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In an awful fibro flare...

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  • dancemomof2
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  • HGC
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    I'm sorry you are having such a hard time right now. I hope this fibro flare passes soon.

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  • Sarojini
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    Sending lots of hugs

    I hope this passes quickly!!!

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  • ihurttoo
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    Sandy,

    Sorry you are feeling so rough! I just dont get it either regarding the rash and pos ANA but neg Lupus test! Did you feel horrible the day they tested you? Did you have the rash that day? It just doesnt make any sense to me! I wish like everything you could come up here and see my Rhematologist in Nashville. (Not that she would do anything different necessarily, I guess I would just feel better, since she d/xed me after so many others said I didnt have it.)

    The weird thing too is how great you feel on Prednisone...just like me. Of course with the +ANA, it is definately an autoimmune disease, so I suppose that is why it responds to the Prednisone. But, still, I know how horribly frustrating it is not to have a d/x and know how to proceed.

    I wish I could help you or knew what to tell you. But, I hope you start feeling better soon and get some answers soon too.

    Hugs,
    Amy

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  • Trishann
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    Many hugs coming your way and Sandy thank you for your help.

    Sending thoughts and hugs, Trishann

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  • SharonA
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    Very soft (((hugs))) heading your way. I do hope this ends soon so you can enjoy having your son home.

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  • callie0767
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    none

    sandy,
    keep your spirits up and i hope your flare goes away soon and you feel better. take care.
    courtenay

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  • tigger_gal
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    hugs to you Sandy, I know how you feel, I get to where I can't walk, and its hard to carry Jake. I hope you feel better soon.

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  • GriffsMommy
    replied
    ((((((((((Sandy))))))))))) Sorry that you're having such a horrible fibro flare. I hope you start to feel better soon. I can only imagine how bad you're feeling. I'm sure you son is just happy to be home and see you even if you are in a flare. Get well soon

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  • leelee88
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    (((((((Hugs))))))))) I am so sorry you are having such a rough time...I hope they find out what is causing all the breakout.. Maybe you need to see an allergist to see if you are having a reaction to something.. Well I am sorry I have no answers but I hope you start feeling better really soon

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  • humpieumpumkin
    replied
    Hey Sandy!

    I dont have fibro, but I have CFS so I understand the terrible fatugue, and i'm so sorry you are suffering. I can't relate to the pain, but i'm sure its terrible and I wish you didn't have to deal with it. You are a great mom, and you son is so happy to see you no matter if your healthy or in a flare. Hope you feel better soon. Thinking of you...
    Erika

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  • SandyRN
    started a topic In an awful fibro flare...

    In an awful fibro flare...

    I've been away from the board because I've felt so incredibly awful for about 2 weeks. I just can't seem to shake this fibro flare. I've got awful pain in my lower legs/shins, and I just hurt and ache all over. I've been sleeping about 12-15 hours a day, literally. I'm sooooooooooo tired I just can't seem to function. My bladder seems to be doing ok since I've been taking Macrobid 100mg every night before bed. So at least that's one thing I've not had to worry about.

    My poor house is such a mess and my plants need to be watered before they shrivel up and die. My favorite place is my bathtub and when I'm not sleeping, I'm soaking in a hot bath with a book to take my mind off the pain.

    I'm sick of being sick! Arrrrrrrrrrrgh.

    Oh, and to my dismay, the Lupus specific tests came back negative. My doctor and I are totally stumped as to what's causing the rash on my face, the all over body itching, the sores on my lips and nose, etc. It's so frustrating. I feel like I'm finally on the right track to being properly diagnosed, and the tests came back negative.

    So, anyway, thats a summary of my life for the past couple of weeks. My son is out of school and home from college and I could barely get dressed and put makeup on to greet him yesterday. I hate that he came home to a sick mom.
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