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  • Pelvic floor dysfunction

    Has anyone been specifically diagnosed with 'pelvic floor dysfunction'? What treatments have been offered, and what if anything has been successful?

    Also, I remember some time back reading about a surgery to shorten muscles in the pelvic floor. Has anyone had that?

    I had the 'lidocaine challenge' a week or two ago & the urologist said that how dramatically I did/didn't get relief would determine whether or not my severe pelvic pain is IC (& whether the pain is from the bladder). It sure feels like the blowtorch/razor constant pelvic pain and burning urine symptoms are to do with the bladder. And the pelvic pain lessens significantly whenever I pee. But I didn't feel dramatic difference from the lidocaine/rescue instillation. I suspect the urologist will therefore determine that the current pain is not in fact coming from the bladder, & is not IC. Since that's specifically just what he does, IC, I'm afraid I'll be back at the beginning, without treatment or a specialist.

    I came across the ICA page, about pelvic floor dysfunction. So I wonder based on that, whether that might be what I have instead of IC.

    One urologist said he believes the pain I have is not urological. So, last question, I'm puzzled - if pelvic floor dysfunction isn't treated by a urologist, what specialty would treat it? Anyone know?
    Last edited by playethic; 02-17-2011, 09:22 PM. Reason: didn't make sense. clarity.
    ______
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per

  • #2
    I was diagnosed with PFD in 2009. I see a urogyno for treatments. I get trigger point injections in my muscles which calms them down. I also use valium suppositories and several creams, which come from a specilty pharmacy. I was also diagnosed with IC. I think PFD intensifies my IC because it squeezes my urethra making peeing harder. IF you have any questions feel free to send me a message. I hope you get some help because PFD is painful.

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