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  • #1

    I have come to a conclusioin

    I was thinking how everyone says I never earned the SSI or how awful I use the medicaid. Well, to bad! I was in my late 30's having to go to someone to ask for money just to buy socks and if I wanted my hair done that was a battle. no one ever paid me for my help. They all bought new cloths, cars, houses, traveled, husband, kids and all that time I was home doing the house work, baby sitting, taking care of animals they should have taken care of. So, I earned it all and then some.
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  • #2
    I don't think its anyone's business how you support yourself,
    as long as you're not doing anything illegal or unethical.
    Doesn't sound like that's the case, so anyone else's opinion is not important....

    (Amazing though, how many people have so many opinions, and so little knowledge sometimes...)
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

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    • #3
      I think people like you and alot of ICers should be able to receive benefits, I was even thinking of applying.. I mean heck I cant work feeling like I do some days..I know an employer would not put up with it for long..
      I am still considered employed by walmart just on leave.. My stupid doctor would help me by said it was medical related, so I receive no benefits.. Uhgg I get so mad just thinking about it..

      But anyways you deserve the benefits and dont let anyone make you feel bad about that!!!!
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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      • #4
        Believe me when I say that if you didn't need it, you wouldn't be receiving it.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

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        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          Waterflow you sound like me. My husband and I would do work for his mother, and uncles and etc. It was mostly doing things for their house so they would not have to paid someone to do it. Including cutting grass, fixing pipes, , repairs around the house. And low behold when my husband got sick, no one was around to help. Well I knew they wasn't able to help because we mostly helped those who were older and those who couldn't help themselves.

          What I am trying to say, you work without pay and sometimes it is unnoticed, but you deserve any help you can get. Don't you dare let someone tell you, you don't deserve it.

          Sending hugs, Trishann

          Comment

          • #6
            Count me in with the gang here - if you didn't deserve it you wouldn't get it! Basically you are like a full-time homemaker, and Dr Phil (yeah, yeah, Dr Phil) has said it's like the equivalent of 3 full time jobs!!!!!!! So, basically, you work your behind off!!!! So, tell them all to stuff it!
            Hugs,
            Tracey
            How do you eat an elephant? One bite at a time...

            Harry arrived 2/23/09!



            *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            IC Diet Cheat Sheet:
            http://www.ic-network.com/diet/2009icdietlist.pdf


            Dx's:
            IC dx'd Nov 2004
            Lymphocytic Colitis dx'd July 2005
            Possible IBS
            Current IC Meds
            Vistaril 25mg in the evening
            Previous IC Meds taken:
            Cystoprotek - 2 caps 2x's a day
            Elmiron, 100mg 3x's a day
            Ditropan, 5 mg 3x's a day
            Others:
            Wellbutrin 150mg 2x's a day for Anxiety/IBS
            Pepcid 40mg a day for GERD
            Zytrec for Nasal Allergies
            Align Probiotic daily for IBS

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