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  • #1

    Please Help! Is this related to IC?

    Hey,

    Warning: this is a bit graphic but I'm going crazy.

    I really wasn't going to ask this question on this forum, but I'm starting to go crazy and I don't want to go to my doctor again unless it gets BAD. I dont know how to say this, but for about 4 days I've been having a lot of trouble with my colon. Basically, I keep getting cramps like I'm going to have diarreha NOW and I rush to the bathroom but when I get on the toilet its like I'm constipated. I can't go. I sit and try to relax and let it go, and sometimes I strain (I know I shouldn't but I'm getting really fed up and sometimes pushing like that is the only way I can actually bm). Then, it ends up being really mucus-y diarrhea. It hasn't been solid in five days. It also changes colors. I also can't go more than maybe a teaspoon at a time. Its driving me crazy because I spend about 10-20 minutes on the toilet at a time, and I'm going poo more often than I'm evening peeing (which as you all know is saying a lot.)

    I haven't called the doc. yet because I'm getting over bronchitis and I've just seen him 2xs in 2 weeks for THAT. When it began I was thinking that it was all the mucus buildup from my bronchitis getting into my stomach. I know I swallowed some of it accidentally and it started off worse in the morning so I'm sure I swallowed mucus all night from the bronchitis. Thing is, its gotten worse. I had to leave church this morning, which was embarrasing as it was Easter sunday, and I went to the bathroom SO much at my inlaws that I know everyone noticed.

    Also, I was wondering if PFD affects the muscles you use to bm? I haven't been diagnosed with PFD, but I've been thinking its possible I have it for a few months.

    If any of you have any help for me, please pm me or post to this message... PLEASE, pepto isn't doing much.
    Tags: None
  • #2
    I experience similar type of symptoms from taking Elmiron. I did read somewhere that if you take the medicine out of the capsule, it won't bother your stomach as much.

    Also, antibiotics can cause me to have those symptoms too.

    Good luck. Hope you feel better!
    Colleen
    Diagnosed October 2006
    Medications
    Percocet
    Hydroxine
    Elmiron
    Monthly installations

    Comment

    • #3
      Colleen,

      I did think of that, but I'm not on Elmiron anymore, and I took my last antibiotic for the bronchitis almost 2 weeks ago. I'm not on anything except for pepto and occasionally cough medicine, but I even basically quit that when the diarrhea got bad.

      Thanks for the thought tho.

      Comment

      • #4
        HI! It kinda sounds like IBS (irritable bowel syndrome) Have you ever had that before? It's not fun......and it goes from constipation to diarrehea and back again. I hope you get it figured out.....Good luck! Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

        Comment

        • #5
          It's also possible that you have a little sick bug, especially since it's been 4 days and not months. I rarely get diarrhea, so when I do, I know that I am probably sick. If it goes on for another day or so, I would call your doc just to touch base.

          I hate feeling like that because it is embarassing to be in the bathroom for 20 minutes.
          Diagnosed October 2006
          Medications
          Percocet
          Hydroxine
          Elmiron
          Monthly installations

          Comment

          • #6
            Originally posted by beandip View Post
            It's also possible that you have a little sick bug, especially since it's been 4 days and not months. I rarely get diarrhea, so when I do, I know that I am probably sick. If it goes on for another day or so, I would call your doc just to touch base.

            I hate feeling like that because it is embarassing to be in the bathroom for 20 minutes.
            I was wondering if it was some kind of stomach (or colon??) virus. I had a cysto/ hydro in early march, and then the bronchitis and now this, each one right after the other. My immune system is always bad when my IC is bad like it was right before the cysto and I'm wondering if my immune system is just totally shot still. I'm trying to avoid seeing the doc. though because of all the doc bills I've added up within the last month. Sigh.

            Comment

            • #7
              I hope it goes away soon, be sure to stay hydrated and try to rest, easier said than done. Oh. One more thing just popped in my head. I've heard fiber can either relieve constipation or diarrhea. Fiber One cereal is the best. Something with as much fiber as possible.
              Diagnosed October 2006
              Medications
              Percocet
              Hydroxine
              Elmiron
              Monthly installations

              Comment

              • #8
                Fiber is great for IBS.....I eat dried prunes with my breakfast every morning and now have no IBS symptoms. I used to go back and forth all the time between diarrehea and constipation......now I'm 'normal'. Hope you get better soon......Roxie

                Double Spinal Cord Stimulator surgery 8/09
                Unsuccessful MiniArc sling surgery 12/07
                Dx'd Hypothyroid
                Dx'd Chronic Axonal Neuropathy & Myopathy
                June 2007
                Dx'd IC May 2006 (after suffering for 25+ yrs!)
                First Cysto 1979
                First Hydro 1981 (Many treatments since then!)
                Collagin"Durasphere" injections for urethra
                Gall bladder surgery Aug. 2004
                Gastric Bypass Dec. 2004
                Dx'd: Barrett's Esphogus July 2004
                Dx'd: Vaginal Atrophy 2005
                Bladder surgery 2000
                Dx'd: IBS 2000
                Hysterectomy (fibroids) 1999
                Laminectomy 1989
                Dx'd: Degerative Disk Disorder 1989

                For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                Comment

                • #9
                  Please see your doctor. This could be a lot of things.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                  Sub-types https://www.ic-network.com/five-pote...markably-well/

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                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                   [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment

                  • #10
                    Originally posted by lnseagraves View Post
                    Colleen,

                    I did think of that, but I'm not on Elmiron anymore, and I took my last antibiotic for the bronchitis almost 2 weeks ago. I'm not on anything except for pepto and occasionally cough medicine, but I even basically quit that when the diarrhea got bad.

                    Thanks for the thought tho.
                    I was told by my gastointerologist (sp?) that things like Mylanta and Pepto can cause dioreah and upset stomach (sure got my bowels moving). It also could be a number of other things. I think you should really go see your doctor.

                    Medical "Issues":
                    IC
                    GERD
                    Tachycardia(resting rate is 125-130 )
                    Medicastions:
                    Tramadol-as needed (IC)-50mg
                    Elmiron 200mg twice a day
                    Levsin .125mg 1-2 pills 4 times a day

                    Comment

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