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Blue legs = pain = Raynauds?

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  • #1

    Blue legs = pain = Raynauds?

    Woke up today with both legs blue from the knee down...they are so painful it hurts to walk, and it hurts to have my legs hanging down from a sitting position. I'm assuming this is the Raynaud's flaring its ugly head, but I just don't really know....

    Anyone else with Raynaud's have this awful leg pain? It's really making a total mess out of my day. None of my pain meds help it except advil which I can only take on an occasional basis.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.
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  • #2
    Blue legs

    Sandy, if my legs were blue, and hurt when hanging down I would run to my doctors office to be sure I didnt have some impairment in circulation or a small clot?
    Sammi

    Sammi

    Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
    Diagnosis: IC, PFD (both in remission)

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    • #3
      ((((HUGS))))) Sandy. Sounds yucky! Hope you feel better today.

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      • #4
        re:swollen

        Sandy,

        I am so sorry you are going thru this. I am praying for you. You have been such a blessing to myself and others. Hang in. Please go to the doctor, you have experienced so much pain and sorrow. Just wanted you to know you are in my prayers. hugs

        J.J.

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        • #5
          SandyRN,

          I have Raynauds but it usually only affects the digits of the extremeties or my hands or feet, not the entire leg area. That sounds more like a possible blood clot....

          I'd go see your doctor immediately as it sounds like a possible severe cirulation issue moreso than what Raynauds causes cirulation wise.

          I pray you feel better soon and its nothing serious On another note...it also could be your BP medication...have you upped it lately or changed a dose at all? Just a thought...but either way I'd have it checked out with your Rhumy

          Brittany

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          • #6
            I've had numerous tests for clots, circulation, etc. I guess that by elimination they are calling it Raynauds. The leg pain has eased up but not until I laid with my legs elevated for hours on a heating pad. Even with the heat my legs were still splotchy blue.

            :::scratches head::: I'm a walking, talking medical mystery sometimes!

            Thanks so much for the support!
            *IC-- Summer 2004; PFD--October 2005
            *Fibro--Fall 2000; CFS-- Fall 2000
            *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

            Total Abdominal Hysterectomy--adenomyosis--9\08

            04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

            Comment

            • #7
              sandy,
              i have never had it as severe as what you're describing, but i've woken up (mainly in winter/fall) with my legs so blue/purple and swollen that it is near impossible to move...and just TOUCHING them is agony. if it hasn't subsided, maybe a doc visit is in order?

              i used to use compression stockings (or circulation stockings?) years ago and i think they helped. have you ever tried them? i think i'd like to start again. my insurance company LOOOOOOOOVES me lol. i just give them more and more to pay out. i think i meet my deductible the 1st week of feb HAHAHAHA.

              hope you're feeling better.
              (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

              Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

              I'd like to be on House, MD as a medical mystery.

              Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

              Connor & Mommy by the tree:


              Connor with Santa...so happy!


              I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

              Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

              I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

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              • #8
                The compression stockings are a great idea. The theory was that my ciruclation was bad, but I had doppler studies of both legs, and tons of other tests that show the blood is flowing like it should. It's so confusing...I know most people with Raynaud's only have it in their hands and feet, so of course I've got to have the extreme symptoms.

                My legs are much better, just really sore from all the work I did this weekend. I think I will buy a pair or two of those stockings, I think they might help the pain when it flares!

                Thanks so much!

                Sandy
                *IC-- Summer 2004; PFD--October 2005
                *Fibro--Fall 2000; CFS-- Fall 2000
                *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                Total Abdominal Hysterectomy--adenomyosis--9\08

                04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                Comment

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