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Chronic pudendal nerve sufferer - manage by reducing sitting and when sitting, try to use a Herman Miller type chair with a tempurpedic cushion. However, I have meetings in other people's offices which have very rotten chairs, little padding and no back support - I call them 'death chairs.' Went from a 2" to a 3" thick tempurpedic cushion and still feels like I bottom out. Any ideas out there for a mobile cushion solution I can carry from meeting to meeting and still get sitting support without bottoming out?
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Julie Beyer, MA, RDN
IC Dietitian, Patient Advocate, Speaker, & Author
Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!
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I was just going to suggest the one in the ICN Shop.
DonnaStay safe
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Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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My PT recommends using a standard neck cushion (a friend with PNE uses the Tempurpedic one and really likes it). She also recommends buying a padded toilet seat and putting a pillow case around it (not sure if you would want to take that one to work, though).
I use the cushion from the ICN Sales shop. It works pretty well, but with my pudendal nerve pain I sometimes can't take any pressure on my vulvar area at all. So, I plan on trying the padded toilet seat too.
I hope you can find some relief!Jenny
Dx with PST in July 2007. Confirmed with hydro/cysto in January 2008.
Current treatment for IC:
Oxycodone & Uribel for pain
Some diet restriction-after elmination diet discovered I'm not diet sensitive
Heating pads for the bladder & ice packs for vestibulitis and urethral sensitivity
ICN Cushion
Failed IC treatments/meds:
DMSO & rescue instillations
Zyrtec, L-Arginine, Oral Elmiron, Low-dose Sulfa, Imipramine, Amitryptiline, Cymbalta
Other Ailments:
Chronic Epstein-Barr Virus (Chronic Fatigue Syndrome) & Fibromyalgia
IBS, GERD, and Gastritis
Vulvar Vestibulitis
Degenerative Disc disease, Chronic Migraine
Occipital & Trigeminal NeuralgiaComment
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