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Wegener's or sarcoidosis

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  • ICNDonna
    replied
    I don't know about either condition. I just wish you could learn about them from a book and not experience! It's been an awful year for you; I hope you feel better soon.

    Sending warm well wishes,
    Donna

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  • GriffsMommy
    replied
    Sorry Sandy,
    I've never heard anything about them but I had chronic sinus infections when I was younger and boy I know what you mean about the sinus pain. They really can hurt like hell. I hope you get to the bottom of the problem and get some relief.

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  • Cardholic
    replied
    Dr. House mentioned "Sarcoidosis" once... I don't remember what it is, but it must be scary possibly having something that was mentioned on that show!

    I hope you get answers and relief soon!

    Leave a comment:


  • Babs RN
    replied
    Sandy-
    Never heard of Wegener's and sorry I dominated the conversation this afternoon. You should have said something.

    Hugs,
    Barb

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  • leelee88
    replied
    I have never heard of that.. But wanted to say glad you are back posting

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  • SandyRN
    started a topic Wegener's or sarcoidosis

    Wegener's or sarcoidosis

    I went to an ENT for this terrible lesion I have in my right sinus. He numbed my nose and stuck a scope up there and told me he thinks I have Wegener's or Sarcoidosis. I was supposed to get my blood drawn for a specific test that I haven't had done yet, but I've been too sick to go get it done. I've got a followup appt on Friday.

    Has anyone had any experience with either of these? I hate the thought of having yet another dx, but, it might explain some of these crazy symptoms I've been having.

    I've been using a steriod nose spray (Nasonex) and doing saline irrigations 3x a day and it's still not any better. This is one of the most painful things I've ever experienced. Who'da thought that your sinuses can cause you SO much pain?
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