Things have taken an interesting turn for me. I've had a rupt. disc L5-S1 for years. It's worse and now includes a 2nd level S1-S2. Saw the neurosurgeon. I asked if this can be re' to the incapacitating bladder pain this last year as I've seen a few articles saying in a small number of IC patients, it can be. He thought not. Gave me 3 options: 1. spinal cord stimulator trial (retrograded specifically for bladder pain as opposed to interstim for urgency/frequency) 2. fix the back and see what happens 3. do both together. Prayed a lot for an answer. The disc suddenly blew out totally end of last week I think. The pain I've had for years moved from low back dead center to left hip/leg and it is excruciating but get this-the bladder pain almost totally resolved when the pain moved. Before when I lay down, I got excruciating bladder pain. Now when I lay down I get the severe hip/leg pain but bladder pain leaves. When I get up and move around, after 2 hours hip/leg pain leave and bladder pain returns. It sure would seem like a disc is moving on and off certain nerves. I get an updated MRI tues. The neuro is leaving for a month and can't offer me option 1. or 3. so looks like my decision is made for me. I hope that's a God thing. I'm anticipating a micro lammie next week by my local ortho who specializes in this. Going this route precludes a spinal cord stimulator for 6 mos. but really don't have a choice as I can barely walk when the hip/leg pain hit. But I am intrigued by this new and bizarre development. Can't help but wonder if the micro lammie might improve the bladder but can't let myself get my hopes up. Been there, done that but prayers appreciated!
Dianne at [email protected]
Dianne at [email protected]
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