I went to the doctor...the rheumatologist I have waited and waited to see. My appt was at 1 oclock and they took two patients in before me. I was supposed to be the first patient after lunch. I finally got back to the room at 1:45...had to strip and put on that stupid gown. The doctor was very thourough, looked at my joints, did a lot of pressing and pinching around on my muscles and joints, saw my legs and hands were blue, said I have Raynauds. Said I probably have Lupus, but he'd run some more definitive tests. I was ok with all of that. He also said Sjoren's because of my dry eyes and mouth, plus the nose sores..talked about my kidneys.
The part that REALLY upset me was when he asked me if I'd heard of TMS. No, what IS TMS? Well, it turns out its MORE psycobabble about fibromyalgia and "hidden" stress causing lack of oxygen to get to the muscles and joints. It's MENTAL. He said even though I probably DO have Lupus, he says I have this TMS stuff. Its called Tension Myositis Syndrome....fibro of the mind.
I was so angry I was about in tears, and now that I'm FINALLY home I AM in tears. It took me YEARS to find a group of doctors who believed me and told me I had PHYSICAL problems that caused this pain. Now this man comes in, looks at me for 30 minutes and decides that I have this TMS, which is fibro with a twist. I told him I'm stressed over my daughter but in general I don't have much stress because I'm not working. I stay at home, I take care of my kids and house and with the exception of the last few months things have been stable. He told me it could have been something that happened when I was 4 or 5 or even 15 that has built up unconsciously to cause me pain. I'm MAD. I'm NOT crazy, I AM NOT. I do not have a psychological problem, those were all ruled out when this hell started for me.
So, I went to go have my labs drawn and there were about 15 people waiting for ONE lab tech. I left. I'll go have them drawn but I was just OVER it. I WANT my labs done, I do. I want some definitive answers. TO TOP IT OFF, HE SAID I COULD BUY A BOOK AT THE FRONT DESK ON THIS TMS!!!!!!! HE SELLS THE BOOOOOOOOKS!!!!!!!!!!!!!!!!!!! Well........***** his book....
How many times do we have to be told things are all in our heads? I know he didnt totally discount me, he really thinks I have lupus and sjorens, but also I have a mental disorder that causes me pain.
Does that mental disorder cause the rashes and the itching and the kidney problems and the rest of it?
I want to scream. I can't stop crying. The entire time I thought he was totally believing me because of the noises he was making...like "huh", "ahhhh", "oh my, it really hurts there doesn't it?", "your legs are so blue", "your joints are swollen in your hands", etc....then he tells me this psychobabble and wants to SELL ME A BOOK!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am SO not happy!
The part that REALLY upset me was when he asked me if I'd heard of TMS. No, what IS TMS? Well, it turns out its MORE psycobabble about fibromyalgia and "hidden" stress causing lack of oxygen to get to the muscles and joints. It's MENTAL. He said even though I probably DO have Lupus, he says I have this TMS stuff. Its called Tension Myositis Syndrome....fibro of the mind.
I was so angry I was about in tears, and now that I'm FINALLY home I AM in tears. It took me YEARS to find a group of doctors who believed me and told me I had PHYSICAL problems that caused this pain. Now this man comes in, looks at me for 30 minutes and decides that I have this TMS, which is fibro with a twist. I told him I'm stressed over my daughter but in general I don't have much stress because I'm not working. I stay at home, I take care of my kids and house and with the exception of the last few months things have been stable. He told me it could have been something that happened when I was 4 or 5 or even 15 that has built up unconsciously to cause me pain. I'm MAD. I'm NOT crazy, I AM NOT. I do not have a psychological problem, those were all ruled out when this hell started for me.
So, I went to go have my labs drawn and there were about 15 people waiting for ONE lab tech. I left. I'll go have them drawn but I was just OVER it. I WANT my labs done, I do. I want some definitive answers. TO TOP IT OFF, HE SAID I COULD BUY A BOOK AT THE FRONT DESK ON THIS TMS!!!!!!! HE SELLS THE BOOOOOOOOKS!!!!!!!!!!!!!!!!!!! Well........***** his book....
How many times do we have to be told things are all in our heads? I know he didnt totally discount me, he really thinks I have lupus and sjorens, but also I have a mental disorder that causes me pain.
Does that mental disorder cause the rashes and the itching and the kidney problems and the rest of it?
I want to scream. I can't stop crying. The entire time I thought he was totally believing me because of the noises he was making...like "huh", "ahhhh", "oh my, it really hurts there doesn't it?", "your legs are so blue", "your joints are swollen in your hands", etc....then he tells me this psychobabble and wants to SELL ME A BOOK!!!!!!!!!!!!!!!!!!!!!!!!!!!

I am SO not happy!
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