No announcement yet.

Need some advice please

  • Filter
  • Time
  • Show
Clear All
new posts

  • Need some advice please

    I am in a moderate flare and with my flares I get terrible pelvic pain and horrible urethra burning. The burning isn't as bad as it was a week or so ago but I'm still having issues. I was wondering if anyone had any good prescription medicine that I could talk to my doctor about to deal with the burning/itching. I checked for a yeast/bacterial vaginoses/UTI and I don't have any of these it's just a "normal" flare for me. I use lidocaine but I can't use it very often so I'm hoping there might be something else I could discuss with my doctor that I could use more often. I also do all of the home remedy things like hot/cold, tums, and baking soda baths. The cold helps but the minute I take it away it's back full force. I also avoid wearing underwear when I can but the burning/itching is really starting to become a problem. Normally I can deal with it by using lidocaine and painkillers for a short period of time but this is lasting several weeks so I need some type of long term solution. Anything I can maybe bring up with my doctor or try at home would help so much. Thank you to all who have helped me in the past and I hope this burning ends soon!
    Take: elmiron 2twice a day
    Cymbalta once a day
    Prosed ds as needed
    Lydocaine gel for sex
    Tramadol as needed
    Oxycodone as needed
    Orthro Evra Patch continuously
    Diagnosed with severe IC April 2011

    Suffered for 8 years without a diagnoses
    I'm 23 and have always had issues but when I was 16 things got much worse. I saw urologists, pediatricians, and gynecologists and nobody had any answers it was either in my head or an infection. Finally found a wonderful doctor who diagnosed me with IC

  • #2
    It looks like you're already taking most of the things I would suggest. Your doctor may be able to make some more suggestions.

    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool