Tweet
Does anyone find that having a cystocele worsens their IC pain? I have a Stage 2 cystocele and my symptoms are much worse than before. I have pain 24 hours a day. I should have it repaired, but of course am scared as that will cause more pain at least temporarily. Has anyone gotten pain improvement after having a cystocele repair?
-
-
It definitely was a problem for me. It didn't take me long to opt for surgery to correct it. And after the surgery I was again able to urinate with no problem. The surgery itself wasn't horrible --- some post-op pain, but I was given meds to control it.
I have a sling.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Hi, naturegal ~ I too had the same problem with awful pain with the 2nd time my bladder fell but felt much better having it repaired. I did have complications from the first suspension, which are very rare, but getting everything in the correct place definitely helps.
Prayers that you make the right decision for yourself and that you have complete confidence in your surgeon. Please make sure he/she is current with the newest methods to do the surgery that best suits your needs.Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure.
I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
Comment
-
Before I was dx with IC, I had surgery for a cystocele and a rectocele. Since I didn't know about the IC, I thought I would feel much better when all this was taken care of and I was healed. I did for awhile, but then started having pains again and knew something else had to be wrong. Finally I saw a doctor who dx me with IC and started me on Elmiron. It took awhile, but I finally did begin to feel much better. It's been four years now and I only have occassional flares (like now).Comment
-
Thanks ladies. I am unsure what to do (and scared of course). I can either do nothing, have just the cystocele repaired, or have the cystocele repair along with a hydro and bladder biopsy, which I have never had done (I am 54 and have had IC since my late teens). Right now I am just enjoying getting some pain and depression relief from restarting Cymbalta. I thought it was giving me horrible headaches before, but it turns out it was the Cytomel (T3 thyroid hormone) plus needed to lower the dose on my estradiol patch. Part of me wants to just leave everything alone and take Cymbalta, but the rest of me feels unsettled by having such nasty IC symptoms (if I'm not taking Cymbalta) as well as the cystocele and as if I should DO something. But hydros are not a cure, nothing is. If it isn't going to cure, why bother?Comment
-
Hydro's do give some people good relief from symptoms for varing lengths of time, you might be one who is helpped a lot by hydros.
MGMy are with you all. May you all find a way to peace and joy in your lives.Comment
Comment