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I was dx'd with HyperPARAthyroidism in 2004. It was suspected 3 years earlier, but the numbskull Radiologist conducting my test was reading the pictures after 2 hours. A very quick moments online of research and I discovered they are supposed to read the test after only 10 MINUTES of injecting the Radioactive dye!! Uggghhh! The only reason I was finally dx'd at this point is due to consistent high blood calcium and outrageously high Parathyroid hormones.
Instead of going through the Nephrologist again, my GP sent me to a Surgeon after the new Parathyroid scan and lab work. The Surgeon said I had a growth on at least 1 of the 4 Parathyroid glands and I needed surgery YESTERDAY to remove it. During surgery, he also looked at the other Parathyroids, but only found a total of 3; could possibly develop the disease again - especially being he couldn't find all the glands.
Long story short, surgery was 12/2004 and all my conditions have slllooowwwllly, and I do mean ssllllooowwwlllyyyy, improved since then! However, removing the diseased Parathyroid was SUPPOSED to end my bout with kidney stones; Hyperparathyroidism causes massive amount of calcium to be sent through the kidneys, causing chronic stones. I've passed one 5mm stone (massive size in kidney stone terms!), had 2 Emergency surgeries for complete uretal blockage by 5 or larger stones, 1 surgery for an 11 mm stone that was still in the kidney, and continually pass 'gravel' on a regular basis!! Double ugh!! I currently have at least five measurable stones in the left Ureter, which I may or may not be able to pass. There are several stones of smaller size in the right ureter, too.
Kidney stones have been an almost monthly ordeal to some extent since 2004, despite the parathyroid surgery and taking "Procit-K" daily!!!! Ironically, the IC pain has lessend to a great degree!
I have no idea if it's related, or if it's just a thing of time removed from the most horrible, horrid, SUICIDAL pain of IC that I had for the early years of the disease. My IC was in advanced stages when finally dx'd and I'm currently on no particular treatment or seeing anyone for it! If I dare mention IC to my Uro when there for a kidney stone related visit, he says, "Now Sherry, we're not here about that problem today." !!!! What a twerp!! 
Good thing my IC has quieted down or I'd be "up the creek", Huh?!?!?!
Just wondering if anyone else has dealt with chronic stones, along with IC? Any others with Hyperparathyroidism?? Just curious and do you want to share your story of these?
All the Best,
Sherry
Instead of going through the Nephrologist again, my GP sent me to a Surgeon after the new Parathyroid scan and lab work. The Surgeon said I had a growth on at least 1 of the 4 Parathyroid glands and I needed surgery YESTERDAY to remove it. During surgery, he also looked at the other Parathyroids, but only found a total of 3; could possibly develop the disease again - especially being he couldn't find all the glands.
Long story short, surgery was 12/2004 and all my conditions have slllooowwwllly, and I do mean ssllllooowwwlllyyyy, improved since then! However, removing the diseased Parathyroid was SUPPOSED to end my bout with kidney stones; Hyperparathyroidism causes massive amount of calcium to be sent through the kidneys, causing chronic stones. I've passed one 5mm stone (massive size in kidney stone terms!), had 2 Emergency surgeries for complete uretal blockage by 5 or larger stones, 1 surgery for an 11 mm stone that was still in the kidney, and continually pass 'gravel' on a regular basis!! Double ugh!! I currently have at least five measurable stones in the left Ureter, which I may or may not be able to pass. There are several stones of smaller size in the right ureter, too.
Kidney stones have been an almost monthly ordeal to some extent since 2004, despite the parathyroid surgery and taking "Procit-K" daily!!!! Ironically, the IC pain has lessend to a great degree!
I have no idea if it's related, or if it's just a thing of time removed from the most horrible, horrid, SUICIDAL pain of IC that I had for the early years of the disease. My IC was in advanced stages when finally dx'd and I'm currently on no particular treatment or seeing anyone for it! If I dare mention IC to my Uro when there for a kidney stone related visit, he says, "Now Sherry, we're not here about that problem today." !!!! What a twerp!! Good thing my IC has quieted down or I'd be "up the creek", Huh?!?!?!Just wondering if anyone else has dealt with chronic stones, along with IC? Any others with Hyperparathyroidism?? Just curious and do you want to share your story of these?
All the Best,
Sherry
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