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UGHHHHHH bad reaction to new med!!!!!

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  • #1

    UGHHHHHH bad reaction to new med!!!!!

    Well I started the new medication my Rheumatologist put me on.....a nighttime muscle relaxer called Baclofen 10mg. It kept me awake allllll night and I had major stomach burning and esophagus pain. Now I am home today feeling really crappy......
    I talked to my Gastro Dr.....the who did my gastric bypass, 3 yrs ago, and he said I should try crushing the pills first so they'll dissolve faster But that might not help either. He also told me I should NOT take the Steriod Predinsone to help with this Polymyalgia Rheumatica! He said it will majorly mess up my esophagus because I have Barrett's Esophagus and cause weight gain......just what I need! UGHHHHH!!!!
    Now I am really depressed....a new health problem.......and no medication I can take to help relieve the pain. How can life be SO rough??? Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:
    Tags: None
  • #2
    Hi Roxie.
    I am so sorry you had such a bad reaction to the med. That stinks. Did you call the rheumy back and tell him what is happening? I would definitely call the rheumy and tell him your GI docs concerns about not taking the steroids. Maybe you could get away with taking a low dose of a steroid without it messing with the reflux and Barrett's.

    Or maybe there is another med the rheumy could suggest for this. I am so sorry Roxie. You sound just like me, alot of meds seem to give me reactions or cause my others health issues to act up. I cannot take alot of the meds used to treat IC due to my motility issues in my stomach. It is such a pain when you have so many health issues going on at once. I hope you will get some relief. Call the rheumy back and explain to him all this. Sending gentle hugs your way.
    Jen

    Comment

    • #3
      Hi Jen,

      Yes, I called the Rheumy.....he hasn't returned my call yet. He has the bedside manner of a termite....not a nice person. I think after my test results come in next week I'll get a 2nd opinion. Hopefully there is a different medication that I can tolerate. It's sure the pits being so sensitive to so many medications, and it's getting worse as time goes by. I can no longer use Twilight sleep when having tests.....it doesn't work for me. Also at the dentist I have to have an oral surgeon administer stronger meds when doing dental work. Of course...all these things cost more and my insurance won't cover it because they don't see 'the need'.
      Anyway, I haven't even tried the 'daytime' muscle relaxer the Rheumy gave me......I'm afraid it'll cause pain too........ugh!! Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

      Comment

      • #4
        Hi Roxie,

        I am sorry you had that reaction to the medicine
        I wish doctors were like they use to be in the good old days where you saw 1 doctor for everything. It seems like when you have to see several doctors that they don't keep track of what the other doctors have prescribed for you. And then of course they all have their different opinions

        I know you have to be frustrated with all that you are dealing with. I am sending you a big old hug and some prayers too
        Miss Bessie

        Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

        Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

        Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

        Comment

        • #5
          Hi Roxie.
          Yes, I guess I agree, maybe you should see another rheumy if this one has such an awful bedside manner. I also had a horrible experience with my first rheumy. He looked at me and told me I likely had the disease scleroderma. I am not sure if you ever heard of this disease, but it is a very bad disease. He told me this before even doing any blood tests or anything. He would not come right out and say I had scleroderma, but kept saying he was sure I did, but when I asked him what I should do, he would say, oh nothing right now, I will order some blood work and then we will have to see.

          The whole point was that he scared the Sh** out of me unnessasarily. I did get a second opinion from a rheumy that specialized in scleroderma, and he took some blood tests and said he did not think I had it, but thought I did have something autoimmune going on, but my tests were very inconclusive. I really should go back and get checked out again.

          But dont feel bad, you are not alone when it comes to dealing with doctors that are jerks. I hope you find another doctor who will help you better. Maybe if you call around to different doctors and see if any of them specialize in your condition. And hopefully you will find a nice compassionate doctor. Good Luck Roxie.
          Jen

          Comment

          • #6
            HI Laura,
            Thank you for the prayers and hugs.
            My Rheumy just called. He wants me to try to take the daytime muscle relaxer.......so I've crushed it and just took it. I have my fingers crossed that it doesn't bother my stomach.
            You are SO right about the 'good ol'days' when we had one dr. who treated everything. It was a lot easier and cheaper! Roxie

            Double Spinal Cord Stimulator surgery 8/09
            Unsuccessful MiniArc sling surgery 12/07
            Dx'd Hypothyroid
            Dx'd Chronic Axonal Neuropathy & Myopathy
            June 2007
            Dx'd IC May 2006 (after suffering for 25+ yrs!)
            First Cysto 1979
            First Hydro 1981 (Many treatments since then!)
            Collagin"Durasphere" injections for urethra
            Gall bladder surgery Aug. 2004
            Gastric Bypass Dec. 2004
            Dx'd: Barrett's Esphogus July 2004
            Dx'd: Vaginal Atrophy 2005
            Bladder surgery 2000
            Dx'd: IBS 2000
            Hysterectomy (fibroids) 1999
            Laminectomy 1989
            Dx'd: Degerative Disk Disorder 1989

            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

            Comment

            • #7
              Wow Jen bet that was scary! That's how I'm feeling now. This dr. said he's sure I have this PMR.....but he did the blood tests to confirm it. I hope he's wrong! I hate even thinking I have one more problem to worry about and deal with! Roxie

              Double Spinal Cord Stimulator surgery 8/09
              Unsuccessful MiniArc sling surgery 12/07
              Dx'd Hypothyroid
              Dx'd Chronic Axonal Neuropathy & Myopathy
              June 2007
              Dx'd IC May 2006 (after suffering for 25+ yrs!)
              First Cysto 1979
              First Hydro 1981 (Many treatments since then!)
              Collagin"Durasphere" injections for urethra
              Gall bladder surgery Aug. 2004
              Gastric Bypass Dec. 2004
              Dx'd: Barrett's Esphogus July 2004
              Dx'd: Vaginal Atrophy 2005
              Bladder surgery 2000
              Dx'd: IBS 2000
              Hysterectomy (fibroids) 1999
              Laminectomy 1989
              Dx'd: Degerative Disk Disorder 1989

              For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
              I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

              Comment

              • #8
                I sure hope the daytime relaxer is better than the night! I hope, too, that you will be able to find something to help with your new condition.
                ****
                Jen

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment

                • #9
                  Roxie,

                  I hope your new muscle relaxer is suiting your body better. Your doctor seemed to be understanding. That is great! It's always nice when your doc listens to you and validates what you are telling him.

                  I know how you feel with a new diagnosis and not being able to take the medications. Most medications severely bother my bladder and PNE. I was just diagnosed with Fibromyalgia and Myofacsial Pain and I can't take any muscle relaxers or any of the other medication treatments. Zanaflex actually caused me to bleed from my uterus. It wracked my uterine muscles so much that I started to bleed. I basically have to suffer in severe pain because of the terrible things that medications do to me. I write down what I take with new meds and the reactions that happen. Some of them happen within 20 minutes after taking them. Lyrica and Ambien are the only two medications at the moment that I can tolerate.

                  Thinking of you and wishing you well!

                  Kara
                  Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                  "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                  I also have some journals of my journeys, past and some present at:
                  http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                  Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                  Comment

                  • #10
                    Hi Jen and Kara,
                    So far so good on the day time muscle relaxer. I have my fingers crossed! Soo many medications cause problems for me now....it's really the pits! The pain is really wearing me down. Thanks for writing......Roxie

                    Double Spinal Cord Stimulator surgery 8/09
                    Unsuccessful MiniArc sling surgery 12/07
                    Dx'd Hypothyroid
                    Dx'd Chronic Axonal Neuropathy & Myopathy
                    June 2007
                    Dx'd IC May 2006 (after suffering for 25+ yrs!)
                    First Cysto 1979
                    First Hydro 1981 (Many treatments since then!)
                    Collagin"Durasphere" injections for urethra
                    Gall bladder surgery Aug. 2004
                    Gastric Bypass Dec. 2004
                    Dx'd: Barrett's Esphogus July 2004
                    Dx'd: Vaginal Atrophy 2005
                    Bladder surgery 2000
                    Dx'd: IBS 2000
                    Hysterectomy (fibroids) 1999
                    Laminectomy 1989
                    Dx'd: Degerative Disk Disorder 1989

                    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                    Comment

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