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Things have gone from bad to worse.......

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  • Kara29
    replied
    Thinking of you Roxie!

    I hope things start to look brighter.

    Kara

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  • Roxie2007
    replied
    HI All, Thanks for all the support......I really need it now.
    I'm so worried about this new theory the dr. has. I would just die if I have to have bladder surgery again....I'm sure that would start the urethra pain and bladder spasms again....UGH!!!!! Y'all are great! Thank you! Roxie

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  • jen74
    replied
    I am so sorry you are going through all this Roxie. I am sending you Big Hugs.
    Jen

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  • Sarojini
    replied
    Ugh... I'm so sorry! But do keep your chin up. Let's hope that after all that blood you gave today, your doc will find a definite diagnosis for you

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  • Trishann
    replied
    Roxie, I am so sorry. Hope things start turning around for you.

    Just sending hugs, Trishann

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  • ICNDonna
    replied
    Hang in there. Hopefully one day soon you'll have a diagnosis and you can move on from there.

    Warm hugs,
    Donna

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  • GriffsMommy
    replied
    Oh no Roxie, I'm so sorry! I mean it's good that you may not have Polymalgia but obviously it would be really bad if you have to have bladder surgery. I wish there was something else I could say or do, but I will be thinking of you, if you need to talk, I'm here.

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  • Roxie2007
    started a topic Things have gone from bad to worse.......

    Things have gone from bad to worse.......

    Well we just got back from the new Rheumatologist. He doesn't think I have Polymalgia because I'm not responding to the Prednisone. He thinks that because I had bladder surgery 4 yrs ago and the dr. used a foreign matter called Durastat and injected it around my urethra that now my body is having a allergic reaction of sorts, to it…..and because I’ve had gastic bypass my auto ammune system isn’t working up to par to fight this reaction off….like normal people could…..anyway…..he took a 7 vials of blood…..and 10 xrays of my body parts………and did a temporal ultrasound (that showed that temple artery to be ok and not be Giant Cell Arteritis) and I go back and see him next week. And he’ll tell me more of what he thinks this problem is. IF this is all right…..that means I’ll have to go back to my urologist who did the surgery and have him undo it and do it differently……UGH!!!!!!!!!!
    On one hand I'm releived that I won't have to be on Prednisone and get a moon shaped face with all else that goes with steriod use......but I'm dreading thinking I might need bladder surgery and what that could do to my IC!
    Do these health problems EVER stop??? ever get better??? Ok I'm just majorly depressed now Thanks for listening........Roxie
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