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  • #1

    Opinions please

    Copied this from Announcements. Would like everyone's opinion.

    >If you struggle with muscle tension, the brand >new "A Headache in the Pelvis: A New >Understanding And Treatment For Prostatitis and >Chronic Pelvic Pain Syndromes!" may be very very >helpful. This book describes a landmark >treatment for individuals who have chronic >pelvic pain syndromes (including prostatitis & >interstitial cystitis & even vulvodynia).

    Ginny
    Tags: None
  • #2
    I guess I don't know what your question is. Do you want opinions about the book itself? I haven't bought it yet, but plan to in the near future.
    IC Angel: Proudly supporting the Children and the Elderly with IC.


    E-Mail: [email protected]

    http://www.myspace.com/lilmiss200595


    Revelation 21:4
    "And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."

    Comment

    • #3
      From what I understand it is about muscle tension causing the pain of IC and Vulvodynia. I was just wondering if anyone thought this could be the problem. I know myself that my muscles are clenched but is that because of the pain or is the pain because of the muscle clenching.

      Ginny

      Comment

      • #4
        I agree with Ginny. If muscle tension caused IC and vulvodynia, it would be Soooo much more common. I think more men would have IC than women, because they are very protective of that area, think protective cups for sports.

        Comment

        • #5
          My understanding is that the spasming of the muscles are what is causing the pain. If you've ever had a back injury and had to have the spasm worked out in physical therapy, you'd know what I mean. However, your muscles can also be tight or spasmed and you might not feel that pain until those muscles are being worked/overworked in some way.
          Namaste

          "You must be the change you want to see in the world." - Mahatma Gandhi

          "The most important medicine is tender love and care" - Mother Teresa

          Proud mother of Ahleia, born on April 9, 2007

          -----------------------
          Diagnosed with:
          IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

          Meds:
          Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

          Health treatments/practices:
          Kripalu yoga, Chiropractic, Massage therapy and Reiki

          Comment

          • #6
            hmm thats a hard question, almost like which came first, the chicken or the egg?

            I do know however that when I am having a flare, if I try to rest and relax the muscles it helps some. I guess thats why we use heat, or ice to relieve some of our symptoms, to keep the muscles as relaxed as possible and leaving us in less pain.
            IC Angel: Proudly supporting the Children and the Elderly with IC.


            E-Mail: [email protected]

            http://www.myspace.com/lilmiss200595


            Revelation 21:4
            "And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."

            Comment

            • #7
              I think it can be a vicious circle --- if I feel a little bit of irritation, my muscles tighten, which increases the discomfort, which makes the muscles even tighter, and on and on.

              When I begin to feel any discomfort, I start on antispasmodics to help relax the smooth muscles --- for me it works. Once the muscles begin to relax the pain is much less.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8
                It has to make me think that maybe the VV came as a result of tightening of muscles from the pain of IC.
                I'm mostly asking for opinions because if I buy the book and do whatever it says and I am not helped I will go off the deep end. I've been doing this too long.
                Ginny

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                • #9
                  My dr did a little test on my vulva like the potassium sensitivity test. He put those same solutions on my vulva with cotton balls and I have the same reaction as with the sensitivity test!!! He said he believes the lining of our vulva is gone in places ---just like the lining of our bladder.
                  hugs
                  brianna

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                  • #10
                    My gynecologist believes that the two conditions (vulvar vestibulitis and IC) are related. It just gets tricky when trying to treat them both. Some of the medications provide relief from related symptoms (the Elavil he prescribed for the VV has really helped my bladder) but it all seems to be a lot of trial and error. When he did my biospy last week, he said the area where I was having the lesions was thicker (scarred?) which makes me think that like the bladder wall, I've been experiencing similar tissue damage.
                    Namaste

                    "You must be the change you want to see in the world." - Mahatma Gandhi

                    "The most important medicine is tender love and care" - Mother Teresa

                    Proud mother of Ahleia, born on April 9, 2007

                    -----------------------
                    Diagnosed with:
                    IC, OAB, Congenital urethral stricture, IBS, Vulvar vestibulitis, Heart murmur, Congenital cervical stenosis...but otherwise doing great!

                    Meds:
                    Currently in remission, but took the following for 3 years: Elmiron 200 mg., Elavil 25 mg., Detrol LA 4mg, Ovcon-35

                    Health treatments/practices:
                    Kripalu yoga, Chiropractic, Massage therapy and Reiki

                    Comment

                    • #11
                      Hi,

                      I'm new to this board and to ic. I have burning inside my vagina but the ob/gyn says no infection. The outside of my vaginal area does not hurt when I touch it, just the inside. Is this vulvodynia? Does the burning usually stay forever or does it come and go like ic symptoms? Is the burning usually related to some specific time in the menstrual cycle? (I have just noticed it in the few days before my period and now during it too) Does anyone have any good tips on how to make sex more comfortable with this? Will it continue to get worse? (sorry for so many questions)

                      Thanks
                      Colleen

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