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Kind of sad, could use support (long, sorry)

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  • Privatepain
    replied
    Thank you everyone!

    I appreciate all of the encouragement. I think I am just frustrated because everything seems to be flaring at once. My bladder hurts, my seizures are nonstop, my whole body aches (joints)...anyway, enough about all that. You all have been a great support!

    Blessings everyone -J

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  • dg2901
    replied
    Wishing you happier days ahead!

    Diana

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  • verdicries
    replied
    privatepain...

    i know how you feel...please, vent away, it makes me (and others i'm sure) feel less alone. i myself am going thru a horrific day and the ladies here have helped a lot. i'm only 28 but feel like 100...and have the medical issues to prove it lol.

    email/pm me anytime.

    tracy

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  • ICNDonna
    replied


    Donna

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  • mom_in_ma
    replied
    Sharon is right on target. Everyone who comes here understands and has been where you are right now. Vent as much as you need to.

    Leave a comment:


  • littlemyrn
    replied
    First, never apologize for venting here. I have had a bad year and have come hear alot to vent. My daughter who is 19 has had seizures since she was 4. At first they told me she would die and not make it out of the hospital. It took many years of trying different meds and many scary rides to the ER, but she has been on Neurontin since it's inception. She is pretty well controlled, no grand mals but also has not been able to drive. The part of the brain that is effected controls her eyesight in the left eye and although her neurologist ok'd her to drive she was scared. Well, she quit college came home and has a full time job and most nights gets off at 11:00 p.m. I or my mother (when I have my son at home/divorced) have to go and get her. She is going Friday to take her driving test and I pray she gets it, but am also afraid of her driving. I have told her she is only to drive to and from work which is only about 1/4 of a mile through a subdivision. But if she has a seizure she can not drive for six months (a law). I know she has been frustrated and I am sure you are too, I can't imagine not being able to drive. Where I live you must, due to being a suburb and no bus service, etc.

    I too get tired of being sick and seeing drs. like so many others here. So welcome and vent, scream anytime the urge hits you.

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  • SharonA
    replied
    That's what is go great about the ICN. Everyone who comes here understands. That's why Jill started the ICN. Please feel free to express yourself with posts and with poety. Getting all the frustration out that IC can cause is very therapeutic. (((hugs)))

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  • leelee88
    replied
    Anytime..

    I love poetry to I even write some here on the boards and share with my IC friends so if anytime you would like to share them that would be great!

    Leave a comment:


  • Privatepain
    replied
    Thank you both

    Thank you both so much for replying. I actually feel a little better just writing about it. I usually do...I like to write poetry; it's an excellent way to vent. But sometimes, I just need to "tell somebody." Even if it's just on the computer. A therapist can do wonderful things, but everyone needs to talk to someone who's "been there" occasionally. Family, friends, and therapists are a great support, but ultimately, they have no idea what it is actually like to be chronically ill day-in and day-out. Bless you for taking the time to respond. -J

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  • leelee88
    replied
    ((((((((hugs))))))))
    I am so sorry you are feeling so down.. I know I get like this sometimes..Please remember we are all here for you.. You can vent to us anytime.. I sure hope things get better.. If you need to talk you can PM me anytime..

    Ronda

    Leave a comment:


  • Babs RN
    replied
    I know how hard it is to have so many things wrong and be so young. I am 36 and when I tell people what has happened to me, I get "But you're so young." Do ya think I asked for all of this to happen? I also know what it feels like to have an education and then spend most of your time at the doctor...it stinks. Hang in there and feel free to vent anytime, ok? That is what we are here for!

    Hugs,
    Barb

    Leave a comment:


  • Privatepain
    started a topic Kind of sad, could use support (long, sorry)

    Kind of sad, could use support (long, sorry)

    Hi,

    I know I am new to the boards, but I could really use some support. I am usually a very positive person, but lately, I feel like I could just sit and cry like a baby.

    I'm just going to vent a little so I don't break down emotionally.

    My list of medical conditions reads like the chart of an 80-year old woman, and I am only 31.

    Chronic/Refractory Epilepsy
    Lupus
    Sjogren's
    Celiac
    IC
    GERD
    The list continues on and on...but I'll stop.

    I have been poked, cut, bruised, scanned, and biopsied more times than I can count. Honestly, it is too much to think about at once. To be frank, I hurt somewhere on my body all the time. I dread "routine" check-ups at my specialists' offices because they always find something new wrong with me, usually via bloodwork or biopsy.

    I have a Master's degree that I worked so very hard to achieve, but I am currently unemployed. No one wants to hire a person with chronic seizures who can't drive. I take between 20 and 30 prescription pills a day just to survive.

    The part that makes me so mad I could scream is that I truly want to be an active, productive person in society. I am a good, happy person who is stuck in the body of a sickly person.

    If you read this, thank you. I just needed to "unload" on someone besides my husband.

    God Bless. -J
    Last edited by Privatepain; 05-30-2007, 12:15 PM. Reason: wording
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