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  • Does anyone have twitches?

    Does anyone else have twitches? I can just be sitting here on the computer and my hand will move or my fingers or legs or toes..Its weird because it does this out of the blue..I notice it more when I am sitting or laying down.
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    Hey Ronda, I do sometimes and it is just above my eye. I do have a lazy eye so I think it just gets tire. Sometimes in a great while one of my finger will do it. I believe it is just a muscle spasms.

    Since you are getting it alot maybe your doctor can tell you why this is happening. My guess is muscle spasms but I can be wrong.

    Sending hugs, Trishann

    Comment


    • #3
      I have been meaning to ask this! I wondered if it could be a side effect of the Elavil? My eye has been twitching like crazy, which usually just happened if I was under a lot of stress, which I am not. And other twitches/nervous tics that I've dealt with all my life are back in full force, way more noticeable than they've been since I was in grade school. Anyone know if there is some relation to either IC or Elavil?

      Comment


      • #4
        I am on Elavil to.. I use to take Elavil years ago and do not remember twitching...
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #5
          Yes, mine are worse after I go to bed and have been laying down for a few minutes. Sometimes my whole body will twitch. They started with the anti-depressants. Some worse then others.

          Comment


          • #6
            I get this, mostly in my legs. It isn't like what they call restless leg syndrome. Instead it feels like my muscles are firing off indiscriminately.

            I usually just get up and stretch my muscles out big time.........
            Julie Beyer, MA, RDN
            IC Dietitian, Patient Advocate, Speaker, & Author


            Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

            Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

            You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

            ........ ........


            Other IC Diet Resources:

            IC Diet Webinar
            IC Diet Website
            For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
            Free IC Diet Booklet: What Can I Eat?
            Confident Choices IC Diet Blog
            IC Diet Newsletter


            *Let's Connect!*

            Comment


            • #7
              I have had my legs jerk and wake me up its the scariest feeling.
              'The will of God will never take you where the Grace of God will not protect you.'

              Comment


              • #8
                I get them too. One finger will twitch fast, toes, legs, arms--and my whole body sometimes. I thought it was from my pain meds?? I quit Elavil about 9 mos ago so it can't be that. I get them worse when relaxing also--I hate the ones that wake you right as your dozing off.

                Comment


                • #9
                  Yes, I have experienced twitches in my legs before and sometimes my eyes and arms. I haven't noticed it lately, but I espcially noticied it when I first started on Soma and Elavil, so I don't know which one or if it was the combo. I especiallly noticed it when I was relaxed which is understandable since that is when it would be more noticible.

                  T83

                  Comment


                  • #10
                    Thanks for the replys..
                    I guess I will talk to my doctor about this....
                    Hugs
                    Ronda

                    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                    Link to Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Diet Reference Sheet:
                    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                    Meds I have Tried:
                    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                    Lexapro< Bad reaction to this med!
                    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                    Dx With IC in Nov 2006 with Hydro/Cysto
                    Hydro/Cysto Caused Bladder to Rupture.

                    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment


                    • #11
                      Angie, the ones that wake me from almost dozing off are the worse. that is when my whole body will jerk. Very painful for a few moments after that.

                      Comment


                      • #12
                        I have something similar. I get a tremor in my left arm/hand that comes and goes. It's from a nerve problem. You should porbably see your primary doctor. Especially if it's interfearing with doing things.

                        Medical "Issues":
                        IC
                        GERD
                        Tachycardia(resting rate is 125-130 )
                        Medicastions:
                        Tramadol-as needed (IC)-50mg
                        Elmiron 200mg twice a day
                        Levsin .125mg 1-2 pills 4 times a day

                        Comment


                        • #13
                          Muscle Relaxers make me twitch. I hope your Doctor can provide you with some answers as to what is going on.
                          Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                          "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                          I also have some journals of my journeys, past and some present at:
                          http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                          Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                          Comment


                          • #14
                            I get the twitches as well...but mine are from RLS. They happen when I'm about to fall asleep and all of the sudden my legs will rapidly jerk. It feels a lot like you're falling. I happens at least once a night for me. I've had this problem for about 2 years and i've only just started Elavil 2 weeks ago so I know it couldn't be a side effect from it. I still get the jerks, although less frequently, on Elavil but they're not as rapid. My Ruematologist told me that the jerks may also be related to Fibromyalgia as well.

                            I also notice that when I cross my legs the leg that is crossed often jerks. And it's not uncommon for me to flip a pen out of my mind while writing because of a twitch.

                            Meghan

                            IC, GERD, Endo, IBS, ADD, Fibro, RLS, Celiac, PFD, TMJ, Anemia
                            IC-Elmiron, Sanctura, Prosed DS
                            Endometriosis-Lybrel, Phenergan(for nausea)
                            Postural Orthostatic Tachycardia Syndrome-high salt diet
                            Chronic Fatigue Syndrome- supplement injections
                            Sympathetic Denervation of the Legs
                            Hypersomnia/Repetitive Intrusion of Sleep
                            TMJ Syndrome
                            Mild Scoliosis
                            GERD-Nexium
                            Intraepithelial Lymphocytosis
                            RLS
                            PFD-Tizinadine as needed
                            Fibromyalgia-Tramadol, Neurontin, Lidocane Patches
                            ADD-Provigil
                            Gluten Sensitivity Enteropathy
                            IBS

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