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Diagnosing PFD?

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  • Diagnosing PFD?

    I have had IC for five years and when I was rereading the IC survival guide, it occurred to me that I have never been tested for PFD. How is PFD diagnosed and which doctor should I see to make the diagnosis? Should I see my uro, gyno, or GCP?
    Thanks!
    Janelle
    I am a soul whose intentions are good.
    Oh Lord please don't let me be misunderstood.

  • #2
    My uro dx'd me with it. He did it by symptoms, and when he examined me he could just tell by my muscles down there. My main PFD symptom is not being able to start my urine stream. I sit, squat, change positions, run water, put my hands on the wall to take the weight off that area.....it's really awful. Takes me 10 minutes to pee sometimes...sometimes even longer.

    Hope this helps.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

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    • #3
      My uro diagnosed me as well. He felt I had it based on symptoms, and during the exam, he did the "finger test" and could tell by how tense and tender the muscles were.

      ~Claudia

      "A heart is not judged by how much you love; but by how much you are loved by others."
      ~ The Wizard of Oz

      "If I ever go looking for my heart's desire again, I won't look any further than my own
      back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


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      • #4
        Thanks for the advice. I will make an appointment with my gyno.
        Janelle
        I am a soul whose intentions are good.
        Oh Lord please don't let me be misunderstood.

        Comment


        • #5
          Also there is often difficulty having bowel movements.

          Comment


          • #6
            I have that problem and I also feel a sense of incomplete emptying of the bowels. Is that also a symptom of PFD?
            Janelle
            I am a soul whose intentions are good.
            Oh Lord please don't let me be misunderstood.

            Comment


            • #7
              Diagnosing PFD

              Read this Dr. Moldwin Conference transcript on PFD. It makes it very clear.

              http://www.bio-medical.com/news_display.cfm?newsid=47
              8/2007 - My constant bladder pain is now gone due to a surgery where the ilioinguinal and iliohypogastic nerves were cut. I still have IC symptoms but they are improving. It's still early to say, but I believe this solution will work permanently for me.

              Symptoms since 2005 - 24/7 abdominal pain, cold sweats, low back pain, vulv, etc.
              Surgeries: Spinal Fusion L4-L5-S1 10/97, Anterior spinal fusion L5-S1 9/05, Lap for Cysts, Endo 9/06, Hysterectomy kept cervix 12/06
              Meds: Morphine, Neurontin, Valium, Hydroxyzine, Vivelle Estrogen, Thyroid,
              Exercise & PT: All at least 4 times a week
              Whirlpool baths, Moist heat, Treadmill, Stretching, Trigger point, Yoga Positions; Ab & Pelvic Massage

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              • #8
                Thanks so much for the information. I had a uroflow about 4 years ago and my uro told me that I was straining really hard and that I was having retention problems. I wonder why he never suggested that I be tested for PFD. I will definitely schedule an appointment with my gyno.
                Janelle
                I am a soul whose intentions are good.
                Oh Lord please don't let me be misunderstood.

                Comment


                • #9
                  I'm glad it helped; it is a fantastic article and helped me more than his book.

                  When my back broke in early 2005 I had nerve damage from the waist down. Boy did I strain (to urinate) for six months until surgery and even after surgery. I think that may have been one of the big contributors to my PFD/IC problem also.
                  8/2007 - My constant bladder pain is now gone due to a surgery where the ilioinguinal and iliohypogastic nerves were cut. I still have IC symptoms but they are improving. It's still early to say, but I believe this solution will work permanently for me.

                  Symptoms since 2005 - 24/7 abdominal pain, cold sweats, low back pain, vulv, etc.
                  Surgeries: Spinal Fusion L4-L5-S1 10/97, Anterior spinal fusion L5-S1 9/05, Lap for Cysts, Endo 9/06, Hysterectomy kept cervix 12/06
                  Meds: Morphine, Neurontin, Valium, Hydroxyzine, Vivelle Estrogen, Thyroid,
                  Exercise & PT: All at least 4 times a week
                  Whirlpool baths, Moist heat, Treadmill, Stretching, Trigger point, Yoga Positions; Ab & Pelvic Massage

                  Comment

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