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  • i don't know where else to post this...question, please help!

    i am having a defecography done monday to determine the severity of my rectocele...the lady told me to prep i am to use a tap water enema at 2pm on sun, stay on a clear liquid diet...OH, i am also to drink 2 OUNCES OF CASTOR OIL. that's a lot! THEN monday morn at 6am i am to take ANOTHER tap water enema until "clear" --till WHAT'S CLEAR? i'm clear?? and isn't taking more than 1 enema in a 24 hr period VERY bad for yoU?? plus, with the 2 oz of castor oil...don't you think ONE enema would clear me out?? oy! they weren't very much help at the hospital.

    can anyone give advice?
    thanks,
    tracy
    (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

    Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

    I'd like to be on House, MD as a medical mystery.

    Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

    Connor & Mommy by the tree:


    Connor with Santa...so happy!


    I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

    Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

    I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

  • #2
    I have no idea what to tell you, but I hope all goes well and you get the information you need from the test. good luck!
    mom_in_ma

    Comment


    • #3
      Tracy, I had to look up rectocele because I had never even heard of it. I knew that it was something with your bowels. Ouch, that does not sound fun. I looked up info on the defecography on the web and came up with this website, it seems to give different instructions though

      http://www.motilitysociety.org/patie...015%202005.pdf

      I don't know if that helps you at all, it looks like it's telling you to do two enemas w/in a shorter amount of time. I hope everything goes okay and you get some relief. Let me know how it goes, I'll be thinking about you.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment


      • #4
        Enemas until clear means that you need to repeat until the water comes back out clear. It's so there won't be any fecal matter in your lower bowel when the test is done. Castor oil is horrible stuff to swallow, but there's a way to take it that makes it easier. If you get some low acid orange juice and mix the castor oil with the juice in a very large glass, then add a tiny bit of baking soda, it will foam like crazy --- you can drink it down quickly while it's still foaming and the oil isn't nearly as bad.

        I know repeated enemas aren't healthy, but for a test, it should be okay.

        Good luck!
        Donna
        Stay safe


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        [3MG]

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        Comment


        • #5
          Its important to follow your Dr's orders; he/she is expecting you to have done as instructed. Doing a bowel prep for such a procedure is not going to hurt you. Like mentioned, "clear" means that whats being expelled is just that, clear liquid.
          I've had to do bowel preps a couple of times for different procedures and while they're no fun and can make you feel a bit 'off', once the testing is over you can resume normal eating habits and will start feeling back to normal shortly thereafter.
          If you're still unsure, by all means ring your DR and have him to repeat his orders to you.

          Wishing you well,
          Diana
          (\__/)
          (o.O )
          (> < ) This is Bunny. He's on his way to world domination.

          Comment


          • #6
            HI Tracy!
            I haven't had that test but other yukky ones that require enemas.....and none are fun. I wish you luck with the test and hope all goes well. Roxie

            Double Spinal Cord Stimulator surgery 8/09
            Unsuccessful MiniArc sling surgery 12/07
            Dx'd Hypothyroid
            Dx'd Chronic Axonal Neuropathy & Myopathy
            June 2007
            Dx'd IC May 2006 (after suffering for 25+ yrs!)
            First Cysto 1979
            First Hydro 1981 (Many treatments since then!)
            Collagin"Durasphere" injections for urethra
            Gall bladder surgery Aug. 2004
            Gastric Bypass Dec. 2004
            Dx'd: Barrett's Esphogus July 2004
            Dx'd: Vaginal Atrophy 2005
            Bladder surgery 2000
            Dx'd: IBS 2000
            Hysterectomy (fibroids) 1999
            Laminectomy 1989
            Dx'd: Degerative Disk Disorder 1989

            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

            Comment


            • #7
              THANK you everyone. christine, i read the link you sent...and this says to do an enema 2 hrs before exam! i was told to do one TONIGHT @9pm and then tap water enemas @6am till clear. to be honest i called this am and of course there was no one to help me...dumb of me to wait till the last minute i know...and to be honest the ppl at the hospital weren't much help when i MADE the appt to begin with. my dr isn't even doing the test (he doesn't have access to this hospital & it's the only one that does it). grrr.

              i am scared to death over this test...thanks for your support everyone. will let you all know how it goes.
              (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

              Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

              I'd like to be on House, MD as a medical mystery.

              Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

              Connor & Mommy by the tree:


              Connor with Santa...so happy!


              I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

              Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

              I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

              Comment


              • #8
                Hi,

                I had posted a reply. I'm not sure where it went. Oh well, I guess it's floating around in cyberspace somewhere. I hope all goes well with your testing. Blessings. -J
                Most days I'm the eternal optimist , but on the days I'm not, for your personal safety and sanity's sake, stay away.

                I have too many chronic illnesses to mention: so I won't.

                "I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks

                "I will never give up on my dreams; I will simply modify my path for reaching them." -J (me)

                Comment


                • #9
                  sending you big hugs and hope every thing goes ok.
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment


                  • #10
                    A rectocele is the prolapse of the rectum. It is located at the very end of the large intenstines/colon. When you are examined the MD is probably wanting to make sure there is no fecal matter remaining in the rectum.

                    I had pelvic reconstruction and one of the procedures included repair of a rectocele. I would be happy to tell you my experiences. Just PM me.
                    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                    I post to encourage and offer total support for rescue instillations.
                    Find me on facebook: L. Clark Thomas
                    Louann

                    Comment


                    • #11
                      I'm guessing you're feeling crappy Tracy, but I hope your test went well today. Tell us how it went when you feel up to it.
                      Christine



                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus

                      Comment


                      • #12
                        Update

                        so the test was horrible. drank tons of barium and then they shot barium up my butt AND into my vagina. long story short the doc said i suffered from severe pelvic floor descent (aka dysfunction...gee like i didn't know that) AND a quite severe rectocele...i saw the films, it was ugly! so basically the results will be forwarded to MY doc and we will schedule surgery--which HAS to be soon cause hubby's a teacher and basically home all summer so i can recover.

                        i am beyond angry that it took almost 8 months for someone to BELIEVE that the rectocele was bad enuf for surgery. i knew from month ONE.

                        anywhoo...i feel icky b/c the barium is burning my vulva and my urethral spasms are in full swing. back to the toilet.

                        will let everyone know when surgery's scheduled.

                        THANK YOU everyone for your support. it is truly appreciated.
                        (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

                        Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

                        I'd like to be on House, MD as a medical mystery.

                        Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

                        Connor & Mommy by the tree:


                        Connor with Santa...so happy!


                        I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

                        Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

                        I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

                        Comment


                        • #13
                          I'm so sorry Tracy I sent you a message on myspace too. At least you can have the surgery done finally and hopefully start to feel better after it's over. Ugh, how much can one woman take though! I feel so bad that you have to go through all of this.
                          Christine



                          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                          I have tried every oral medication as well as rescue instills and DMSO.

                          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                          Also proud mom to the best Bullmastiff on earth, Claus

                          Comment


                          • #14
                            I have also undergone pelvic floor reconstruction surgery with a rectocele repair. Please let me know if I can help you in any other way.

                            Hugs,
                            Barb
                            (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                            [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                            :angel: IC Angel Volunteer Coordinator :angel:
                            :) Contact me via PM or e-mail if you would like to help
                            I have learned all about life in 3 words: It goes on! :D--Robert Frost
                            PCOS 7/85
                            RSD 7/94 :headbang:
                            Endometriosis 9/98 :toilet:
                            Antiphospholipid antibody syndrome 9/99
                            Kidney stones--too many to count
                            Factor V Leiden mutation 10/02
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                            "Spirit is an invisible force made visible in all of life"--Maya Angelou
                            "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

                            Comment


                            • #15
                              Believe me, you will feel so much better after the surgery. Remember what I said. Recovery is long. I was in the hospital 3 days. I did have 3 different prolapse, a bladder sling, bilateral oophorectomy and scar tissue removed from the pelvic floor.

                              The first week I was up for about 30 mins and slept for 2 hours. The next week I was up for 45 mins and slept for about 1 ½ hours. I was able to add about 30-45 mins each week.

                              Don’t try to rush things.. You will have pain if you try to do very much at all. It will take you all the next day to recover when you do too much. I was totally pooped. Like I said, the morning after surgery I told my gynecologist I felt like Sampson after Delilah did him in.
                              Last edited by L. Thomas; 06-13-2007, 03:48 PM.
                              TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                              My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                              Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                              Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                              I post to encourage and offer total support for rescue instillations.
                              Find me on facebook: L. Clark Thomas
                              Louann

                              Comment

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