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I've been thinking about the back massage thing done at PT. I know it will be a life long thing in order to help with the pain and I can't afford to have one done. Plus I can't go for PT for the rest of my life either. On the days it helps it is really nice. Life is good and I could do just about anything. Then when it wears off and pain is back to normal life is too hard to deal with. Guess I have had so much pain for so long it is easier to deal with the pain 24/7 then not to have it one day and then have it back the next. I'm hoping she will understand this tomorrow. Haven't been there long enough to know if she gets made if I don't do what she wants or not but mind wise for me it is to hard. Not sure what else she has thought of for trying either.
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She may surprise you and have some exercises you can do at home to help you feel better.
Hugs,
DonnaStay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
That's what my PT did -created me an awesome home program!
Hope it works out well for you.Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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to kadi
i'm interested about the home program your PT created. could you share more about it?
i feel like i should know more about this than i do b/c i work in rehab alongside other PTs and they don't know much about pain related to IC. at least not the ones I work with in a big acute hospital. we deal mostly with orthopedic injuries, not chronic pain.
there was a conference a while back that i wanted to go to but one of my friend's got married the same weekend and we have been BFF so i wouldn't have missed it for the world. but the conference was on myofascial release type massage specifically for IC & Fibro!!!! i hated missing it. that's the thing about the therapy world. a lot of what we learn is not learned in school---it's learned at conferences. anyway, of course i wanted to go for my own personal knowledge.
but i would love it if you told me more about it.
and i'm sorry the massage only helped for one day for the original poster. surely there is more the PT can do. he/she should be very willing to listen to you and be willing to try more things that will provide relief for an extended period of time.Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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I'm doing a home program with dialators. Its weird and hurts after. My doctor swears by it and is a leading female reconstructive surgeon/uro so I totally trust his judgement. I will give it a few more weeks!
Erika
IC diagnosed officially via cysto/urodynamics 1/26/07
Grade II Endometriosis diagnosed via lap 12/11/07
"Fall down seven times, Stand up eight."
"Life is a tragedy for those who feel and a comedy for those who think."
Current Treatments:
Interstim Since 5/25/07!
Birth Control
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