Vulvar Vestibulitis - resources to find Dr.

[Mary H]

Hi all,

I was diagnosed with IC two years ago and seem to have finally gotten that under control. But about six months ago I started having pain with intercourse (gyno told me to have a glass of wine and just "relax"...grrrr!) and finally three months ago I saw a new gyno, who did the Q-tip test and said I was a textbook vestibulitus case. She put me on Elavil to take at night and licodaine cream to use prior to intercourse. Three months later and it hasn't gotten better, I saw her again yesterday and she said she wasn't sure what else to try....sigh....

Sorry to be so long-winded...I wanted to ask about resources to find a doc in Georgia who specializes in Vulvodynia/Vestibulitus, etc - are there any websites or sources you could recomend to find a specialist? Or is there anyone here who lives in GA and has a great gyno?

Thanks very much!!

[poetgirl]

Hi Mary,

I live in the Atlanta area and also have VV. I just started seeing this new OB/GYN who is very empathetic and knowledgeable about the condition (and its relationship to IC.) His name is Dr. Michael Dawson and he is at the Emory Clinic Crawford Long.

[Mary H]

Poetgirl, thank you so much for the info! I will definitely contact Dr. Dawson.

Just the possibility that another docter might be able to help makes me feel a little better....

[auntiedeb]

Hi , May I ask a question? What are the symptoms of VV? Is it burning and feel like inflammation up there? Just wondering. I am burning today for some reason. I am on antibotics for bacteria in my urine and my discharge. Sorry to be so gross. Thanks for answerig me. Hang in there. There is hope. This too shall pass.

[poetgirl]

Deb,

The symptoms can vary from person to person, but I typically experience burning and sometimes flat out nerve pain, along with some frequency/urgency when the VV flares up. I also have a couple of lesions on my vulva that get inflamed when the symptoms start up. It usually is trigged by my menstrual cycle (usually about a week or so before I get my period) and often if I have sex (although if I am very careful I can sometimes keep sex from causing it to flare up.) Sometimes I think it is also triggered by the fact that I almost always wear panti-liners because I have some occassional post-void dribbling or mild urge incontinence. It doesn't let things breathe the way they should, especially if you're like me and sit at a desk all day.

[auntiedeb]

Thankyou Poet Girl, I stand all day long, I am a cashier at Walmart in Walpole, MA. I started to wear poise pads and they are uncomfortable , I leak sometimes and sometimes I am afraid that I may not make it to the toilet in time and it has happened sometimes. thankyou. Hang in there. There is hope. grouphug grouphug grouphug angel angel

[Ginny]

auntiedebbief,
If you are on an antibiotic you could have a vaginal infection. Check into it.

Ginny

[auntiedeb]

Hi Ginny, that is another reason I am on antibotics, I had a discharge and bacetreia in my urine. Uro put me on flagaly. I will keep an eye on it and let the uro know what is going on. I don't have the discharge anymore. Thanks for caring. Hang in there. There is hope. grouphug grouphug