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    Hi , I am writing regarding my daughter. My daughter is been dealing with joint pains, She is almost 13 and she has had them as long as i can remember. She has been checked for Arthritis and all clear thankfully. She has mild scoliosis, which as she is growing looks better. She has also been treated 2 times for H-Pylori found after a gastroscope because of constant heartburn. She also lately has been complaining of a very sore stomach then she goes to the bathroom and she is better, it is usually worse in the mornings after she eats. She had a Cysto/Hydro done and she has signs of IC, could all these complaints really be related. Seems like we are always seeing different doctors for different things.
    Also would an IC doctor be the best bet if she can find one close to look at all the complains?

  • #2
    The joint pain could be fibromyalgia; it does occur in children, and it's pretty common among IC patients. There's a test the doctor (rheumatologist) can do, involving slight pressure on certain points on her body. If the slight pressure hurts in at least nine of the pre-determined spots, the diagnosis of fibro is made. Unfortunately, there's not a lot you can do about it.

    It really depends on the doctor. "IC doctors" are usually urologists or uro-gynecologists, and may not have the expertise to handle her joint pain and stomach problems. I know you said she has a history of h-pylori, but I'm wondering, has she been tested for food allergies? A lot of IC patients are also highly allergic.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC


    • #3
      Thats the firt thing that came to my mind to is fibromyalgia..It will make you hurt all over..

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

      Link to Patient Handbook:

      Diet Reference Sheet:

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.