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  • "hyperstimulation"

    A friend referred me to an IC site, where I saw a paragraph that accurately describes the most maddening IC symptom I've been experiencing. The author refers to it as "hyperstimulated clitoris".

    If you follow this link:

    http://***********************/my_story.htm

    and in the Table of Contents click on "Still Searching for Answers" and read the third paragraph of that section, you will be there.

    She's described it better than I have been able to do. I am thinking about printing it out to show my uro. I just want him to understand that I am completely serious about this and that I do not have some kind of bizzare sexual fixation. This symptom started suddenly along with the IC, without any prior problems in the area, and it makes me miserable. If there is a treatment that can help, I need to try it.

    -Liz

  • #2
    Im interested! I tried to follow your link, but for some reason it wouldnt work, perhaps you
    didnt type it right? My computer said it couldnt read all the *****************

    Rachel [img]rolleyes.gif[/img]
    @[email protected]
    "Well the Secret O'Life is enjoying the passage of time." ~James Taylor

    Comment


    • #3
      That info is prolly not allowed to be posted on this private site. Perhaps you and Liz can email each other with that info. If you have any questions regarding those "stars" ICN Donna, ICN Diane or ICN Jill can answer your questions.

      y. [img]smile.gif[/img]
      Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn

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      • #4
        Heh. Very interesting. Okay, anyone curious just send me a message and I'll send you the link.

        -Liz

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        • #5
          Hi Eak. The hyperstimulated clitoris problem is associated with pelvic floor dysfunction - your pelvic muscles get irritated and spasm due to IC. Those muscles are all interconnected (take a look at the musculature in medical literature some time) and connect up with the clitoris. I too had this problem before I started getting treated for my IC and PFD. I can't even remember now the last time I felt that way. It's much better now. You might want to look into physical therapy for your PFD symptoms.

          Hope this helps.
          Melanie J.
          "The sun shines not on us, but in us." John Muir

          Living a happy life in spite of IC! http://www.ic-network.com/patientstories/melanie.html

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          • #6
            Hi Liz,

            I would be interested in receiving the whole website. Thanks very much.

            Louise
            [email protected]

            Comment


            • #7
              could you email the sight to me? I would really like to review it. thanks [email protected] [img]tongue.gif[/img]

              Comment


              • #8
                (Sorry 4 abbrev. but fingers R VERY painful)
                Liz, I have had a problem with this 4 a few years now and I go monthly 4 nerve blocks for this. I was not able 2 get 2 the website U posted but would sure like 2 read what they say there. I use 2 B a regular here 4 years & use 2 post about this problem. I haven't been able 2 get here much lately. Some of the IC gals also had hyperstimulated clitoral problems but theirs resulted in clitoral pain. My problem has always been the opposite. Mine gets feeling like the most heightened pleasure feeling you could ever imagine, almost like right before orgasm, except it won't stop, so it quickly becomes agonizing and to the point that U feel like U can hardly breathe because of panting, banging on things, etc., because it won't resolve for me.

                Woody Allen may think this would B heaven, but believe me, when it's happening & won't stop, U cannot act normal & it's hard 2 walk, sit, talk, or anything else.

                I use 2 have a lengthy post at the ICN all the time in regards 2 my Pelvic Floor Dysfunction (PFD)& also this clitoral problem. If U email me, I can email it 2 U. I need 2 make U aware, though, that my email address will B changing any day now. I'll give U my current email addy in case U can write back tonight or tomorrow.

                I would very much like 2 get the URL 4 that website U mentioned so I can C what they have 2 say there about this problem. I also wonder if your problem is the hyperstimulation 2 the point where it causes pain, or if it's more like mine. There is much more I could write about this problem in regards 2 Vulvodynia and PFD, but I think I'll wait 2 hear from U so I can read what U have already read in regards 2 this, and find out more what yours is like.

                Love,
                Carol ([email protected])

                Comment


                • #9
                  Hi Liz, I received a message from you that was in complete Hypertext code. I was able to decipher a web address in it which led me to a different page at the message boards. The web address that you were trying to give me was once again all blocked out, just as it was at the top of this page the first time you posted it here, so I still was not able to get the web address. You can try emailing me again at the same email address I gave you above: [email protected] I will probably still have it for the next few days. Thank you. -Carol

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                  • #10
                    HI CAROL -L

                    I COULD NOT BELEIVE HOW ACCURATELY YOUR DESCRIPTION OF YOUR PROBLEM RESEMBLES MINE I HAVE HAD THIS PROBLEM FOR MANY YEARS BUT NEVER ASKED THE GYNO ABOUT IT BECAUSE IT SO EMBARASSING TO TALK ABOUT IT GETS MUCH WORSE DURING A FLARE AND DRIVES ME NUTS I ALSO HAVE HAD MANY YEAST AND BACTERIAL INFECT. AND WONDERED IF THAT IS WHAT CAUSED SUCH A DISRUPTION OF NORMAL FEELINGS DOWN THERE

                    HOPE ALL IS WELL WITH YOU TODAY IT SEEMS YOU CAN ONLY TAKE THIS ONE DAY AT A TIME

                    THANKS LORRAINE A OR LIA

                    Comment


                    • #11
                      HI CAROL -L

                      I COULD NOT BELEIVE HOW ACCURATELY YOUR DESCRIPTION OF YOUR PROBLEM RESEMBLES MINE I HAVE HAD THIS PROBLEM FOR MANY YEARS BUT NEVER ASKED THE GYNO ABOUT IT BECAUSE IT SO EMBARASSING TO TALK ABOUT IT GETS MUCH WORSE DURING A FLARE AND DRIVES ME NUTS I ALSO HAVE HAD MANY YEAST AND BACTERIAL INFECT. AND WONDERED IF THAT IS WHAT CAUSED SUCH A DISRUPTION OF NORMAL FEELINGS DOWN THERE

                      HOPE ALL IS WELL WITH YOU TODAY IT SEEMS YOU CAN ONLY TAKE THIS ONE DAY AT A TIME

                      THANKS LORRAINE A OR LIA [img]rolleyes.gif[/img]

                      Comment


                      • #12
                        As a veteran of Vulvodynia and from everything I've read (anything I can find) Clitoral pain is quite a common symptom of Vulvodynia. As to what helps......I find Pamelor (tri-cyclic antidepressant/25mg.) really does help. It doesn't do much for the other Vulvodynia symptoms, but it does elminate that particularly annoying pain. I have found though that for general itching and burning (and recommended by my gyno) Benzocaine works well. Maximum strength
                        Vagisil or Vagi-guard both contain 25 % Benzocaine, which is just a topical anesthetic.
                        I tried cortisone on his advice and it did absolutley nothing, not to mention you cannot use cortisone for very long as it thins the skin even more. Of course finding a gynecologist who really knows something about Vulvodynia is a challenge!

                        www.vulvarpainfoundation.org has some good info.
                        GardenLady

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                        • #13
                          Liz,

                          Could you please send my the link for
                          http://************/my story.htm


                          Thanks
                          dolo

                          Comment


                          • #14
                            Dolo,

                            You do not have private messaging activated on your ICN account. I don't think I can send the link to you that way, anyway. You can send me an email at ea[email protected] and I'll reply. The same goes to anyone else.

                            -Liz

                            Comment


                            • #15
                              Women are generally very embarrassed to talk about this- that's why, in my opinion, even some top IC docs don't realize how often this can happen let alone the gynos- I haven't met one who'd ever heard of it... In any case it was the hyperstim clitoris that eventually turned into pain that was the symptom that made me turn to the medical field in desperation in the fist place. They made a ton of mistakes but did find out eventually that I had IC and even later that I have PFD. It's actually the pfd that causes the clitoral issues. Regular myofascial release and massage treatments (my husband has been trained by physical therapists I've had to see to do this to me) twice a week, stretches that I do daily, 2700 mg of neurontin a day, and ultram as needed is how I cope with this and keep it under control. It took a very long time to figure out all that I Need to do. IN my experience some pain doctors and some pts are the only ones who have been able to help. Nerve block shots in my vagina did nothing but a shot at the base of spine- a selective nerve block did help. Again, although mine strated as hyperstimulation years ago and a particular pain cycle often starts that way- it goes to pain quickly and this more than annoying, it is excrutiating!

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