Am going to ask doctor if an ultrasound can be done just to see if something else is going on other then pre-menopause. This is killing the bladder, I'm having cramps almost all the time and really getting tired of having my period lasting up to a whole month. That is where the question comes in. They will want to do it both ways. Stomach and "down there" so has anyone else had the ultrasound done while having your period. No way to set up the time when I won't be bleeding and at the moment it might not stop for another 3 weeks. I think it would be gross but then it is part of life and it will be a woman doing it.
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Ultrasound done with period?
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I've had several while on my period, it really didn't make a big mess at all. It bothered me more than the tech.IC diagnosis 3 weeks ago.
Vesicare 10 mg once daily
IBS and Gerd-Zegerid
IC diet
Elmiron 100 mg three daily
Hydroxyzine 25 mg at night
Amitriptyline 10mg at night
Diovan 60/12.5 daily
Topral 50 mg daily
Zoloft 100 mg at night
Klonopin .5 twice daily -
I think you need to do this regardless of period or not, you won't be the first the tech has had to deal with.
These symptoms can indicate Adenomyosis. this is a link to a write about what mayo clinic has to say about it.
I am not a Dr. but your symptoms remind me of mine, so I was thinking you may want to read about it, and discuss it with your Dr.
Let us know how you ultra sound goes or what they find out about it.
Have a good day MGMyare with you all. May you all find a way to peace and joy in your lives.
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The only problem I had once with the vaginal ultrasound was when I was hemorrhaging so bad that they couldn't get a clear picture of what was going on. Other than that, I don't think normal periods interfere too much at all.
Take care and may all work out well for you.Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure.I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
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Appointment is set for Monday. Forgot I have to drink 4 glasses of water. Ugh, I will be waddeling from the car to the hospital and up the steps. He mentioned a condition that begins with the letter "M". Not much help I'm sure but no way I could spell it anyway. Let alone say it. Even the lady who had to make the apointment coudln't say it. Told her I didn't feel so bad.
I looked up the Adenomyosis. Could be it since my period has gotten worse since day one but will see what the ultrasound says. Had one done 12 years ago and everything was fine.Comment
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Hi
I wish the best for your ultrasound.
One time I had one the booking person gave me the wrong info, she said I had to drink 4 16 oz, bottles of water, 1 hr prior. It is an 1 1/2 hours drive to the hospital for me so I started to drink, I had not idea how I was ever going to do it, I thought it was too much water, but figured I should follow the directions, I knew if I got there and had not drank enough I could not drink more and have to wait to have the test I go at least every 1/2 hour, I someitmes can hold it an hour if I absoultly have too.
Well when I get in for the test the tech says who you are way to full, go pee 8 ozs and come back, well by then my bladder was in such spasam I couldn't go at all, it was a painful long process, finally after starting to pee I was able to go enough after a quite a few tries to have the test done.
The thing is drinking this much and streaching my bladder way out it was weeks before I could pee properly, the tech said (I have had the same tech for the most part for the last 20 years) no matter what I am told, to only drink 1/2 of the normal amount people are normally told to drink. My bladder never empties so I only need to drink a bit to make it full enough for the ultrasound
I am glad you looked up Adenomyosis, I am not sure but I think the only that shows up on an ultrasound with this is maybe a thickening of the uterus wall linning and maybe an enlarged uterus, but I think it may have to be quite advanced for this to show up.
But it gives you possilbities that you could disscuss with your Dr. It used to be thought that you had to have at least 3 kids to have this, but this is not true anymore, so if you Dr is not current about this may figure this.
Uros kept telling me my bladder capascity was to big for me to have IC, they would do a hydro and streach my bladder while I was awake and say I showed no signs of IC, it was not until I found a uro more familiar with IC that did a hydro underanastetic and filed my bladder much more than they would normally do, he said it clearly showed I had the classic signs of IC, but previous Dr.s had not seen it because they didn't realize they needed to streach my bladder so much more to see it. That because of urinary retention my bladder has been streached constantly and that they needed to take that into account when doing the test and they had not. I had 3 hydro's in one year. Not pleasant but I did end up with a diagnoses.
Let me know what your US shows.
MGMyare with you all. May you all find a way to peace and joy in your lives.
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All went fine. I didn't bleed all over and the lady never passed out from discust. ha So all in all it was ok. Had forgotten how painful it was. Exspecially those last 10 minutes. Plus my bladder was already filling up walking out for the internal part. She said "your bladder is filling up already". Like that was something she had never seen before. ha One part that did bother me (not sure about her. She never mentioned it) My period has an awful odor to it so I was sort of stinking up the place but soooooooooo hope she understood and I wasn't the first one with that problem she had taken care of. Now all I have to do is see what the results are when I go to Doc. Sure if something was bad they would have called. Think I might be the cause for the very high city river water problem. I peed a flood 3 times before I left the hospital and another time when I got home. All from drinking just one bottle of water.Comment
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The test results I really have no clue what they mean because Uro didn't either.My ovries are loaded with cysts, which they were 12 years ago and Gyno back then said they were nothing. Uterus lining is fine but has a cysts on it which I didn't have back then. Asked him if that would cause the non-stop bleeding. He said he didn't know. They suggested having another one done when not on my period and I said how? I have no clue when this one will stop and for how long. He said all he could do really was make an appointment to the gyno and I told him there are none left. I won't back to the last one since he complained about Medicaid. I can't afford to pay him and the first gyno got mad at me and dumped me on you. There are no more gyno's that I know of aound here. He said there are two that work for hospital where I got the ultrsound done and they won't complain about the medicaid.So, I said ok. It always works out to where ever or who eve he sends me to so on the 16th I will be going. Do any of you know anything about cysts in the uterus?Comment
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I am still wondering if it is andomyosis, it causes extra folds in the wall of the uterus so more surface area to bleed from, I wonder if it could appear as cysts.
I also wonder how do they know they are cysts and not fibriods, my friend and fibroids and she said they were very painful to her.
Mayby a cat scan would show better results.
It does sound to me like you need a good gyno.
Good luck let me know what you find out from the gyno.
MGMyare with you all. May you all find a way to peace and joy in your lives.
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2 stupid questions
I was wondering where is all the blood coming from and can I slowly bleeding to death? Had a bad day yesterday where the bleeding was really bad but I was taught in school only so much gathers in the urterus so just where is all this extra blood coming from? Also, some times the blood color is dark red.
I guess ultrsounds can tell if fibroids are there and none are. I had a cat scan done I guess 8 years ago and it showed cysts in the ovaries too which the gyno told my Uro were nothing but no cysts in uterus. Guess also too since I was bleeding they can't really tell for sure and that is why they want another one done when I am not bleeding. I did google about cysts and options for them are really nothing I will do but will see what the doc says.Comment
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HI, Waterflow ~
I'm sorry you're still feeling poorly. I had excessive bleeding for probably 3+ months nonstop...I did have fibroids. After dealing with horrible gyn's in my city, the owner of the company I worked for called my insurance, made arrangements for me to see another doc in the next county. Before I could even get to him, about a week away, the bleeding got so bad that my husband took me to the new doc's ER where they did the ultrasound and couldn't get a clear picture. They put me on hormones and the next day the bleeding stopped....however, the following day it returned with vengeance and I was rushed back to ER where they said I was severely in need of a transfusion which I denied...they didn't know what to do with me either. However, they did manage to talk to the new doc I was having the upcoming appt the following day with and he told them to put me on a different med, Aygestin. I stopped bleeding and the new doc had recommended a hysterectomy which I managed to avoid because the meds totally kicked in. What a miracle. He explained that the first med they put me on can stop the bleeding, but only tricks the body so in a day or two the symptoms return. Made sense since that's exactly what happened to me.
Your fears about bleeding are normal in my opinion because this isn't normal to bleed so heavily. (I was bleeding through one of those heavy heavy fleece blankets dripping onto the floor when I went to ER). Because the bleeding took place over such a long period of time however, my body had basically adjusted to the severity of the anemia so I was very weak, but never felt like passing out....they couldn't believe I could stand up, etc. My point is, have they taken blood tests to see your blood counts? You need to find out because like me, you may not notice the severity because it takes a longer time for your level to drop and you may also be adjusting to the symptoms of anemia. Our bodies are amazing and do adapt to a lot of complications but that doesn't mean the cause or reactions we have should be overlooked.
Prayers that you are able to find a doc to help under your situation with Medicaid. I'm not familiar with how it works, but it's so sad if that is what is interfering with your care.
Take care.....and keep in touch.Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure.I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
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The cysts could definately be causing alot of pain. Just having ONE can cause an enormous amount of pain, so having alot can cause alot more pain. Good news is that lots of times they go away on their own. Hope this is the case with yours.
Something else I am wondering is have you ever had a lapro to check for endo? I ask b/c it is very common with IC patients and can also cause abnormal periods and pain. Usually a Gyno is the one to do the surgery. Either way, sounds like your next step is to find a good Gyno and get checked out.
Hope you feel better soon!I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.
D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression
Meds: Estrogel (due to total Hyster)
The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)
(I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)
John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.Comment
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The only thing I have had done are ultrasounds which always showed I had lots of cysts in my ovaries but this is the first time for one in my urterus. Had a meow scan done twice and it showed cysts too. My Uro asked my gyno and he said they were normal. The first gyno I had 12 years ago said they were normal too but he didn't even know about IC and told me nothing wrong with me. Maybe they are but will see what this new gyno says on Monday. Part of me is dreading it. I never get used to having someone new looking down there. Sure wish my Uro could help with this but he can't but maybe this new gyno will have something different to tell me. Was also thinking about that marking down there that has gotten bigger. Gyno told me it was nothing. He could do a biospy but he said he doubted it would tell anything. The nurse that worked for him (I'm guessing nurse practioner) years ago told me to get a biopsy but I went by the fact he never said anything about it and then when I happened to look (things were extra sore. That was why I looked because I don't look down there other wise) down there and saw it was twice the size and finally went to see what he had to say about it. I paniced because I read where when you get older it turns into cancer. He didn't seem worried about it and maybe he is right but guess I need to get the old body up on the rack and have things checked again with new eyes. Just wish blind folds could be put on those new eyes or have the room in total darkness. I know! Superman needs to be the gyno for all woman. He has super power eyes and can see through buildings so he could see through our cloths and we wouldn't have to wear those skimpy gowns. There...I solved all our gyno embarassing problems. Now all I have to do is find Superman. Here Superman....Here Superman....Maybe I should have my head examined while I'm there? What do ya all think?Comment
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Make sure to specifically ask what he thinks of the mark and that it has grown.
My Dr. said where he was trained they were told to remove any growths down there because of it's placement, people don't look at them often enough, so just remove and problem solved.
I find if you want something looked at on the outside when getting an examine most Dr. just skim over that part, so ask to make sure he makes a note of it and it's size, so if he dosen't feel you need to to anything about it right now, the size is recorded, so if it grows they know it has grown.
Just a suggestion, if it is in a place that you can, you can take a close up pic with a ruler next to it to show size. You can then print them yourself or email them to your Dr. I did this my Dr. was apprecitive to have a record of my marks. I have 2 on the inside of my outer lips, now I just keep an eye on them and tell him if they grow and he decideds if he needs to have a look.
Your gyno is going to be looking anyways, so make sure you ask.
Just my thoughts MG Good luckMyare with you all. May you all find a way to peace and joy in your lives.
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I am so mad I want to throw things and cry!!
Well, that was a waste of time at this new gyno. First I spent 15 minutes driving around the parking lots looking for a space. Found one way over by the Ivy building which would be like walking blocks away I went drove around again and just happened to time it when a lady was leaving so got a parking spot right out front. There was a lady who got in her truck and just sat there with it running for 5 minutes while I was waiting for her to get out. That was with my first time around the parking lot and she was still sitting there the 2nd time around. Anyway, the doctor knows nothing about interstitial cystitis. Didn’t like I was on vicoden and he kept asking me about pain and if I thought the cysts were causing it. I kept telling him I have pain all the time and I only know when I have the cramping pain and I was taking the vicoden for the bladder not the cramping. Nurse kept asking me that in the beginning when taking notes. He asked if I ever had the lapscoscopy done. Told him no. Now (That first gyno I went to said I didn’t have endometieriosis because the ultrasound said so.) In the end he said the cysts in the ovaries are normal. The cyst in the eurturis wasn’t and he wanted to do a D&C. Told him no. I told him no for the lapcoscopy too. I’m almost 50 years old now!! This makes me sooooooooooo mad!!!!!!! I would have done that lapscopy thing 12 years ago if the other doctors had mentioned it but none did.(The two gynos) This guy said it wasn’t normal for me to have such cramping pain and bleeding with my periods. He asked when the bad cramping started. Told him when my period started when I was 11 and the heavy bleeding started in my early twenties. Guess he was surprised like that so I will say he does know more or else he just wants to do operations that don’t need to be done. So, I left and will just live with it all. He said menoapuse should start around early 50’s.
He was awful at using the speculum and doing the internal exam. I pushed away is was so bad and now I'm having bleeding from the vagina. Not period type bleeding but like injury type bleeding. Not sure if he tore something inside like that first nurse practioner who did the pap test did 12 years ago which started the whole IC mess. All I can say is I"m soooooooooo done with doctors! Uro will be the only one I trust from now on. He also said that marking should have a biopsy done just to make sure. Told him no. I'm not doing any surgeries this late in the game. Plus I don't feel good enough health wise but I ddin't tell him that.
Now I try not to destroy the house by throwing everything. I suffered every week each month since I was 11 years old!! All that suffering and not being able to plan anything because of my stupid period and now they tell me it isn't normal???Comment
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