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Doctor for Vulvodynia

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  • Doctor for Vulvodynia

    Can anyone living in New Jersey recommend a doctor that treats Vulvodynia? I am in agony and really need to switch my GYN to someone who knows about this illness.
    Thank you.

  • #2
    banghead

    In order to get the referrals from the NVA you have to join the organization. They will not send it without your donation. I would not mind paying the money if I knew there was a doctor on that list that I could go to. There may not be anyone in my State.
    The last time I went to a doctor that specialized in both conditions he believed me about the IC but said I did not have Vulvodynia. OK, I can buy that but where is all this pain coming from. He could not answer that question. Anyway, I bet you he is on that list.
    I am so frustrated with the medical profession but need the help. I was hoping someone could recommend someone that they find is helpful.
    Thanks for commenting.

    Comment


    • #3
      Hey Ginny,

      I found this link:

      http://www.vulvodyniasupport.com/medical.html

      I hope it's helpful! I have both vulvar vestibulitis and IC, so I can empathize with what you're going through.
      Namaste

      "You must be the change you want to see in the world." - Mahatma Gandhi

      "The most important medicine is tender love and care" - Mother Teresa

      Proud mother of Ahleia, born on April 9, 2007

      -----------------------
      Diagnosed with:
      IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

      Meds:
      Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

      Health treatments/practices:
      Kripalu yoga, Chiropractic, Massage therapy and Reiki

      Comment


      • #4
        Poetgirl,
        I can't thank you enough for that info. I am feeling so desperate with this pain. I will check these doctors out asap.

        Ginny lmao

        Comment


        • #5
          I hope you find one that can help you! Let us know how it goes!
          Namaste

          "You must be the change you want to see in the world." - Mahatma Gandhi

          "The most important medicine is tender love and care" - Mother Teresa

          Proud mother of Ahleia, born on April 9, 2007

          -----------------------
          Diagnosed with:
          IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

          Meds:
          Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

          Health treatments/practices:
          Kripalu yoga, Chiropractic, Massage therapy and Reiki

          Comment


          • #6
            banghead

            I made an appt with someone on the list. 4 month wait. I don't know if I will make it.

            Ginny

            Comment


            • #7
              Wow, a 4 month wait! Did you ask them to let you know if they had any cancellations during that timeframe?

              What have you been doing to deal with your symptoms?
              Namaste

              "You must be the change you want to see in the world." - Mahatma Gandhi

              "The most important medicine is tender love and care" - Mother Teresa

              Proud mother of Ahleia, born on April 9, 2007

              -----------------------
              Diagnosed with:
              IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

              Meds:
              Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

              Health treatments/practices:
              Kripalu yoga, Chiropractic, Massage therapy and Reiki

              Comment

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