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  • #1

    Rash is back...

    Thought I'd see how I did without the prednisone...I weaned totally off of it Friday. The rash on my face was back by Sunday, the all over body itching started again today, and my body pain, and bladder pain are off the charts. I have already paid for my birthday dinner most of Sunday and yesterday, and though my bladder does feel better than it did those days, it still hurts like crazy!

    I guess I'll suck it up and go get my RX for the prednisone refilled. It's great that it helps, but it makes me feel so odd.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.
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  • #2
    Sandy
    I am sorry its back. Is there not anything else that you can take?
    (((((((hugs))))))))
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment

    • #3
      I've tried antihistamines and they do nothing. The rash just keeps getting worse and much more itchy by the minute. Until I took the prednisone nothing I tried would get rid of it. I've used cortisone creams on my face, and nothing. I'm thinking if I just take a low dose maybe that will be enough to keep the itchies at bay, and help to decrease my pain. I know when I was down to 5mg last week I felt better than I do today.
      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

      Comment

      • #4
        Oh cripes, sending you hugs that miraculously take the itchies away! *poof!*

        XOXO
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf


        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment

        • #5
          I hope the itchies go away... I do know what constant itch is like. When my dermatographism flares up, I get hives all over, and even just resting something on my arm will cause a huge welt to form. Even prednisone won't totally take the flares away -- I have a cocktail of drugs I have to take (prednisone included, though) to make it stop. So I really, really feel for you....
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #6
            Sorry your rash is back! Like you, I feel SO much better on Prednisone. But, my Dr. wont let me stay on it b/c of all the side effects. So, I only "get to go on it" when I am in a Lupus flare. But, she weans me off it as soon as she can. However, I always really look forward to going on it, b/c my pain totally disappears whenever I am on it, plus, I always have alot of energy while taking it.

            Hope you start feeling better once you go back on it!!

            Hugs,
            Amy

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