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  • waterflow
    replied
    I did the same thing. Saw on the news about Ovarian Cancer. Paniced and that is where the horror started for me. wasn't Ovarian Cancer but the IC started due to having the Pap Test done. I learned a long time ago you can't believe what you read or see even if it is a doctor on TV or in a magazine.

    Leave a comment:


  • sue041
    replied
    Bladder Problems

    I don't remember if I answered this before, so this is what the doctors tell me. There is nothing to do except take your bladder out. I do not want that done, I think I am going to take the self cath route and hope that solves my problem.
    Thanks for your write up and I hope you all find a answer to your problems. I am in constant discomfort and try to do what I can. I have a pain pump and take oxycodone and have the fentynal patch. What more can a dr. Do..
    Sorry about the spelling.
    Take care and God Bless us all.
    sue041

    Leave a comment:


  • SandraCT
    replied
    I too share most of the same symptoms as Mothergoose. When I first had IC, I would urinate constantly BUT my flow was great. Then one day, I had to go so badly but couldn't and that's when I realized I had a bigger problem. Now I suffer with IC but also severe retention and my flow is next to none. I was told in addition to severe IC, I have a Neurogenic bladder but no one seems to know the cause. My current doctor thinks it's more of a severe PFD condition. All I know is that my good flow has never come back. And now I leak due to it overflowing. I hope you find answers and get some relief and help for this.

    Leave a comment:


  • Mothergoose
    replied
    You should have this investigated.

    I have this problem too, I had tests a few years ago which showed I had sever retetion.

    I have just started being tested again my retention is much worse, previuos tests show how much worse it is now and fast it is progressing.

    This is not fun to deal with but has many causes so you should see if you can find out your cause now.

    Good Luck MG

    Leave a comment:


  • sue041
    replied
    other conditions related or not related

    Has anyone had a problem like they feel like they have to pee,just like the urge is always there, but when you go to the bathroom you cannot pee, run water drink water, splash some on yourself, I just cannot pee, I will wipe like I did pee and then sometimes that will start me to pee a little, but I have to do this 2 or 3 times until I feel somewhat comfortable about the urgency. And there are other times I pee myself and did not even feel like I should go to the bathroom. This scares me because I think that down the road I will have to have something done to fix this what ever you call it. I am the person with the implanted pain pump and no that has nothing to do with the problem about peeing myself or can't pee. I always wear protection. One more thing when I buy pads I make sure they are not deodorant ones because they make me so sore. I went to the Dr for this and the Dr. said what is your problem and I told her I had a sick bird, she said that I was the third person she ever met that could not use the pads that were deodorant scented.
    Hope this helps someone today.
    Sue 041

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  • Toto
    replied
    I'm glad your having the transvaginal to rule things out. It's best to go to extremes and rule out as many conditions as possible for piece of mind. I had the transvag to rule out pain near my ovaries and possible endometriosis. (test came back clear) When I went to a Urogynecologist I found out that I have many issues with the muscles in the pelvic region and that the tightness of the muscles makes bladder issues worse, causes pain in and around the ovaries, an IC belly, bloating, indigestion problems, burning, nerve pain, etc. When my IC started to get worse I noticed all these new pains over a period of time but never related them to having IC because I had never heard of IC at that time! Nor did I ever think the muscles in that area could be tight and cause problems. Now I'm getting PT as one part of my overall treatment.

    Keep us posted!

    Leave a comment:


  • JanaMarie
    replied
    Thanks so much for the replys and words of encouragement! I don't feel quite so worried now.
    My Dr. jumped right on it and I'm having the transvaginal ultrasound tomorrow. I will post the results because I think this is one of those that we need to bring awareness to.
    Thanks again!

    Jana

    Leave a comment:


  • Pammylynn8
    replied
    Hi there!! I have the almost the same exact pain as you located on my left abdomen. It's kinda just there and goes away maybe for a day and then comes back. I have gotten a bunch of tests that you might want to do. And some of the have come back positive.
    1. It may be my IBS, when you have constipation the bowel will get crabby and spasm. There are no real tests to comfirm this, just a symtom list. This can go on for as long as your bowel are irrirated. It can also be from runny stool.
    2. I got a food allergy test and eliminated a bunch of foods on the list. That helped a little for my pain level.
    3. I went for a US and it turns out I do have a cyst on my ovary. I am going back in a few weeks to see if it's gone away or not.

    You might want to go to OBGYN and ask for an US. It is most likely a benign cyst like mine. It will mimic the same things as Ovarian Cancer. Also check with dr about IBS which can mimic that as well. Good luck!!

    Leave a comment:


  • meResque
    replied
    My gyno suspected cancer, I think, when we started looking into my pain. He did several transvaginal ultrasounds, as well as a CT scan and a blood test (CA 125) before he was satisfied. He never told me his suspicions, but the speed and thoroughness in which he got me booked for everything lead me to the conclusion... and then the blood test pretty much confirmed it. I was almost relieved when IC was the diagnosis. All we found going on with my ovaries was a cyst on each one, that disappeared in time and haven't been back since.

    I also have endo, although mine is mild.

    Leave a comment:


  • momw/ic
    replied
    I did have a correlation between my left ovary and my IC. It wasn't ovarian cancer but I had surgery to have my ovaries removed due to severe endometriosis and the surgeon left part of my left ovary inside of me. The remnant had attached itself to my bladder and was causing not only my IC symptoms but also a severly protruded abdomen - worse on the left and horrible left sided pain. Even though that remnant was removed and the mess all cleaned up I was left with IC and still have that left sided pain. I can totally see where the ovaries can cause some similar symptoms. It can't hurt to get checked out because the transvaginal ultrasounds are easily done. It could still be an ovary causing some of the trouble or making the IC symptoms worse without being cancer.

    Please keep us all updated on your situation!! I know this isn't exactly the answer to your question but just wanted to share my story.

    Leave a comment:


  • JanaMarie
    started a topic Ovarian Cancer

    Ovarian Cancer

    Hi All,

    Did anyone watch Dr. Oz last week when he did the show on Ovarian Cancer? It turns out every one of my IC symptoms mimics the symptoms of Ovarian Cancer and I'm worried.
    My Uro did a cystoscopy and an MRI w/ contrast, but did'nt say anything about doing a transvaginal ultrasound. I've been walking around for 2 years with a low grade cramp on my left side. Sometimes it's real bad and makes my abdomen protrude. My Reg. doctor sent me in for a colonscopy for this, but there was nothing.
    I'm just curious if anyone else has made this correlation and been checked? Would love to hear your stories.

    Thanks,
    Jana
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