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Leaky Gut Syndrome
My uro mentioned this to me as maybe an alternative to being diagnosed with fibromyalgia. I am just curious as to what this is and would love to hear experiences. Thanks.
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Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world! -
Jes,
Leaky gut is a inflammation in the gut lining. It's usually associated with autoimmune disease.
Diseases in its category are: Fibro, cronic fatigue syndrome, and there are more.
I suppose that's what your uro meant by an alternative to your fibro.
Like our IC being a defect where the bladder wall is missing its protective lining or there are holes in it...well its got a defect in its intestinal lining.
Well hope I answered something for ya.
Take care.Tons of support,
Jaime
IC angel helping families in need for the holidays. [email protected] -
HUGS Jess,
I don't know what it is but what jamie said sounds scary hope that is not what you have. I just won't allow that.
Brat'The will of God will never take you where the Grace of God will not protect you.'
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Hi Jaime,
Thanks for the info. I'm still a little confused, but I'll research it some more.
Cindy, I hope your right!!! lmao
Hugs and love,
JessMommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!Comment
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It confuses me also. (Which isn't too hard.)
Anyway here is a web site if you want it...
www.health-n-energy.com/leakygutart.htm
Hope you don't have it either.Tons of support,
Jaime
IC angel helping families in need for the holidays. [email protected]Comment
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I found a site in the UK with what looks like a pretty clear explanation of leaky gut --- it's at http://osiris.sunderland.ac.uk/autism/gut.htm
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Thanks so much for the info Jaime and Donna, I am going to talk to my internist about this.
grouphug kissingMommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!Comment
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Dr. Crook, author of The Yeast Connection, has a site that explains this, also:
http://www.yeastconnection.com/Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
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I have researched Leaky Gut Theory.
It is an 'alternative' diagnosis and is not usually accepted by the medical profession.
Here goes for the 'official explanation':
Leaky gut is an inflamatory condition in which intestinal epilethial tissues lose their integrity and junctions between cells become semi permiable, allowing abnormal reabsorbtion of intestinal contents causing a wide range of disorders affecting the immune system, the autonomic system, respitory and endochrine. WOW!
My interpretation is: The gut is where all our nutrients etc are absorbed. Due to stress, allergies, internal upsets the gut can misfunction. The gut can become leaky (like IC bladders are supposed to be). This malfunction can result in allergic/immune responses and can be the major cause of lots of non specific diseases/conditions such as fibro, joint pain, IBS, acne, fatigue.
The connection is that bladder, gut, nose passages etc when they have abnormal responses within them they can produce disease i.e. IBS, IC and asthma as examples.
The 'belief' is that by correcting a leaky gut (if you can) some of your symptoms may disappear.
Most naturopathic books have a section on Leaky Gut and it really intrigues me.
If anyone finds out anything or has any success in this way keep us posted!!
Luv VonxxComment
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I am convinced after 32 years with IC that there is a large autoimmune component. It makes sense that leaky gut could play a role. I've started taking fish oil and L-glutamine.Comment
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I've done a TON of research on Leaky Gut and how it relates to my own IC. I'm sure you would find this interesting. The exciting thing about the Leaky Gut and current research is that it has recently been 'proven' in traditional Medicine by Dr. Alessio Fassano. How exciting! I'm writing a whole big post in this forum about the leaky gut...you can find it by going to Forum --> Patient stories-->Introduce yourself and share your story --> "On the road to remission through grain free eating" (My post). I'll try and post a link if the IC network allows it (I think links need to be approved by a moderator)Diagnosed with IC since 2008. What I'm doing: 1. Reduce Stress (Sleep...10:30 bedtime MAX 2. Diet: Free of Grains, gluten, soy, dairy, eggs, some nightshades, and I avoid foods on IC list when possible, although IC-list foods don't bother me as much as these other things do. 3. What do I eat? At first the garbanzo bean pattie was my staple (http://tinyurl.com/bddoas4, look for my post). Now I'm on the Auto Immune Profile diet/AIP (Google 'Paleo mom AIP' for more info). 4. IC THESIS: IC is for me and many of us, a systemic issue. I'm looking into Hormone probs, Food intolerances, Leaky Gut, Candida, and oxalate issues. 5. Chronicle of my journey: Read about my ongoing learning here: http://www.weallseeic.blogspot.com I kiss my family every day. Stay positive everyone. I know we can beat this! IMPORTANT UPDATE ABOUT MY USER NAME: I had to redo my registration/username because I messed something up on my original registration (Something to do with my signature? HTML codes? Blah blah blah. Donna and I tried to figure it out, but alas, we decided the best thing I should do is just get a new userid. My new user ID is minharopaola+ 
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Just be sure you don't post a link to a sales site or one that gives direct medical advice. It's best to ask first. Feel free to send me a private message and I'll get back to you as quickly as I can.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Sounds good. Thanks!
MPDiagnosed with IC since 2008. What I'm doing: 1. Reduce Stress (Sleep...10:30 bedtime MAX 2. Diet: Free of Grains, gluten, soy, dairy, eggs, some nightshades, and I avoid foods on IC list when possible, although IC-list foods don't bother me as much as these other things do. 3. What do I eat? At first the garbanzo bean pattie was my staple (http://tinyurl.com/bddoas4, look for my post). Now I'm on the Auto Immune Profile diet/AIP (Google 'Paleo mom AIP' for more info). 4. IC THESIS: IC is for me and many of us, a systemic issue. I'm looking into Hormone probs, Food intolerances, Leaky Gut, Candida, and oxalate issues. 5. Chronicle of my journey: Read about my ongoing learning here: http://www.weallseeic.blogspot.com I kiss my family every day. Stay positive everyone. I know we can beat this! IMPORTANT UPDATE ABOUT MY USER NAME: I had to redo my registration/username because I messed something up on my original registration (Something to do with my signature? HTML codes? Blah blah blah. Donna and I tried to figure it out, but alas, we decided the best thing I should do is just get a new userid. My new user ID is minharopaola+ Comment
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Thanks. 22 day fast has helped Ic, gut still a problem
I've had IC for 32 + years. One of these days I'm going to write all the things I've tried, though I can't remember. My 22 day fast has done amazing things. Eating fruit now without upswing in pain. Very little pain in fact. Gut still a mess, partly from IC, part from all the good foods I've had to avoid, and partly from all the meds.
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I'm interested in the leaky gut connection to IC. I'm also looking into the possibility of Candida. I think it's worth giving it a try. We can do anything for three weeks right? I'll be removing fruit & sugar out of my diet and see if some of the flare ups calm down and if the skin dryness clears up.
Thanks for all the info. I'll be checking back.Comment
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