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Hello everyone,
Hoping to get some tips and tricks...
In January, I got a UTI that was successfully treated with antibiotics.
In Feb, I got another - or so I thought... didn't actually have infection, but they gave me antibitoics anyways and it went away.
March, yet another... urine culture didn't show infection. 5 courses of antibiotics later, my poor stomach was shot and it still hurt when I peed.
That's my main symptom - I think that if any I have mild frequency and urgency. I probably pee about 10x a day, but drink about 5L of water a day. That part doesn't stress me out.
It burns at the end of when I pee, almost every time. The pain isn't too severe, but it's there and it stresses me out. Today is a bad day. It hurts to sit down.
I was getting a lot better for a while... it only burned maybe 25% of the time. Then I tried Azo. I live in Canada so I had to get it in the US. It seems to have made it worse, went to mild burning every time. So I'm not taking that any more.
I stayed up late on Friday reading every page on urethra pain, and tried Almond Milk this weekend. Been drinking it all weekend. Seems to have made it worse? Now it burns before I pee? I don't know Not sure if I should keep trying.
Chocolate seems to be my main trigger food, which is so cruel. I love it so much!
Another peice to the puzzle is that I began using the Nuva Ring at about the time this all started. After about 5 wks of antibiotics, the dr did an exam and said my cervix was swollen and to take the Nuva Ring out. SO I did, and have done lots of antiinflamatories since, with no positive effect.
I waited forever to get in to a Uro, who did a cystocophy. Apparently I have a polyp in my bladder, which he will remove in a month. He's a jerk - I hate him! Says that this is something I'll deal with forever, oh well, its not so bad. Um, yes it is. I pressured him and he said he doesn't really believe that there's such a thing as IC but prescribed Elmiron anyway. He said my hair is going to fall out if I take it. I started it 3 days ago, and it's really upsetting my stomach.
Uro says polyp is not why I have pain. BUT some of the reading on the internet I've done says that pain when you pee can be a symptom of bladder polyps. Any thought son this???
I've also seen a naturopath who recommended querticin and marshmallow. I'm embarassed to say that I didn't follow through on that. Seeing her on Thurs to pick that stuff up and get going on it.
Im not in pain when I have sex, but I feel it after for at least a day.
The other thing I do is a heating pad and castor oil.
I would really really appreciate ANY feedback.
Any experience with polyps?
Did your hair fall out on elmiron?
Did anyone else have a negative experience with Azo or Almond Milk?
Any Ontarians out there? How did you find another urologist?
Hoping to get some tips and tricks...
In January, I got a UTI that was successfully treated with antibiotics.
In Feb, I got another - or so I thought... didn't actually have infection, but they gave me antibitoics anyways and it went away.
March, yet another... urine culture didn't show infection. 5 courses of antibiotics later, my poor stomach was shot and it still hurt when I peed.
That's my main symptom - I think that if any I have mild frequency and urgency. I probably pee about 10x a day, but drink about 5L of water a day. That part doesn't stress me out.
It burns at the end of when I pee, almost every time. The pain isn't too severe, but it's there and it stresses me out. Today is a bad day. It hurts to sit down.
I was getting a lot better for a while... it only burned maybe 25% of the time. Then I tried Azo. I live in Canada so I had to get it in the US. It seems to have made it worse, went to mild burning every time. So I'm not taking that any more.
I stayed up late on Friday reading every page on urethra pain, and tried Almond Milk this weekend. Been drinking it all weekend. Seems to have made it worse? Now it burns before I pee? I don't know Not sure if I should keep trying.
Chocolate seems to be my main trigger food, which is so cruel. I love it so much!
Another peice to the puzzle is that I began using the Nuva Ring at about the time this all started. After about 5 wks of antibiotics, the dr did an exam and said my cervix was swollen and to take the Nuva Ring out. SO I did, and have done lots of antiinflamatories since, with no positive effect.
I waited forever to get in to a Uro, who did a cystocophy. Apparently I have a polyp in my bladder, which he will remove in a month. He's a jerk - I hate him! Says that this is something I'll deal with forever, oh well, its not so bad. Um, yes it is. I pressured him and he said he doesn't really believe that there's such a thing as IC but prescribed Elmiron anyway. He said my hair is going to fall out if I take it. I started it 3 days ago, and it's really upsetting my stomach.
Uro says polyp is not why I have pain. BUT some of the reading on the internet I've done says that pain when you pee can be a symptom of bladder polyps. Any thought son this???
I've also seen a naturopath who recommended querticin and marshmallow. I'm embarassed to say that I didn't follow through on that. Seeing her on Thurs to pick that stuff up and get going on it.
Im not in pain when I have sex, but I feel it after for at least a day.
The other thing I do is a heating pad and castor oil.
I would really really appreciate ANY feedback.
Any experience with polyps?
Did your hair fall out on elmiron?
Did anyone else have a negative experience with Azo or Almond Milk?
Any Ontarians out there? How did you find another urologist?
A good tip I've seen mentioned is to clean your brush, the brush your hair... put the hair that comes out in a baggie... and then if you think you are losing from Elmiron, do it again. Compare the baggies. You should be able to do this just fine if you've only been on it a couple of days.
03/11 
are with you all. May you all find a way to peace and joy in your lives.
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