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  • PCOS and urinary problems

    I was diagnosed with polycystic ovarian syndrome when I was 19. Never had any kind of urinary problems at all. When I was 28, I was diagnosed with IC. I have been on birth control pills for the PCOS for years. I am now on all kinds of stuff for IC and had a cysto/hydro done in April. Stupid me, I forgot to ask what they saw when I went in for my follow up. However, my uro told my Mom when I had the cysto/hydro done that everything looked good and that I'd be fine. So, what does that mean? Do I have IC or not? I've been treated for it for 5 years. Is it possible to have a normal looking bladder and still have IC? Anyway, I read that PCOS and urinary problems seem to be linked. I have to see my family doc this week for my yearly physical and am planning on having him check my hormone levels and mention that I read that PSOC and IC could be related. Does anybody else suffer from the same thing as me? Any info, advice or someone to share my pain would be greatly appreciated.

  • #2
    I was diagnosed with PCOS when I was 18, I am much older than that now! I have never read that there is a relation to IC. I do believe that my IC is hormone related. I also have fibro, chronic fatigue, migraines and a few others thrown in there too.

    The name PCOS makes it seem that it is an ovary problem, it isn't that at all. The name comes from the fact that many with it have many small cysts on their ovaries at all times. ( I am sure you already know that though)

    I feel that in my case something in my body does not function correctly and is causing all these problems. I am not sure if it is autoimmune, or a hormone issue. I just know that something isn't balanced or funtioning properly.

    Let us know what your Dr says. I have never had any Dr mention to me that the two are related in any way.

    Sandra

    PS Do you take metformin too? Do you have insulin resistance with your PCOS?
    Link to the patient information, everything from What is IC? to Disability
    http://www.ic-network.com/patientlinks.html

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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    • #3
      I am only on "the pill" to treat my PCOS. I have a very hard time losing weight (but I do like to eat he he). Before being diagnosed, I didn't cycle for 5 months, gained a bunch of weight and had some hair start showing up on my wrists, hands, etc. I can't help but wonder if IC is hormone related as well. I haven't had my hormone levels checked in a few years, so when they do the blood draw, I'm going to ask that they check that stuff and my thyroid too just to be safe. Right now, I just started taking colostrum cuz I read on here that several women have taken it and had success.

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      • #4
        My friend has PCOS, she has no urinary problems. The weight gain in your mid section is common in PCOS, as well as the extra hair growth.

        My friend is treated in a different way, she is on metforium (sp). She was told this would help with her weight problems and address the effects of PCOS.

        Maybe you would want to look into this medication and talk to your Dr. about it.

        I am sure one way of treatment is not right or wrong, just the right or wrong treatment for the person.

        MG
        My are with you all. May you all find a way to peace and joy in your lives.

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        • #5
          I also have PCOS, IC, VV, fibro, migraines and GERD. oh yeah and im fructose intolerant. Although I remained undiagnosed from all of these things for many years I have been on BC pills since about a year after I started my period. I'm not sure if there is a relationship btw PCOS and IC but I do know there are many of us who have both.

          In some aspects I had PCOS before IC. I've always had irregular, heaving periods. I didn't get acne until I was 19ish and the weight gain around then too. I had my IC start up when I was 16. I have been checked many times for my hormone lvl's and my female ones are good just my testosterone is high. I started taking yaz again because it is differnt than other types of BC pills because it gives a constant dose of the same hormone and it is helping with everything. I always knew my problems were hormonal and that is probably why other BC meds didnt help because they have different mg of hormones. You might want to try and switch. I took yaz when I was younger (cant remember exactly when) but i do remember that it helped tremendously but I could no longer take it because of the cost compared to generic BC pills.
          Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

          Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

          Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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          • #6
            To Sailawaygrl: I saw my doctor today and told him that I've been having some slight flaring for the last week and asked him if it's possible that PCOS and IC are connected. He said he hadn't heard anything like that, but would check into it. I also asked him since I was having bloodwork done if they could check my hormone levels and he said he would. He also had me do a urine sample just to make sure there wasn't an infection, which there wasn't. I am so blessed to have a great family doc. He's very good at checking into everything, asking you questions and letting me talk to him and tell him about concerns or questions. So, we'll see what the test results say.

            To Gina: I had my first period when I was 11 and never had a normal one. I was very irregular and had very heavy, painful periods. I can't tell you how many times I had to have my Mom pick me up from school because I felt so crappy. I usually ended up having to sit perfectly still so I'd feel better. I had some very mild acne growing up, but managed it so I didn't have any scarring. When I was diagnosed with PCOS, I had gained over 30 pounds in 6 months, hadn't had a period in about 5 and my testosterone was really high. I have been on and off bc pills since then.

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            • #7
              Just got all my lab results from the doc. Hormones and thyroid are all normal, so I guess this flare has nothing to do with the PCOS. I have been doing baking soda and tums and it helps for the most part. I guess I'll just have to deal with it until it decides to calm down.

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