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  • Normal # of UTIs per year?

    I am wondering what the current thinking on this is. My uro told me that it is considered "within normal limits" for a woman to have 6 or so a year b/c of our short urethras, etc.

    What have others been told or is there documentation on the web about this? I went back over my medical diary for the year and found that I have "only" had 4 UTIs this past year, but I would really, really like to do the antibiotic after sex thing. I am so sick of the pervading thought on my mind during sex being, "Will I end up with a UTI over this?" I already do the shower before and after and drink a glass of water before and after and then pee right after sex.... It is getting old.

    I don't know that my uro would be opposed to the antibiotic thing, but I'd like to have my ducks in a row before approaching him. Thanks.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

  • #2
    Hi Kim,
    I have about one UTI per year but I know it is common for women even without IC to have them because our urethra is like 3 or 4 inchs long. Those germs don't have far to travel!

    I take a macrobid prior to sex because it keeps me from flaring as bad. I thought I had an infection after sex and you know the routine, you go in and no infection. I tried taking the macrobid a few times before sex and I did not hurt as bad from my sex flare. So I told my uro and she said she would give me a pres for macrobid. She said they had lots of patients that have to do the antibiotic thing or reasons other than mine. Some women do get lots of UTI's and do not have IC. I has really helped me!

    I have a small hometown pharmacy I go to and know my pharmacist. I turned in the pres and did not look at it. Boy did my face turn RED when I saw the directions!!! Take one prior to sex-ha Then for them to know that the bottle lasts a longgggggggggg time too I had her change the directions the next time to say--take as directed.

    hugs
    brianna

    Comment


    • #3
      Hi Kim,

      I am so tired of uro's telling us females that we have some very imperfect and too short, narrow and unimportant urethra's. I have been hearing this all my life, and I used to believe this. Now I see it differently. This is the way our Maker made us and we are just fine and not degenerate.

      It seems that men are soooo proud of their's and I guess they think about it all day long, and do not understand what woman are feeling. I think male urologists think this way still, old fashioned ideas about woman. Ours is hidden but still very important to us.

      In regards to having repeated urinary tract infections I want to quote Dr. Broda O. Barnes of the Broda Barnes Thyroid Foundation( world famous Endocrinoligist) This is from his book "Hypothyroidism the Unsuspected Illness"
      My Dr. says that Dr. Barnes should have been given a nobel prize for his lifelong work in thyroid diseases.

      Quoted from his book: "Bladder infections are much less common than respiratory infections but they too may suggest hypothyroidism--again because of lowered resitance. Among the susceptible , recurrences are frequent and the end result of repeated infection may be kidney failure. In my experience, resistance to bladder and kidney disease in patients with low thyroid function can be increased greatly and readily with thyroid therapy."

      This is found on page 97 in his book, In the chapter titled "Infectious Diseases: Why, for some, So Many"

      In this chapter of his book he also talks about our bodies defences against all infections. I would quote more but I must go get to work painting my bedroom.

      For any who want to understand how thyroid affects your bodies ability to risist infections I suggest going to a book store or library and read that chapter. Make very certain that your are not a victim of a very subtle low thyroid. It could make a big difference in the quality of your life! You might not have to be taking antibiotics before or after sex.

      I learned this the hard way and now on 3 1/2 grains of Armour thyroid I have never had another urinary track infection. And less upper respiratory infections like the common viral colds and flu's. Before you condem this do the research and study this, this can be life-changing.

      Personally, I like the diversity here. I like to hear all sides so I can be the most informed that I can. Take care now. wink

      January is Thyroid Awareness Month, tell others!

      Comment


      • #4
        Unfortunately, the female anatomy does include that short urethra, which is also hidden in a wonderfully warm, damp atmosphere where germs can prosper. Some of us are more susceptible to infections than others.

        I think it's wise to each of us to have thorough physical examinations annually, including blood work to rule out such things as blood sugar or thyroid problems. Both are easily diagnosed. I know it seems like we're always at the doctor's office with our IC, but it's also important to see our primary care docs for other things too.

        Sending warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          I have a physical every year - including all the bloodwork, so it's not that. I also see my GP often for other issues.

          Although I will tuck your info in the back of my mind, Silverfox, b/c I know it didn't include the specific thyroid tests you have referenced before. I have looked at the hypothyroid symptoms on a webpage that also spoke of those tests and I did not feel I had many of them at all.

          Anyway, thank you all for your input. I may have to google this or something. I hate to think I just have to live with frequent UTIs, but if I do I will. It's no worse than IC. wink
          Kim

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

          *****************************

          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

          Comment


          • #6
            Hi Kim, as you know I get chronic utis and my uro said stress will bring them on and also low immune sstyem too. He started me on antiboit therapy, take one cipro every other day and now I have to take two during the day, one in morning and one in evening. I don't have sex. I do see my pcp and I am seeing him on Friday. I do have low thryoid but I don't think that is what causing my utis. There has to be other factors that causes utis. I don't empty my bladder out complelty and then the buggies get in there. I am sorry that I can't help you here. I wish you luck in search of your research.
            Love you.
            Hang in there , There is hope.
            There is hope. Prayer works.

            Love, Debbie

            Comment


            • #7
              Thanks, Debbie. Has your uro given you a number for what is considered "normal" in terms of UTIs per year?

              In terms of thyroid, here is what I found on what seemed to be a good site. I plugged my most recent bloodwork (June of 2003) into it.

              http://thyroid.about.com/cs/basics_s...M=ss12_thyroid

              At most labs in the U.S., up until late 2002, the normal range is from around 0.5 to 5.5. That range changed to .3 to 3 as of early 2003. If the TSH level is at the higher end of the range, or above the range, your doctor may determine that you are hypothyroid (underactive thyroid.)
              My TSH was 1.13 - lower end, but certainly not low.

              *If your doctor ran a test called Total T4 or Total Thyroxine, normal range is approximately 4.5 to 12.5. If you had a low reading, and a high TSH, your doctor might consider that indicative of hypothyroidism.

              *If your doctor ran a test called Total T4 or Total Thyroxine, normal range is approximately 4.5 to 12.5. If you had a low reading, and a low TSH, your doctor might look into a possible pituitary problem.
              My T4 was 8.8 - right smack in the middle.

              I really don't think thyroid is my problem. I'll certainly talk to my doc about the other tests come this june when I will have new bloodwork, but I don't see a need to do it sooner.
              Kim

              Diagnosed August 2001

              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

              *****************************

              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

              Comment


              • #8
                Hey, Deb! scream Check out this article - it is really informative. I don't know how accurate, but it seems good. It's about UTIs in general, and I know we have already read a bunch about them, but it still had a lot of info I wasn't aware of.

                http://www.bestdoctors.com/en/condit...uti_060200.htm
                Kim

                Diagnosed August 2001

                Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                *****************************

                “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                Comment


                • #9
                  I went back through my medical diary to count up how many UTIs I have had since getting IC in 2001. If I look at the past 12 months I have had 4.

                  BUT, if I go "calendar year" starting in 2001, I had 2 in 2001 (one after my cysto w/ hydro, so I don't really "count" that one), 2 in 2002, and 3 in 2003. Funny thing is, the year I started the showering before and after sex and all that - I had one more than the other years when I wasn't doing that. lmao

                  I am going to wait to see what this year brings. I haven't had as many as I thought I had. Still more than I'd like, but not as bad as I thought.
                  Kim

                  Diagnosed August 2001

                  Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                  Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                  I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                  *****************************

                  “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                  “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                  Comment


                  • #10
                    Yeesh what a pain in the bladder! eek Good luck with the search, Kim! Let me how the research goes. I know you already know lots and lots on the subject, but a doc once told me what Deb said, that not emptying your bladder can lead to more UTI's. Sounds like you are a clean person that's for sure! Good luck on the quest, hope you find something that helps.

                    Hugs and love,
                    Jess grouphug kissing
                    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

                    Comment


                    • #11
                      Thankyou so much for that link Kim on utis. It is very informative. I need to start making a medical diary and writing down my sympotms and pain and utis. I used to have journals I wrote in. I think it now time for a medical jouranl to help me and my drs. thanks again. grouphug grouphug
                      Hang in there , There is hope.
                      There is hope. Prayer works.

                      Love, Debbie

                      Comment


                      • #12
                        i have one to two infection a mth. it never fails right before my mthly i get an uti infection when i go to the doctor it ALWAYS comes back i have one so i live on leviquin 250 mg heparin marcaine perocets 10.325 and klonopins 1mg and the way my nerves are right now the klonopins are not helping. which has sit me into a flare banghead Sorry everyone I started Venting some i guess i had to get it out i'm sorry. frown
                        Medicine taken daily or as needed:
                        1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                        2. MS.Cotin 100mg 3x daily
                        3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                        4. Fentanyl 100 mg Change every 48hrs.
                        5. Gentamicin 80mg install after each rescue treatment
                        5 Leviquin 500mg self start as needed.
                        6. Klonopin 1 or 2 daily as needed.
                        7. Prosed/DS as 1 every 6hrs as needed.





                        I have IC, but IC doesn't have me anymore!

                        Comment


                        • #13
                          Kim,

                          Wish I could help you here but I got to thinking after I read your post and realized my last UTI was 10 years ago way before IC and it was the second one of the only 2 I've ever had in my life. Wonder why some are prone to UTI's and others aren't?? Hmmmmmm

                          Success

                          Comment


                          • #14
                            Kim, I amnot sure if this is correct or not but I seem to remember being told that it was normal for women to have up to 12 UTIs a year. This is just one of those things that stick in my mind from a medical technology class that I took when I was in college. hi
                            Louise
                            West Virginia Interstitial Cystitis/Prostatitis Support Group Leader
                            [email protected]

                            Comment


                            • #15
                              Well, that sure stinks, doesn't it? lmao
                              Kim

                              Diagnosed August 2001

                              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                              *****************************

                              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                              Comment

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