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  • #1

    Detrol question

    Hi all- haven't been very active here lately because I thought that I really had a handle on things. Ha.

    I'm wondering if anyone else had this experience with Detrol LA (4mg to be specific) wherein it worked really well for ~3 months and then declined in effectiveness. Why did most of you who tried Detrol end up going off it?


    I did try introducing some foods back into my diet, but it seems like the Detrol just isn't working as well in general. I almost want to ask my uro if I can double up my dosage or something- it really was helping for awhile here.


    Any thoughts? Thanks for listening.
    I had major surgery for a genetic rectal prolapse in Aug.05 which I believe links directly to my new Dx of....PFD! March.08. I'm working with a great PT named Zelda- I think the world of her I have the same feelings for the team at the Kaiser Center for Pelvic Pain in SF- amazing people.

    I've had a cystoscopy, 2 cat scans, falied a potassium test and have had about 50 clean UA's.
    This is my hot water bottle- the fish. I love him!
    I'm also a big fan of my "Electric Fish," the TENS unit. Very helpful in a flare!

    **I'm getting Botox next week!**
    I take:
    Oxybutynin 10mg
    Elmiron 100mg 3x day
    Gabapentin 300mg 3x day
    Antihistamine, CystaQ, Bc, & Thyroid (125mcg) nightly

    I've also taken:
    Detrol LA
    Oxybutynin patch and lower dose pill
    Amitryptiline and Nortryptiline
    Tags: None
    • #2
      I was on Detrol for a few weeks; had to come off of it due to retention.

      If you feel you were benefiting from the medication, by all means relay this information to your Dr and he/she will be able to tell you if its OK to increase your dosage.

      Feel better!
      Diana
      PS--your hot water bottle is very cute!
      (\__/)
      (o.O )
      (> < ) This is Bunny. He's on his way to world domination.

        Comment

        • #3
          Detrol did nothing for me so I was put on Enablex which seems to work well..
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
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          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #4
              You might want to eliminate the foods you added to see if that helps before changing medications/dosages.

              Just a thought, but some foods can be very irritating.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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                • #5
                  Jess my doctor told me that double the dose will not do a better job, but I am taking Detrol LA. I have been trying to get off of it, because the heat problems I have with it. Just being out in the sun short period of times, I came close to having a heat stroke. I love being outside but this medicine was making it difficult to do so.

                  I will still take it when it is really bad and that seems to really work for me. My other doctor has me on pain pills and maybe that is why I don't have to take it all the time. I know detrol is not a pain pill but it help with spasms and I think the pain medicine is helping with that problem.

                  I do think sometimes medicine after awhile don't work as well. Maybe taking something with it will help.

                  Hope you can find something that will work for you.

                  Take care, Trishann

                    Comment

                    • #6
                      I tried it years ago and it did nothing for me, that's why I went off it.

                      Kari
                      Kari

                      I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

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