Announcement

Collapse
No announcement yet.

Sooooo Itchy

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Sooooo Itchy

    I am itchy as hell... and you know where... Imagine me in a huge lecture hall trying to stick my hand down my pants without being noticed. It's been well over a month (maybe two? three?) and my vulva is unbelievably itchy. I've tried two different kinds of creams and they just burn. I have tiny little bumps, but I think it's from scratching. I try not to, I really do, but it's so bad sometimes, I can't help it. What is it?!?! I don't have any kind of discharge or anything, so I don't think it's a yeast infection... What else could it be?
    **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

    "A bird doesn't sing because it has an answer, it sings because it has a song."
    "The honorary duty of a human being is to love."
    "The main thing in one's own private world is to try to laugh as much as you cry."
    "If you find it in your heart to care for somebody else, you will have succeeded. "
    "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
    "The most called-upon prerequisite of a friend is an accessible ear. "

    These are all the wise words of my hero: Maya Angelou

  • #2
    I agree with Briza,

    You need to go get checked to rule out an infection, If is an ifection and its not treated it will only get worse..But if its not an infection it could be a few other things.. When I have a vulvadynia flare I have the itchy feeling down there also it could be an allergic reaction to something you are eating.. I know when I eat anything with lots of sugar I itch down there..And one other thing. If you have changed your soap or laundry soap that can also make you have a reaction.. Hope this helps and you get some relief really soon.. I know this feeling and its VERY annoying..Good luck!
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      I agree that you need to see your doctor to find out what's going on. It could be that it's something very simple and curable.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        please go to the doctor and get checked.
        'The will of God will never take you where the Grace of God will not protect you.'

        Comment


        • #5
          I called my dr's office today and they said that I can wait until I get home from school to come in, but if it gets worse to see someone here. I'm okay with that, considering everything else that's going on. If it is a yeast infection or vaginosis, what could happen if I wait too long?
          **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

          "A bird doesn't sing because it has an answer, it sings because it has a song."
          "The honorary duty of a human being is to love."
          "The main thing in one's own private world is to try to laugh as much as you cry."
          "If you find it in your heart to care for somebody else, you will have succeeded. "
          "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
          "The most called-upon prerequisite of a friend is an accessible ear. "

          These are all the wise words of my hero: Maya Angelou

          Comment


          • #6
            have you had a biopsy? do you suffer with vulvodyina? I have itching too and know how you feel

            hugs

            x
            Started with symptoms 2004 after a severe infection.
            Was diagnosed with IC Feb 2006 after cystoscopy.
            Diagnosed with vulvodyina and PN in july 2006.
            Dignosed with ME and IBS Oct 2006.
            Currently taking Amytriptaline 50mg, regular pain killers and birth control!
            Also doing IC diet and regular use of heat packs.
            Still struggling with IC and controling my symptoms so looking for some help

            also recently had abnormal pap, CIN III and just had LEEP done 2007

            Comment


            • #7
              Unfortunately, I suffer from having an old gyn that doesn't really listen to me. I'm working on finding a new one when I get home for the summer.
              **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

              "A bird doesn't sing because it has an answer, it sings because it has a song."
              "The honorary duty of a human being is to love."
              "The main thing in one's own private world is to try to laugh as much as you cry."
              "If you find it in your heart to care for somebody else, you will have succeeded. "
              "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
              "The most called-upon prerequisite of a friend is an accessible ear. "

              These are all the wise words of my hero: Maya Angelou

              Comment


              • #8
                Hate to tell you this but I found out that IC can mimic a yeast infection. My instills have lidocane in them. 1cc reamins in the catheter after the instill. After I remove the catheter I allow the mixture in the syringe to drain over the entire vulva/ peritoneal area. I am amazed at the symptoms that I can have that end up being IC. Who would have thought that IC would cause sleeping problems? It is almost like IC is the root of many of my "evils".
                TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                I post to encourage and offer total support for rescue instillations.
                Find me on facebook: L. Clark Thomas
                Louann

                Comment


                • #9
                  So then if it were caused by IC, that would explain the itchiness without the discharge? Am I way off here?
                  **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

                  "A bird doesn't sing because it has an answer, it sings because it has a song."
                  "The honorary duty of a human being is to love."
                  "The main thing in one's own private world is to try to laugh as much as you cry."
                  "If you find it in your heart to care for somebody else, you will have succeeded. "
                  "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
                  "The most called-upon prerequisite of a friend is an accessible ear. "

                  These are all the wise words of my hero: Maya Angelou

                  Comment


                  • #10
                    Briza- that did it for me. I'll get it checked out this week. I'm so scared that one of these many things I'm dealing with now will affect my fertility in the future. I don't know what I'd do if the privilege of having children was taken away from me.
                    **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

                    "A bird doesn't sing because it has an answer, it sings because it has a song."
                    "The honorary duty of a human being is to love."
                    "The main thing in one's own private world is to try to laugh as much as you cry."
                    "If you find it in your heart to care for somebody else, you will have succeeded. "
                    "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
                    "The most called-upon prerequisite of a friend is an accessible ear. "

                    These are all the wise words of my hero: Maya Angelou

                    Comment


                    • #11
                      Don't think that I am saying that all itching is IC. But it is another symptom of IC.

                      My itching did not respond to treatment for yeast infection. That is exactly what it felt like. My urogyne suggested to "drain" the contents remaining in the syringe after my instill over the affected area. They offered to write a prescription for a lidocane cream but draining was sufficent to take care of the problem.

                      I didn't have any other symptoms and the itching did not get worse. Naturally I would have contacted them if the itching continued or additional symptoms appeared.
                      Last edited by L. Thomas; 05-05-2007, 02:10 AM.
                      TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                      My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                      Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                      Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                      I post to encourage and offer total support for rescue instillations.
                      Find me on facebook: L. Clark Thomas
                      Louann

                      Comment


                      • #12
                        I have had referred bladder pain that itched tremendously since my IC started. I used to scratch myself while I was asleep -- scratched through my clothes & was bloody before I woke up. As soon as I voided, the itching would go away. It was my primary symptom when I was a teenager, now it just reappears once in awhile. I guess I'm thankful I didn't feel it as pain, but it wasn't any fun.
                        IC & fibromyalgia since ~'77. Osteoarthritis since ~'88. Idiopathic Thrombocytopenia Purpura (autoimmune blood disease) since '96. IBS for who knows how long. Interstim implant 2/04, revised 6/06, replaced 11/12 & again in 9/17. Antibodies to thyroid since at least '92 (finally diagnosed & treated 1/06). Asthma & vocal cord dysfunction 12/06. Hypoglycemia '07. Perimenopausal at 37, menopause at 45. Pituitary & adrenal failure. Osteopenia. Grade 3 sacral fracture by S3-S4 at age 12, healed 14mm out of place.

                        Comment


                        • #13
                          rjyoon- wow! I'm definitely not like that. I'm glad you're not like that all the time anymore.

                          Bacterial Vaginosis is the one that you can get from wearing thongs, huh? I used to work in an obgyn office and I remember the girls in the front singing the thong song when they got in lab results
                          **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

                          "A bird doesn't sing because it has an answer, it sings because it has a song."
                          "The honorary duty of a human being is to love."
                          "The main thing in one's own private world is to try to laugh as much as you cry."
                          "If you find it in your heart to care for somebody else, you will have succeeded. "
                          "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
                          "The most called-upon prerequisite of a friend is an accessible ear. "

                          These are all the wise words of my hero: Maya Angelou

                          Comment


                          • #14
                            andrea,
                            please go get it checked. yeast can spread into the bladder (ew) and bv can cause premature labor (NOT that you're pregnant lol) and pelvic inflammatory disease if untreated long enuf. the flagyl will clear it up asap but DO get some difulcan b/c it will cause a yeast infection yuck.

                            hope you're feeling better!
                            (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

                            Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

                            I'd like to be on House, MD as a medical mystery.

                            Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

                            Connor & Mommy by the tree:


                            Connor with Santa...so happy!


                            I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

                            Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

                            I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

                            Comment


                            • #15
                              I just went to my gyne because I was having a discharge. I thought for sure it was bacterial vaginosis, but the culture was clean. By the way, Bacterial vaginosis will not cause PID unless you have the infection and have some sort of procedure done in the vaginal area that is invasive. At least that is what my gyne said. She said you dont even really need to treat it. She said the basic reason women get treated for BV is because of the nasty fishy smell in produces, which in my case when I had BV awhile back, it did not have any odor, so it does not always have to have an odor.
                              I doubt you have a yeast infection though since you have no discharge. I would see your doctor for sure though just to make sure. There are alot of things that can cause itchiness in the vulva area. There is yeast, vulva vestibulitis, Lichen Sclerosis, Lichen planus, the list can go on and on. It is always best to get checked. It could be something so simple like a allergic reaction to something as well. Hope you get some relief soon.
                              Jen

                              Comment

                              Working...
                              X