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  • nerve block

    I went to Cleveland clinic and saw the uro/gyno doctor yesterday. He said he does not believe I have IC but more vulvadynia and prudendal nerve inflamation.
    He send me to PT with pelvic floor and PN specialty and after just the first treatment I have less burning and I don't feel like I am sitting on a baseball. I am scheduled for more PT.
    The pain doctor wants to do a PN nerve block tomorrow. I am nervous because I have not read much encourageing about the blocks. Has anyone had a successful PN block?

    Thanks for all the support

    Sue

  • #2
    I have a thread just below yours entitled "could this be PN?". Since I posted that thread I found out that I have vulvadynia and pudendal nerve neuralgia. My uro referred me to a large teaching hospital but the earliest appointment I can get is November 16. The physician I'll be seeing does do pudendal nerve blocks. I hope someone answers your post because I will probably be traveling down the same path. If you do have the block, please let me know how it goes.
    Jean

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    • #3
      Nerve Blocks

      Hi - I've had nerve blocks.
      Do you know if yours are guided or unguided?

      Here are some helpful links - once you start getting further down the path with pelvic pain that could be contributing to your IC. The more you kno
      http://www.pudendalhope.org./
      http://www.pudendalhope.org/node/51
      http://www.pudendalhope.org./node/10
      http://www.tipna.org/info/documents/...NerveBlock.pdf

      I've only had unguided ones, which are not recommended in most situations. They were done through the vagina, except for two that were done through the buttock, with a giant needle, and which were very painful. The latter were done by Dr. Jerome Weiss in San Francisco. I felt a terrible pain with one of them and have worried to this day that he may have "nicked" a nerve.

      The ones through the vagina were done at Women's Health at UCI Medical Center in Orange County, CA by Drs. Felicia Lane and Karen Noblett. You can google these doctors and read about what they do. They are excellent urogynecologists and treat both pudendal nerve problems and IC.

      Since then I have had PNE surgery as well. My surgeon is Dr. A Lee Dellon www.dellon.com and he is awesome.

      best wishes - !!!
      [SIZE="2"][FONT="Lucida Console"]
      My blog: http://icandpne.wordpress.com
      1995 - Original symptoms: urethral pain and knife in the left side of vulva. Dx'd with "urethral syndrome" 1997- Dx'd with IC (potassium test) by Dr. Lowell Parsons. Tried all "usual" IC treatments, Elmiron, Atarax, DMSO, heparin, lidocaine instillations. 2000- First hydrodistention by Dr. Daniel Curhan, classic IC glomerulations & mast cells. 2005 - 2nd hydrodistention by Dr. Christopher Payne, Stanford University; dx'd with "refractory" Interstitial Cystitis. 2006 - Dx'd with left pudendal neuralgia by Dr. Jerome Weiss, had two unguided nerve blocks, pain worsened. 2008 - Botox, unguided intravaginal blocks (*WARNING* risk of further damage) by Dr. Felicia Lane; PT with Julie Sarton. 2010 - PNE (Pudendal Nerve Entrapment) surgery, TG approach, by Dr. Michael Hibner. (FAILED) 2011- PNE surgery by Dr. A. Lee Dellon, frontal approach. (FAILED)
      Jan, 2012 - Dx'd with "centralized pain" by Dr. Joshua Prager, UCLA Pain Management. 3-day ketamine infusion, nearly pain-free!!! Bad news: Bladder flared as ketamine is known bladder irritant. Oct, 2012 - Pain pump trial on Dr. Prager's recommendation. Awesome results!
      Nov. 13, 2012 - Surgery to implant intrathecal pain pump, which has been a lifesaver! Success at last! Thank you Dr. Prager!

      Comment


      • #4
        Re: Nerve Blocks

        I am getting a nerve block next week under anesthesia, and super nervous. She said it would be through the buttock and it sounded like it was guided from the explanation (said nothing about vagina). I am so afraid of an error although Dr. Lamvu in Orlando, FL is supposed to be an excellent surgeon.
        Laura D. in Florida

        Share your poems and art about living with IC, and your IC-friendly recipes at www.art4ic.com



        IC since 1994: primarily utilize herbal/natural treatments due to intolerance to many medications. Daily: Marshmallow Root Tea, Hormones, Cystoprotek, Desert Harvest Aloe Vera, Claritin, and relatively strict adherence to IC Diet.

        Comment


        • #5
          Re: Nerve Blocks

          Originally posted by lauraads View Post
          I am getting a nerve block next week under anesthesia, and super nervous. She said it would be through the buttock and it sounded like it was guided from the explanation (said nothing about vagina). I am so afraid of an error although Dr. Lamvu in Orlando, FL is supposed to be an excellent surgeon.
          I hope it goes well for you and you find some relief.

          Donna

          P.S. I really like your picture.
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Re: Nerve Blocks

            Hi Laura,
            I have learned much more since I wrote the previous post in 2011. Unguided nerve blocks are very dangerous. Besides myself, I know several people who have gotten worse from the needle hitting a nerve. One has filed a suit against her doctor for causing excruciating nerve pain that did not exist before the injection. I developed pain going down my left leg, which did not exist before I had the block with Dr. Weiss. I also continued to worsen during the injections and physical therapy I had at UCI Irvine with Drs. Lane and Noblett. At the time of my previous post, I was still hopeful that surgery would help me, but after surgeries with both Dr. Hibner and Dr. Dellon I became bedridden with terrible pain 24/7.
            I don't think there is the same risk if the block is guided. I have heard of some people being helped with this approach but I don't know much about it.
            Sorry to sound so discouraging about the blocks and surgeries. I do have good news however --- I am back on my feet and doing great after getting an intrathecal pain pump that "numbs" the area of my nerve pain and bladder. I wrote about it in my blog (link below)

            Best wishes, and let us know how you are doing.
            Last edited by ICsmiles; 08-12-2014, 03:45 PM.
            [SIZE="2"][FONT="Lucida Console"]
            My blog: http://icandpne.wordpress.com
            1995 - Original symptoms: urethral pain and knife in the left side of vulva. Dx'd with "urethral syndrome" 1997- Dx'd with IC (potassium test) by Dr. Lowell Parsons. Tried all "usual" IC treatments, Elmiron, Atarax, DMSO, heparin, lidocaine instillations. 2000- First hydrodistention by Dr. Daniel Curhan, classic IC glomerulations & mast cells. 2005 - 2nd hydrodistention by Dr. Christopher Payne, Stanford University; dx'd with "refractory" Interstitial Cystitis. 2006 - Dx'd with left pudendal neuralgia by Dr. Jerome Weiss, had two unguided nerve blocks, pain worsened. 2008 - Botox, unguided intravaginal blocks (*WARNING* risk of further damage) by Dr. Felicia Lane; PT with Julie Sarton. 2010 - PNE (Pudendal Nerve Entrapment) surgery, TG approach, by Dr. Michael Hibner. (FAILED) 2011- PNE surgery by Dr. A. Lee Dellon, frontal approach. (FAILED)
            Jan, 2012 - Dx'd with "centralized pain" by Dr. Joshua Prager, UCLA Pain Management. 3-day ketamine infusion, nearly pain-free!!! Bad news: Bladder flared as ketamine is known bladder irritant. Oct, 2012 - Pain pump trial on Dr. Prager's recommendation. Awesome results!
            Nov. 13, 2012 - Surgery to implant intrathecal pain pump, which has been a lifesaver! Success at last! Thank you Dr. Prager!

            Comment

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