

                        "If I ever go looking for my heart's desire again, I won't look any further than my own
                        back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy

                        Comment

                        • #13
                          Still waiting on the results. It's only been 2 days, and even though I SAW a radiologist in the office that looks into the CT room, I know it's going to take days and days to get the report transcribed and sent to my doctor's office. Then HE has to read it, then the nurse has to find time to call me......you know how it is.

                          I did talk to the nurse yesterday after my 3rd slightly angry voice mail. I asked again, to stay on a 2nd course of the prednisone, but at this point I'm down to 10mg a day and not sure I even want to go back up to 60. If they hadn't been so ridiculously slow in returning my phone calls I'd have gone for it. We'll see what he says....and as for the rheumy consult, well, the nurse tells me that this new office hasn't called them back with an appt yet. I said it was 9 business days since I had my visit with my doctor and this was beyond ridiculous. So, we shall see.....

                          I love my doctor, but this stuff drives me crazy!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
                          *IC-- Summer 2004; PFD--October 2005
                          *Fibro--Fall 2000; CFS-- Fall 2000
                          *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                          Total Abdominal Hysterectomy--adenomyosis--9\08

                          04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

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